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re: Any special needs parents here in the OT? ADMIN NEEDED
Posted on 4/12/19 at 9:55 am to couv1217
Posted on 4/12/19 at 9:55 am to couv1217
That's honestly one of my biggest fears of having kids but it's something you have to get over if you want them eventually I imagine.
One of my close buddies has a daughter with a microdeletion of the 13th chromosome. It's virtually similar to Down Syndrome. They develop to a certain level and don't progress mentally past that stage. She has the added complication that she will never speak as a part of her condition. She can make noises, but cannot form words or sentences. She is 3 or 4 now.
Whatever you do, despite what "normal" is for their condition, continue to press through those. For example, my buddy's daughter will likely never speak fluently, but they continue to press her and encourage her to try to speak. They're working on potty training right now even though her brain doesn't exactly acknowledge that the sensation of needing to go, means go to the bathroom.
You'll never know their capability or potential if you give up on them.
One of my close buddies has a daughter with a microdeletion of the 13th chromosome. It's virtually similar to Down Syndrome. They develop to a certain level and don't progress mentally past that stage. She has the added complication that she will never speak as a part of her condition. She can make noises, but cannot form words or sentences. She is 3 or 4 now.
Whatever you do, despite what "normal" is for their condition, continue to press through those. For example, my buddy's daughter will likely never speak fluently, but they continue to press her and encourage her to try to speak. They're working on potty training right now even though her brain doesn't exactly acknowledge that the sensation of needing to go, means go to the bathroom.
You'll never know their capability or potential if you give up on them.
Posted on 6/18/20 at 10:05 pm to WhiskeyThrottle
I think that I know who your buddy is. My neighbor had her grand daughter outside the other day. The little girl was in a stroller. I didn't even know that something was wrong with the little girl until my neighbor told me what the little girl was going through. They are really working with the child plus she sees a specialist. I told my neighbor that her granddaughter will be talking before they know it. I'm a firm believer that anything can happen and the love that the family shows that child will have that child speaking in no time. I also believe that miracles can happen and that people who have a special needs child was given an angel by God. Everyone has a purpose on this earth.
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