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re: Diagnosed with pancreatic cancer - any good outcomes?

Posted on 10/29/16 at 7:32 pm to
Posted by lovelsu
Crowley, LA
Member since Jan 2007
780 posts
Posted on 10/29/16 at 7:32 pm to
I had initially decided to not get any treatment and my family said they would support any decision I made. I then spoke with my doctor who I really trust (not my oncologist) and he suggested I try a couple of rounds of chemo and then get a PET scan to see if there is any reduction of the tumor. If I feel it is not for me or not going to work then I can quit the treatments. I can assure you no one is going to make me get treatments if I decide it is not worth it!??
Posted by Parallax
Member since Feb 2016
1451 posts
Posted on 10/29/16 at 7:39 pm to
I personally would not recommend that approach. It sounds like your cancer is locally advanced. A cycle of chemo may make your cancer resectable (at major academic centers with skilled hepatobiliary surgeons) and put you on a track you don't want to be on, where you end up too far down the treatment tunnel and feel like you can't turn back.

Decide what makes life worth living for you. If it's simply being alive no matter the state for as long as possible, go ahead and exhaust every option.
This post was edited on 10/29/16 at 7:40 pm
Posted by mkibod1
South of the Donna Dixon Line
Member since Jan 2011
4744 posts
Posted on 10/31/16 at 10:24 am to
My opinion would to seek out a 2nd and even 3rd opinion. My MIL was first diagnosed with colon/rectal cancer Thanksgiving of 2009. She almost died her first night in the ER due to resulting infection. She lives in Austin, TX, and we were given very grim news from doctors saying they did not think she would make it a few months. She got past the infection, but doctors still did not think they could treat her cancer fully due to location and severity. She saw 2 different oncologist in Austin, both saying they couldnt do much but make her comfortable. She then went to MD Anderson where they were upbeat, and told her it will be hard, but possible to beat. She beat it then, had it come back a year and a half ago in a different location, then beat it once more. Her tumor has been shrunk so small it is non-identifiable on her last 6 PET scans. Had she stayed with the original Austin diagnosis, I do not think she would have made it this far, but throughout all of it, all she said is "I want to find a doctor that gives me a chance to see my grandkids grow up". She found that at MD Anderson, did her routine chemo back in Austin, with monthly checkups in Houston. She said it was hell, but our daughters and her other grandkids made it all worth it.

My advice would be to find your drive, and fight like hell!!! Prayers to you and your family that you all can find a gameplan that puts you all at peace, and that you can pull through it.
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