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re: Who comes up with these lame challenges?
Posted on 8/21/14 at 8:04 am to LNCHBOX
Posted on 8/21/14 at 8:04 am to LNCHBOX
The $31.5 mill does not even scratch the surface on research. Very little, if any of that, will trickle down to families. Research is great, but. Do you know how long it takes to develop a drug and have it FDA approved? And do you know the average life span of an ALS patient? These people need medicine, reliable and accessible vehicles, carerakers, etc. And they need that now. The national org will not help with that. Don't believe me? Call corporate and tell then you have a relative with ALS and your wheelchair lift is broken. They will give you a list of resources outside the organization, most of which will be dead ends. That's what bothers me about it. People don't know where their money is going.
Posted on 8/21/14 at 8:29 am to drunkenpunkin
quote:
drunkenpunkin
Precisely. Which is why I am always hesitate to donate or participate in something I know little about. It's important to do due diligence on where your money is being spent.
Posted on 8/21/14 at 9:15 am to drunkenpunkin
quote:
drunkenpunkin
How does one donate locally? Is the Steve Gleason foundation a better recipient?
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