re: 1-mth-old son referred to neurosurgeon for craniosynostosis (helmet pic p. 14)

Well, today was the appointment, where, according to the nurse on the phone a few weeks ago, the doctor was to go over the CT scan results -- the ones he had in his possession for 3 weeks -- and discuss our options going forward, and possibly schedule a surgery date.

Nope, none of that happened. Instead, he said that this is an extremely rare form of craniosynostosis that he knows little about. The appointment consisted of him telling us he will be calling us back with a referral to the Children's Hospital in New Orleans to see Dr. Lori McBride. If we don't hear from him "within a week or so," we should call him to follow up for the referral and appointment date. Still need to find out for myself if they are even in my fricking network.

We waited 3 weeks for something he could've told us over the phone in 30 seconds. Instead, it was another $60 copay out of pocket for us, another insurance check for him, and nearly a month of time thrown away. My wife is a teacher, had the summer off, and had he just looked at the CT scan and did a referral, we might've actually had a surgery date by now that could coincide with my wife's summer time off. Pretty certain that another week to schedule the appointment, plus god knows how far out the appointment will be scheduled, with no actual surgery date in sight, that it'll be well into fall before anything happens.

Beyond livid.