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re: Psoriatic arthritis, causes and treatment.
Posted on 5/1/17 at 7:10 pm to bencoleman
Posted on 5/1/17 at 7:10 pm to bencoleman
When I started humira, I freaked out taking the two injections the first night. Within a few days I was pain free like I never thought I would ever be again. I didn't realize that my body had just gotten used to a certain level of pain at all times. I literally ran up and down the stairs a couple days after it kicked in. I hope it all works well for you.
Posted on 5/1/17 at 7:46 pm to Gris Gris
quote:
P.S. I'd like to know how the Enbrel works out if you don't mind updating
I'll definitely update periodically. I'll have her check out the forum.
Posted on 5/1/17 at 7:54 pm to SlapahoeTribe
Go to Enbrel.com, get co pay card and this amount disappears
Posted on 5/1/17 at 8:13 pm to bencoleman
The doctors think I have it in my back. I can't touch my toes and some days its stiff as a board.
Posted on 5/1/17 at 8:24 pm to bencoleman
A friend of mine has psoriatic arthritis + ankylosing spondylitis, genetic marker included. I could go into how terrible things were for him pre-diagnosis (constant pain, fatigue, etc. + 9 ortho surgeries that we now realize may have been unneeded), but it sounds like everyone here gets it. He dealt with an idiot primary care doc who did nothing but throw minor pain meds at him for years, but he finally got a referral to a rheumatologist and a diagnosis in 2014.
He tried Humira with mixed results. It succeeded in lowering his inflammation markers within normal range, but the side effects were terrible. He would be sick for 2-3 days after every injection and developed IBD-like GI issues that he'd never had before. So he quit after a year.
Since then he got a new GP who wanted to try diet and exercise in lieu of (or at least in conjunction with) biologics. He started on the auto-immune protocol (AIP) diet in January, and it has been a life-changer. He feels 100x better than he ever did with or without the Humira, and his inflammation markers are in a workable range. And all with zero side effects. The diet is INTENSE (stricter than Paleo/Whole 30) but so worth it.
I never bought into alternative medicine until I saw what a difference changing his diet made. So with diet + the right meds, I'd imagine ever more is possible. He's just not ready to go the biologic route again after the nightmare that was Humira.
TL;DR version: Autoimmune issues suck. Meds can help, but don't rule out diet as well.
He tried Humira with mixed results. It succeeded in lowering his inflammation markers within normal range, but the side effects were terrible. He would be sick for 2-3 days after every injection and developed IBD-like GI issues that he'd never had before. So he quit after a year.
Since then he got a new GP who wanted to try diet and exercise in lieu of (or at least in conjunction with) biologics. He started on the auto-immune protocol (AIP) diet in January, and it has been a life-changer. He feels 100x better than he ever did with or without the Humira, and his inflammation markers are in a workable range. And all with zero side effects. The diet is INTENSE (stricter than Paleo/Whole 30) but so worth it.
I never bought into alternative medicine until I saw what a difference changing his diet made. So with diet + the right meds, I'd imagine ever more is possible. He's just not ready to go the biologic route again after the nightmare that was Humira.
TL;DR version: Autoimmune issues suck. Meds can help, but don't rule out diet as well.
This post was edited on 9/16/23 at 5:25 pm
Posted on 5/1/17 at 8:49 pm to Jcorye1
I just today started having stiffness while trying to stand and now am laid up in the bed. Need help getting up at all. Did nothing to hurt the back. I'm wondering if this is related to my PA.
Posted on 5/1/17 at 8:51 pm to sweet niblets
I've felt much better since dropping a lot of weight. Helps the humira work better. I'm not on a specific diet, but try to eat as low carb--no sugar--as possible.
Posted on 5/1/17 at 8:53 pm to bencoleman
My dad does.. Humira has worked well for him. Regardless, an anti-inflammatory diet works wonders for autoimmune.
Posted on 5/1/17 at 9:10 pm to AUsteriskPride
Going to try the AIP diet and see how I feel. Still need to drop some pounds too. Wondering what I'll eat for breakfast as a scrambled egg has always been my go to.
Posted on 5/2/17 at 1:04 am to jwall3
I'm sick and sorry you're feeling badly. I made no changes. Should have and still should. I get stiff sometimes and my affected joints are weak. Otherwise, I'm doing very well.
