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Make It Rayne
LSU Fan
Rayne
Member since Sep 2009
1975 posts

Any experience with Thoracic Outlet Syndrome?

Any with personal experience with this condition? Treatments, stretches, advice?


BeachDude022
New York Yankees Fan
Premium Elite Platinum TD Member
Member since Dec 2006
32047 posts

No idea. I just know Strasburg has been battling it. He had surgery, came back and re-aggravated it. Apparently it’s pretty serious


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littlebird92
Alabama Fan
Louisiana
Member since May 2018
99 posts

I have TOS. I've had to have surgery for it. It took about 9 years to finally get the diagnosis. It's just so uncommon which makes getting treatment difficult. Ask me any questions!


Make It Rayne
LSU Fan
Rayne
Member since Sep 2009
1975 posts

What are the options besides surgery? Were you consistently in pain?
This post was edited on 6/28 at 6:58 am


Hu_Flung_Pu
USA Fan
Central, LA
Member since Jan 2013
20881 posts

My PT said I had it and was able to get rid of it during PT.


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littlebird92
Alabama Fan
Louisiana
Member since May 2018
99 posts

So PT is absolutely where you should start. Surgery is basically that last resort option. And PT takes time. I think most people who have TOS end up doing well with it.

I was in constant pain. Not really living life to be honest. The earlier you catch it the better. Mine had just went so long.


Make It Rayne
LSU Fan
Rayne
Member since Sep 2009
1975 posts

I’m on 10 months


littlebird92
Alabama Fan
Louisiana
Member since May 2018
99 posts

What type of doctor are you seeing for this right now and have you had any tests done?

The problem with neurogenic TOS is it's very hard to diagnose and a lot of times people's tests will come back normal.


Make It Rayne
LSU Fan
Rayne
Member since Sep 2009
1975 posts

Yep , multiple MRI’s on both shoulders and my neck. All normal. Was being treated for bicep tendonitis. Has PRP, steroids, PT, laser therapy, cryotherapy, massage therapy, you name it. My pain is located in my upper pec near armpit and higher, as well as sometimes near shoulder blade area. I haven’t gotten any answers, and I really think this is what I have. It also fluctuates from one arm to the other from time to time.
This post was edited on 6/28 at 7:15 pm


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littlebird92
Alabama Fan
Louisiana
Member since May 2018
99 posts

Everything you've said matches up with it. There are several TOS specialists around the country.

Dr. Gregory J. Pearl is a top vascular surgeon in Dallas that I've heard great things about. There's another guy G. Ross Parkerson, II who is down in New Orleans with Ochsner.

You really are going to want to see a vascular surgeon when dealing with this. If it eventually leads to surgery those would be two that I looked into.

It also sounds like you've got compression of the nerve at the pec minor. I had that surgery as well and it was that final piece of the puzzle that really helped.


Make It Rayne
LSU Fan
Rayne
Member since Sep 2009
1975 posts

I’m heading to PT next week and I’m gonna tell the guy to dry needle that area. Pray it works.


littlebird92
Alabama Fan
Louisiana
Member since May 2018
99 posts

I'll definitely be praying for you! I wouldn't wish it on anyone. I'm hoping this will help you!


Make It Rayne
LSU Fan
Rayne
Member since Sep 2009
1975 posts

You ever get it on both sides?


littlebird92
Alabama Fan
Louisiana
Member since May 2018
99 posts

I actually never did. It was always on my right. I'm on a TOS group on facebook and I've seen a lot of people have it on both sides. So I don't think it's that uncommon for that to happen.

The frustrating thing was throughout the years I've had cubital tunnel surgery twice, released a muscle in my palm and then finally we got to the real culprit just last year.


Make It Rayne
LSU Fan
Rayne
Member since Sep 2009
1975 posts

This is a real pain. Once I think one of my arms feels fine, the other flares .


littlebird92
Alabama Fan
Louisiana
Member since May 2018
99 posts

You're doing everything right and that's been asked of you. It wears you down. Just keep doing what you're doing and then if you don't see any improvement with the dry needling of the pec minor area I would definitely look into seeing a vascular doctor and even the two I suggested. I hate that you're having to go through this pain though!


Make It Rayne
LSU Fan
Rayne
Member since Sep 2009
1975 posts

I appreciate your info!


littlebird92
Alabama Fan
Louisiana
Member since May 2018
99 posts

You're so very welcome! I hope things get better for you!


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