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re: Trigeminal neuralgia - dealing with severe nerve pain - 15 month Update pg3
Posted on 2/11/19 at 7:59 am to emboslice
Posted on 2/11/19 at 7:59 am to emboslice
Awful diagnosis. My dad had it and he's tougher than nails and it would take him out of commission from the pain. He described it as 'red hot icepick being jammed into his face and running an electrical current through it.' They call it the "Suicide Disease" for a reason. He had brain surgery for it 2 years ago and said it was the best thing he's ever done. He said after that had the surgery not worked, he didn't think he could deal with that pain without living up to the unofficial namesake. My nanny also has it, but it's nowhere as severe as his and does the CBD/THC route and somewhat manages the pain, but not symptoms. Good luck to your ole lady.
2
Posted on 2/11/19 at 9:35 am to JGood
quote:
Awful diagnosis. My dad had it and he's tougher than nails and it would take him out of commission from the pain. He described it as 'red hot icepick being jammed into his face and running an electrical current through it.' They call it the "Suicide Disease" for a reason. He had brain surgery for it 2 years ago and said it was the best thing he's ever done. He said after that had the surgery not worked, he didn't think he could deal with that pain without living up to the unofficial namesake. My nanny also has it, but it's nowhere as severe as his and does the CBD/THC route and somewhat manages the pain, but not symptoms. Good luck to your ole lady.
Thank for the good wishes. I didn’t realize that the disease had that nickname but it made me extremely heavy hearing that, and I truly can understand why it’s called that as well. Did you dad have the surgery pre-diagnoses or post? Was the surgery specifically to fix the nerve damage? Someone would have to be truly convincing to her for her to go through the surgery again. If you know the name of the surgery he had, I’d love to research it more.
I feel helpless, and I’m not even the one in pain.
Posted on 2/11/19 at 10:28 am to JGood
quote:
'red hot icepick being jammed into his face and running an electrical current through it
This is extremely accurate to what she describes. I just can’t imagine. And we just don’t know how to fix it or calm it down
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