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I have never felt more powerless in all of my life

Posted on 5/22/14 at 12:13 pm
Posted by asurob1
On the edge of the galaxy
Member since May 2009
26971 posts
Posted on 5/22/14 at 12:13 pm
You see my mother has cancer. This bomb got dropped on me about six weeks ago. She has gone through all of the tests, etc and we discovered it's in her kidney. We also discovered that it has in fact spread into her lungs. Which is very bad.

The doctors can treat it, but they can't stop it. And for the very low price of 2799.00 a month we can preserve her life likely as long as she remains on the treatment.

I don't have an extra 36000 dollars to give my mother. I'm not an OT baller.

I read all the time here, during our health care debates, that there are programs that can aid people with the costs of these type of medical issues. I don't begin to know where to look. So I ask you guys...to point me to them...because while I recognize that my mom probably doesn't have as long on earth as I would like. I would like to make sure she can have every day as long as possible.

Thanks.

Posted by KosmoCramer
Member since Dec 2007
76529 posts
Posted on 5/22/14 at 12:15 pm to
Very sad to hear, prayers sent. Enjoy the time as much as you can, it's a lesson to everyone just how precious life is.

Does she not have insurance?
Posted by Jbird
In Bidenville with EthanL
Member since Oct 2012
73453 posts
Posted on 5/22/14 at 12:16 pm to
Prayers your way Rob, good luck, lost both my parents to cancer.
Posted by Rex
Here, there, and nowhere
Member since Sep 2004
66001 posts
Posted on 5/22/14 at 12:17 pm to
Very sorry about your mother.

Does she have health insurance? If not, her cancer can not prevent her from getting it.

Posted by The Spleen
Member since Dec 2010
38865 posts
Posted on 5/22/14 at 12:17 pm to
This site may be a start. Hoping for the best for you and your mom.


cancercare.org
Posted by ShortyRob
Member since Oct 2008
82116 posts
Posted on 5/22/14 at 12:17 pm to
quote:

You see my mother has cancer. This bomb got dropped on me about six weeks ago. She has gone through all of the tests, etc and we discovered it's in her kidney. We also discovered that it has in fact spread into her lungs. Which is very bad.
Most of us will have to go thru that time when we find out our parents will not be with us much longer. I don't think there is ever a way to get that news and feel much control over it. It just sucks.

quote:

I read all the time here, during our health care debates, that there are programs that can aid people with the costs of these type of medical issues. I don't begin to know where to look. So I ask you guys...to point me to them...because while I recognize that my mom probably doesn't have as long on earth as I would like. I would like to make sure she can have every day as long as possible

I can't claim to be super versed on this subject. But, I can say that I had a friend who successful raised %25K for an overseas adoption of his adopted daughter's brother. He did so in about 90 days. There are many sites for this, but he used LINK /
Posted by Truckasaurus
Alabama
Member since May 2014
336 posts
Posted on 5/22/14 at 12:17 pm to
I'm so sorry to hear that.

Have you sought out support groups? Online groups for people with cancer? They might know some charitable groups helping people in your position.


Posted by Scruffy
Kansas City
Member since Jul 2011
72131 posts
Posted on 5/22/14 at 12:18 pm to
quote:

The doctors can treat it, but they can't stop it. And for the very low price of 2799.00 a month we can preserve her life likely as long as she remains on the treatment.
Out of curiosity, what is the name of the treatment and what is her diagnosis? I need an idea of what is going on.

I'm assuming you are talking about extension of life, not treatment or palliative care.


Also, I'm sorry to hear about her diagnosis.
Posted by asurob1
On the edge of the galaxy
Member since May 2009
26971 posts
Posted on 5/22/14 at 12:21 pm to
quote:

Very sad to hear, prayers sent. Enjoy the time as much as you can, it's a lesson to everyone just how precious life is.

Does she not have insurance?


The 2800 is after all the insurance. The actual drug its self is about 8K a month.
Posted by Bard
Definitely NOT an admin
Member since Oct 2008
51693 posts
Posted on 5/22/14 at 12:22 pm to
So terribly sorry to hear about your mom's cancer. I have no idea where to begin on the treatment path, but my most sincere wishes that your search produces something worthwhile.
Posted by Rex
Here, there, and nowhere
Member since Sep 2004
66001 posts
Posted on 5/22/14 at 12:23 pm to
quote:

The 2800 is after all the insurance. The actual drug its self is about 8K a month.

I believe the maximum out-of-pocket under the new ACA law is $6300 per year. That would apply to necessary medicines, too. You might want to check that out.
Posted by asurob1
On the edge of the galaxy
Member since May 2009
26971 posts
Posted on 5/22/14 at 12:23 pm to
quote:

Out of curiosity, what is the name of the treatment and what is her diagnosis? I need an idea of what is going on.


The drug they want her to take is called Dotrient.

My understanding, (and understand I get second hand information from my mom who is not well versed in doctor speak and my sister in law who is on point (she is a nurse)) is because the cancer has spread to her lungs...removing the kidney will not help her situation. All we can do at this point is stop it in place for as long as we can. So that is the treatment they are recommending.
Posted by Radiojones
The Twilight Zone
Member since Feb 2007
10728 posts
Posted on 5/22/14 at 12:24 pm to
Does her insurance have an annual max out of pocket per year? I have infusions every 8 weeks that cost $11k. My max out of pocket is around $3k a year. Once I pay that amount I am covered for the rest of the year.
Posted by C
Houston
Member since Dec 2007
27827 posts
Posted on 5/22/14 at 12:24 pm to
quote:

I believe the maximum out-of-pocket under the new ACA law is $6300 per year


That doesn't sound right. Are you sure?
Posted by asurob1
On the edge of the galaxy
Member since May 2009
26971 posts
Posted on 5/22/14 at 12:25 pm to
quote:

Does her insurance have an annual max out of pocket per year? I have infusions every 8 weeks that cost $11k. My max out of pocket is around $3k a year. Once I pay that amount I am covered for the rest of the year.


Im not sure but I will look into it.
Posted by Godfather1
What WAS St George, Louisiana
Member since Oct 2006
79740 posts
Posted on 5/22/14 at 12:26 pm to
I'm sorry about your Mom, Rob.
Posted by C
Houston
Member since Dec 2007
27827 posts
Posted on 5/22/14 at 12:26 pm to
rex is right assuming it's in network

LINK /
Posted by Radiojones
The Twilight Zone
Member since Feb 2007
10728 posts
Posted on 5/22/14 at 12:27 pm to
Definitely check it out. I hit my max out of pocket every January. I have extra taken out of my taxes throughout the year and use it to pay it off.

Side note: I just spent the last two months recovering from abdominal surgery with all kinds of complications. The total bill is around $300k. My portion owed….$0.00
Posted by Scruffy
Kansas City
Member since Jul 2011
72131 posts
Posted on 5/22/14 at 12:27 pm to
I can't find any reference to a drug called Dotrient.

I want to see if I can get you some info on the drug.
This post was edited on 5/22/14 at 12:30 pm
Posted by BlackHelicopterPilot
Top secret lab
Member since Feb 2004
52833 posts
Posted on 5/22/14 at 12:28 pm to
I am terribly sorry to read this.

I wish her the best possible outcome and you (and your family) strength and peace.


I lost my mom a few years ago. I suggest that you look for a 'Cancer Society' in your area. We got unbelievable support and help from the one in our city. They were amazing and knew all of these kinds of answers.


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