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Started By
Message
Rheumatologist Dr...anyone here have RA with pointers
Posted on 10/16/17 at 9:55 am
Posted on 10/16/17 at 9:55 am
Anyone ever see Dr.Nitsche in EJ. Tested high for RA last blood test and the pain in knuckles and knees has become a burden on everyday life. When I can squat which is rare I can't get up with pulling with my arms. shite I'm only 40
This post was edited on 10/16/17 at 10:23 am
8
Posted on 10/16/17 at 9:57 am to Dale Doubak
Get in with whoever you can. Rheum doctors have long waiting lists. Any of them can handle RA, its common
This post was edited on 10/16/17 at 9:58 am
Posted on 10/16/17 at 10:00 am to Cosmo
That's what I did not take 6 months to see
Posted on 10/16/17 at 10:01 am to Dale Doubak
quote:
pain in knuckles
Stay away from Sonic.
J/k. Best of luck.
Posted on 10/16/17 at 10:16 am to Jim Rockford
Haha I wish. Can barely hold a cup of coffee. Knees like a 80 year old. Just hit all of a sudden
Posted on 10/16/17 at 10:59 am to Dale Doubak
My wife was just diagnosed with a form of arthritis after years of joint pain and she is only 30. Bad thing is majority of auto immune diseases can't be diagnosed medically but only clinically. Definitely get multiple opinions before a doctor starts trying to give you agressive treatment. Good luck!
Posted on 10/16/17 at 11:06 am to hoppinnissan
Blood work from general dr said levels were high. Tried different meds and none worked. So this is the approach I'm taking. I'm miserable. I know it's hard to diagnose but all I can do is trust them.
Posted on 10/16/17 at 11:09 am to Dale Doubak
I have had it for 15 years. I am 43 now. I still walk jog, do pushups. I am in a clinical remission. Meaning the drugs have it at bay. They are very expensive. Xeljanz, mobic, minocycline. Research antibiotic protocol. I see Marshall in BR, but I don't think He is taking new patients. Mena is kind of tough to understand. RA can be fought, keep moving dont let it beat you. I have wrist damage, and had elbow surgery
Also I do the Apple Cider Vineagar. I really believe diet is a major contributor, but I have no proof.
Also I do the Apple Cider Vineagar. I really believe diet is a major contributor, but I have no proof.
Posted on 10/16/17 at 11:14 am to Dale Doubak
Mine was sudden onset. Went from running through a brick wall, to not being able to lift a 30lb box of paper. I was in a papermill at the time, and though my life was over. Fight it.
Posted on 10/16/17 at 11:16 am to Prix560
Thanks Prix. I may start the apple cider vinegar. Any specific foods you eat. The meds you take are they daily or time released weekly. And lastly what's expensive? TIA
Posted on 10/16/17 at 11:27 am to Dale Doubak
Xeljanz is 2x daily $3000 a month. Not shitting you. Need insurance. They will want you to try Humira (injection), Enbrel (injection), other types before Xeljanz. I had done them all basically. They help
It is not so much what you eat, but what you don't. Foods that cause inflamation like red meat limit. I eat grilled chicken, fish or beans most of the time. Grilled veggies. Keep your weight down.
Apple cider vinegar 2 tsp 3x a day. Most people mix it with honey. I just dilute with ice water. I also started vitamin D3. I feel good, but not sure if it is from that.
Steer clear of impact excercises.
It is not so much what you eat, but what you don't. Foods that cause inflamation like red meat limit. I eat grilled chicken, fish or beans most of the time. Grilled veggies. Keep your weight down.
Apple cider vinegar 2 tsp 3x a day. Most people mix it with honey. I just dilute with ice water. I also started vitamin D3. I feel good, but not sure if it is from that.
Steer clear of impact excercises.
Posted on 10/16/17 at 11:28 am to Dale Doubak
Headed to one of these for first time on Nov 10. Appointment was about 1 month out. I’m going for PMR diagnosis.
Posted on 10/16/17 at 11:30 am to Dale Doubak
Also, just to give you a positive spin. When I first got it I couldn't make a fist, my knees were the size of softballs. My wrist are damaged, but I have no fnger knurling. I am able ref soccer games with my son.
This post was edited on 10/16/17 at 11:35 am
Posted on 10/16/17 at 11:51 am to Prix560
$3000 a month frick that. I buy Vicodin off the street. Was on plaqunil it was only 5$ for a month now it didn't work but dam that's a jump
This post was edited on 10/16/17 at 11:52 am
Posted on 10/16/17 at 11:55 am to Dale Doubak
It sounds like you may be suffering from fibromyalgia
Posted on 10/16/17 at 11:57 am to Dale Doubak
I have struggled with arthritis since my mid 20s. I never test positive for anything. Very frustrating. The only thing I can do is diet, and Advil during a flare.
Posted on 10/16/17 at 11:57 am to Dale Doubak
quote:
Anyone ever see Dr.Nitsche in EJ
I have referred patients to him and they have all been pleased
Posted on 10/16/17 at 12:14 pm to Dale Doubak
Tip: Always ask your doctor questions if you don't understand.
If the doctor diagnose you with an autoimmune disease and puts you on a biologic, you better have a good insurance plan with a low deductible and copays. Blood work and doctor visits will be the norm while on the medication until your levels has been controlled/maintained.
Vicodin can only do so much to mask the pain. If you don't treat the underlying problem then you'll never live a pain-free lifestyle.
I was diagnosed with moderate to severe Rheumatoid Arthritis in 2008; Humira injections changed my life. In 2015 I started showing signs of Ankylosing Spondylitis and given Humira for a few months, my #'s weren't improving as it should so the doctor switched me to Cimzia which helped tremendously.
quote:
$3000 a month frick that.
If the doctor diagnose you with an autoimmune disease and puts you on a biologic, you better have a good insurance plan with a low deductible and copays. Blood work and doctor visits will be the norm while on the medication until your levels has been controlled/maintained.
quote:
I buy Vicodin off the street
Vicodin can only do so much to mask the pain. If you don't treat the underlying problem then you'll never live a pain-free lifestyle.
I was diagnosed with moderate to severe Rheumatoid Arthritis in 2008; Humira injections changed my life. In 2015 I started showing signs of Ankylosing Spondylitis and given Humira for a few months, my #'s weren't improving as it should so the doctor switched me to Cimzia which helped tremendously.
Posted on 10/16/17 at 12:16 pm to AUCE05
My wife is 31 and had pregnancy endured RA which has continued after her pregnancies. While it is not legal in GA, she did ask her doctor about marijuana as a pain reliever. The doctor said he isn't allowed to prescribe it and there is so little research on it but he did say he has some patients who smoke it regularly and they felt it has helped.
She just had a baby a few weeks ago but is waiting until she can try. She has never smoked in her life and hates it when I used to but she said the pain and inability to function is so terrible, she is willing to try it. I'm looking forward to showing her how to take her medicine.
She just had a baby a few weeks ago but is waiting until she can try. She has never smoked in her life and hates it when I used to but she said the pain and inability to function is so terrible, she is willing to try it. I'm looking forward to showing her how to take her medicine.
Posted on 10/16/17 at 12:32 pm to jscrims
quote:
She just had a baby a few weeks ago but is waiting until she can try. She has never smoked in her life and hates it when I used to but she said the pain and inability to function is so terrible, she is willing to try it. I'm looking forward to showing her how to take her medicine.
I hope she waits til she stops breastfeeding
This is just anecdotal evidence but all the kids that I grew up with that I expect were exposed to marijuana in utero or through breastmilk turned out to be burnout losers and petty criminals
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