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re: Trigeminal neuralgia - dealing with severe nerve pain - 15 month Update pg3
Posted on 2/10/19 at 10:13 pm to LSUTIGER16
Posted on 2/10/19 at 10:13 pm to LSUTIGER16
quote:
Are you guys seeing a pain management physician? If so, what options is he giving you? I know you mentioned she does not want to take meds or have surgery, but there are some interventional procedures that can be done. I work with pain management physicians and I will get some ideas for you. My immediate thought is to stimulate the nerve with a peripheral nerve stimulator.
I’ll post tomorrow...
As of right now we are not seeing one. We are trying to get connected with a neurologist who will approve an MRI. She hasn’t had one in two years and they say its not a priority / insurance will not cover it.
Forgive me for not knowing the name (I could probably find it in my search engine), but she did receive from type of laser treatment to help with the nerve damage. — edit: it was a SCENAR machine
Daily medication/pharma would never be a thing for her. Hoping for something all natural, although I know when it comes down to functioning in society without constant pain, it may come down to that.
We have been experimenting with Kratom, as suggested to us by some people with lifelong pain.
Looking forward to your next post.
This post was edited on 2/11/19 at 12:58 am
Posted on 2/11/19 at 12:12 pm to emboslice
So she’s willing to use Kratom but not actually use pharmaceuticals regulated by the FDA?
Ok.
Ok.
Posted on 2/11/19 at 12:17 pm to emboslice
She’s unfortunately limiting herself by not being willing to take any meds. Carbamazepine is a good Med for this, as is seeing a pain management physician who may be able to offer alternatives for pain control. It’s a terribly painful issue that’s difficult to control without these limitations. Best of luck
Posted on 2/11/19 at 4:05 pm to emboslice
So the pain physicians I spoke with today all agree that radiosurgery with a gamma knife is the best option because of the pain.
Another doc said gabapentin worked well on one of his patients, but that patient only really experienced numbness (ants crawling) and not pain.
Another doc said gabapentin worked well on one of his patients, but that patient only really experienced numbness (ants crawling) and not pain.
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