re: My Mom has been getting worse with her dementia

We had a need for in-home care in a situation w my mother but it's not dementia related. She had severe deformative rheumatoid arthritis for many many years. LSS, she finally was unable to safely walk or stand which limited any chance of self-care.

Here's what I learned from professionals after a severe fall: she was eligible for Hospice through Medicare and her state retirement plan. I had no idea Hospice could be considered longterm care, when evaluated and needed. I've always correlated it w terminal illness end of life care (cancer, etc). Not the case at all. Our nurses had examples of case after case where their care was needed in dementia/other instances spanning over 12 months or even multiple years. COPD for example.

I ramble just to say there may be some relief if you sit down with her PCP and a marketing rep from a Hospice org. Just ask questions and flesh it out.

We opted for 3 days a week care. Full service: bathing, medication facilitation including delivery, feeding if necessary, hygiene, hair and nail care, and so much more. The nurse and aide were invaluable. It cost us nothing out of pocket. She used the service for 19 months.

Sorry to type so much but wanted to give you something to consider. So sorry about your little bird. Hang in there.