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Started By
Message
re: 20's Advice
Posted on 11/14/14 at 5:46 am to MikeAllenWrites
Posted on 11/14/14 at 5:46 am to MikeAllenWrites
How can the OP not hold a job?
Nothing about this illness would indicate he can't read or type on a computer. The mathematics part is a little troublesome, but knowing your numbers is not the same as counting or doing arithmetic (even though it appears most that suffer with this can do simple math)
I'm not saying he will hold some important job, but like a lot of people with various brain trauma they have to adjust.
Nothing about this illness would indicate he can't read or type on a computer. The mathematics part is a little troublesome, but knowing your numbers is not the same as counting or doing arithmetic (even though it appears most that suffer with this can do simple math)
I'm not saying he will hold some important job, but like a lot of people with various brain trauma they have to adjust.
0
Posted on 11/14/14 at 5:47 am to yurintroubl
quote:
You can give them mini-muffins
Maybe he can reach his goal faster if he just buys the mini-muffins for everyone.
Also, what does the title of this thread have to do with anything?
This post was edited on 11/14/14 at 5:51 am
Posted on 11/14/14 at 6:56 am to NATidefan
quote:
Alter... and Full of shite.
Yeah I'm going with this too.....all bullshite.
Posted on 11/14/14 at 7:01 am to fightin tigers
I am very up in the air on this whole thing. Who are the NFL players...why arent they funding him, does he know Matt Flynn, etc.
Posted on 11/14/14 at 8:06 am to MikeAllenWrites
Alright, let me preface this by saying that I have a child with autism and a neuromuscular disease. He will never hold a job or live independently. Not because of the autism because he is high functioning. If that was our only hurdle, I could get him to independence. His body, like yours, limits him. So, I'm going to talk to you like a mother. If you were my son, I would tell you this.
You are hanging your hopes on way too lofty ambitions without having a base. You are capable of holding a job, just maybe not one you would want right now. But, part of overcoming limitations is knowing where start. You're trying to go from 0 to 60 with no middle ground. Writing a book is great. Awareness and public speaking/stunts are great for your cause. But, they're not going to feed you. Whatever you can do physically, go get that entry level job. Obviously you can type (though I don't know how). I'm assuming you can talk on a phone. You can bag groceries. If you can drive, you can deliver pizza. Are these high paying jobs with a lot of clout? Nope. But, having a job is better than not having one any day. And while you are working whatever job you get, you can work on your other goals. It doesn't have to be one or the other. I stay home with my son now because he can't go to school anymore. I'm looking for a PT job to fill the gaps for my family. Whatever I find will not be something I dreamed of doing as a child. But, I write as well. I do public speaking as well. I just don't expect to be paid enough to live by doing these things. Ideally, your passion and your job match up. But, more often than not, they don't. It doesn't mean you give up on your passion to work a dead end job. And clearly your passion is not paying the bills. I don't know the specifics of your condition, but you seem like a fairly intelligent person. You know you better than anyone else and you know what you are capable of. Go do something and get some experience in independent living. And keep working at your advocacy. Right now, it's not your condition that is limiting you but your line of thinking.
You are hanging your hopes on way too lofty ambitions without having a base. You are capable of holding a job, just maybe not one you would want right now. But, part of overcoming limitations is knowing where start. You're trying to go from 0 to 60 with no middle ground. Writing a book is great. Awareness and public speaking/stunts are great for your cause. But, they're not going to feed you. Whatever you can do physically, go get that entry level job. Obviously you can type (though I don't know how). I'm assuming you can talk on a phone. You can bag groceries. If you can drive, you can deliver pizza. Are these high paying jobs with a lot of clout? Nope. But, having a job is better than not having one any day. And while you are working whatever job you get, you can work on your other goals. It doesn't have to be one or the other. I stay home with my son now because he can't go to school anymore. I'm looking for a PT job to fill the gaps for my family. Whatever I find will not be something I dreamed of doing as a child. But, I write as well. I do public speaking as well. I just don't expect to be paid enough to live by doing these things. Ideally, your passion and your job match up. But, more often than not, they don't. It doesn't mean you give up on your passion to work a dead end job. And clearly your passion is not paying the bills. I don't know the specifics of your condition, but you seem like a fairly intelligent person. You know you better than anyone else and you know what you are capable of. Go do something and get some experience in independent living. And keep working at your advocacy. Right now, it's not your condition that is limiting you but your line of thinking.
This post was edited on 11/14/14 at 8:08 am
Posted on 11/14/14 at 8:33 am to MikeAllenWrites
quote:It sounds more like an unhealthy obsession with proving yourself. Instead of trying to achieve greatness, just live as normally as possible. You might say you are, but that is just not the case.
My goal is to become a contributing member to a community,
Posted on 11/14/14 at 8:59 am to arcalades
quote:
It has led me to overcome Gerstmann Syndrome and PTSD when a F-5 tornado threw me across a bathroom floor and New England Patriot linebacker Dont'a Hightower tucked me underneath a bathroom sink on the day of the Tuscaloosa Tornado.
Wait, so you went to Alabama and your roommate was Donta Hightower, the Donta Hightower? One would assume football players generally room with other football players in the athletic dorm. Yet you somehow were living with one of the football team's most elite players? Interdasting.
Posted on 11/14/14 at 10:38 am to MikeAllenWrites
quote:
I am living with the inability to write
quote:
I've tried writing books.
Know your limits, bro. If I was born without fingers I wouldn't strive to be a piano player.
quote:
I became roommates with three guys who ended up making it to the NFL
Not everyone has direct access, not to mention, close friendships with multiple millionaires. If you have a cause worth donating to, it seems like you could easily make that happen. Anyone with that much money needs a tax shelter.
...Also, what's with the title?
Posted on 11/14/14 at 11:02 am to arcalades
quote:
It sounds more like an unhealthy obsession with proving yourself. Instead of trying to achieve greatness, just live as normally as possible. You might say you are, but that is just not the case.
So taking on big projects is an unhealthy obsession with proving yourself? Haha okay. The population of people who share one of the four deficits I struggle with is quite large. My aim in what I have done up to this point in life since leaving the University of Alabama revolves around creating a greater understanding of what stops people with the inability to write (dysgraphia), to do arithmetic (dyscalculia), to see or feel fingers (finger agnosia) and/or to tell left from right (left-right disorientation) so we can develop better methods of helping those people through processing deficits. Since writing a book, I have realized that sharing a story about living with rare disease is not the same as knowing how to run an organization that addresses what trips up the brains of those with visual/spatial and numerical processing problems. Armed with that knowledge, I know an organization could develop better ways to help people struggling as I have struggled, and that is something I will see happen. All I asked for was advice with stress on this journey but I appreciate you taking the time to respond with that anyway.
Posted on 11/14/14 at 11:13 am to ShortGame
quote:
Know your limits, bro. If I was born without fingers I wouldn't strive to be a piano player
Okay I completely understand that one but I already wrote and published a book for Rare Disease Day 2014. To publish a book on my own was tough, but totally worth it.
Again, I completely understand why you say what you say about the friendship thing but I prefer to accomplish life goals on my own without the financial assistance of others. Again, I created the post seeking advice about stress. Everyone typically says stuff like "indulge in physical activity" or whatever and I just wanted to see what people would say here.
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