re: 6 year old girl born with heart outside body continues to defy odds

As someone with a congenital heart condition I hate seeing kids go through heart defects. I have had 2 open heart surgeries and I am under 30, will have to have another but hopefully not for 15 more years. As a really young child it isn't that bad but gets worse as you get older because you can't do so many normal physical things and also the emotional part of dealing with it.