re: Scared to death of my likely diagnosis

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ALS has to be the absolute worse.

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I agree. I personally know 3 people in my circle of friends that came down with ALS. One passed in 2 years, one has been going downhill steadily for 3 years and the other is still living------if you wish to call it that---and going on 6 years since first diagnosed.

I can't imagine what it's like to have your mind functioning well, but just about every other bodily function basically shuts down.