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re: Anyone here experience Cluster Headaches?

Posted on 12/5/22 at 1:35 pm to
Posted by Chemcorp158
Sadly not the Rocky Mountains
Member since Oct 2017
205 posts
Posted on 12/5/22 at 1:35 pm to
I was originally diagnosed with them but now think I was misdiagnosed and actually have occipital neuralgia. Mine start severe in the left base of my head and wrap around to the left eye. Some of the worse ones will make it near impossible to see out that left eye. They are worse at night and can get so bad I can't function. I may have them everyday for a week and then not again for months, or just one random day every week. Nothing has been able to truly give any relief when they come on, although my wife thinks I did better while seeing the chiropractor.
Posted by Gulf bang
Member since Jul 2019
62 posts
Posted on 12/5/22 at 1:47 pm to
I had them up until my 30’s. My doctor prescribed me something called Topamax after trying nearly everything including pain killers that would not work. It’s the only thing that worked for me and I had them bad. I would get them at least twice a week and the stuff was a godsend.
Posted by LSUA 75
Colfax,La.
Member since Jan 2019
3737 posts
Posted on 12/5/22 at 2:25 pm to
I had them about 3 years when I was working dialysis.Had to be some kind stress related thing,never happened on my days off or after I changed jobs.
They would hit me like a lightening bolt behind my L eye ,my eye would water and felt like an ice pick sticking in my brain.
Every step I took would feel like I was being hit in head with a hammer.

I would tough it out somehow,never left work.
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