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re: Any special needs parents here in the OT? ADMIN NEEDED

Posted on 4/12/19 at 4:52 pm to
Posted by IonaTiger
The Commonwealth Of Virginia
Member since Mar 2006
33053 posts
Posted on 4/12/19 at 4:52 pm to
The woman that I see has a daughter (who just turned 20 on Tuesday) with DS. She is one of the most delightful and lovable people I know.

I have found out a lot about kids with disabilities and what parents do for them. It is a lot of work, but my SO is her daughter's greatest advocate.

Parents need to be vocal in making certain that school districts do what is necessary for the child. My SO has read a lot; has met with other parents a lot; and has consulted attorneys who deal with disability law a lot. From what I have seen, parents of children with disabilities are more than willing to share with other parents of kids with disabilities. It is a tremendous resource.

Also, contact your local branch of the National Down Syndrome Society.

My SO's daughter has only 2 more years of aid (she is a a wonderful school in MASS). It ends at 22. At that point there is other assistance but I am not certain about that.

I wish you, and all parents who give a loving home to a disabled child, all the best. God Bless.
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