This post was edited on 5/2/17 at 1:38 am
Posted on 5/2/17 at 6:20 am to Gris Gris
I'm going to show this thread to my SO she might get some useful information. Watching her hurting like that is heartbreaking.
Posted on 5/2/17 at 11:23 am to bencoleman
As I mentioned, I strongly encourage joining the National Psoriasis Foundation forum. It's so helpful to talk with other folks experiencing the same thing or who have experienced it and gotten relief. They can provide so much information and tips.
Posted on 5/2/17 at 12:48 pm to bencoleman
quote:
Enbrel was a true miracle drug
If they have private insurance (paid by them/employer and they are not on medicare/medicaid) they are likely eligible for the Enbrel support program.
1 shot of Enbrel can run upwards of $1500.00 (taken once a week). Through the Enbrel support program I pay a $10.00 co-pay and Amgen (the manufacturer of Enbrel) covers any additional charges that I would normally be responsible for through my insurance. This includes any deductibles. For example I am on a HDHP and this program pays my entire deductible on the 1st refill of the year.
They also provide free sharps containers, alcohol swabs, and access to nurses 24/7 if you have any questions or concerns. It truly is an amazing drug.
Posted on 5/2/17 at 1:52 pm to Gris Gris
quote:
misdiagnosed for a good while.
When my symptoms started presenting early on in High School the 1st idiot dermatologist I saw suggested I just put some rubbing alcohol on the plaques (they covered my back, chest, and arms at the time). Never burned so bad in my life.
I had to go to multiple doctors before they actually put it together that the skin issues and swollen knee was linked. I went through High School "treating" it with Methotrexate, light treatments, and creams. I never saw a hint of relief until I got on Enbrel.
Posted on 5/2/17 at 2:19 pm to Whatafrekinchessiebr
That's awful.
I don't have the plaque. I have pustular on my palms and bottoms of my feet. Perfectly clear right now with very rare minor breakouts, a few spots here and there.
Was initially diagnosed with dyshidrotic ezema. I can't remember what they thought the pain and swelling was. They'd give me a prednisone pack and some sort of cream and until I finished the prednisone, it would be okay. After the pack, then I broke out again and had excruciating pain and swelling. Went through wash and repeat over and over again until I figured it out for myself.
I don't have the plaque. I have pustular on my palms and bottoms of my feet. Perfectly clear right now with very rare minor breakouts, a few spots here and there.
Was initially diagnosed with dyshidrotic ezema. I can't remember what they thought the pain and swelling was. They'd give me a prednisone pack and some sort of cream and until I finished the prednisone, it would be okay. After the pack, then I broke out again and had excruciating pain and swelling. Went through wash and repeat over and over again until I figured it out for myself.
Posted on 5/2/17 at 2:34 pm to bencoleman
My mother has rheumatoid arthritis. Its taken its toll on her her hands and feet. I forget which drug she is taking now but all the medications mentioned in this thread sound familiar. I'm 38 and about 3 months ago I started having redness and pain on my elbow, hands and shoulder. My mother said this is how her symptoms started at the same age. Then my knees swelled up and remained swollen for about 6 weeks. A steroid shot and prednisone has alleviated a lot of the symptoms but I still feel tired all the time. Do some of you all just feel the fatigue without the pain?
Posted on 5/2/17 at 2:39 pm to ThuperThumpin
quote:
Do some of you all just feel the fatigue without the pain?
Fatigue was not my issue - but maybe there is a difference between RA and PA in that respect? The pain is all I remember. Was truly awful. The biologics have worked absolute miracles for me (Enbrel and Humira originally, but to a lesser extent).
Posted on 5/2/17 at 2:57 pm to Slip Screen
This thread has me wondering if I have PA. I have never heard of it before. I have been having psoriasis for as long as I can remember. In the past couple of years I have been getting pain in my fingers and toes. It is not intense pain all the time but it gets up there sometimes. I haven't been to a doctor in years and don't take anything for the psoriasis, just try to cover it up as much as possible.
Posted on 5/2/17 at 6:18 pm to ThuperThumpin
Yes, I had fatigue and I still have it from time to time.
Coot and Thumpin, go get checked out. Pain equals damage, so you don't want to go untreated for long if it turns out you have PA or RA.
Coot and Thumpin, go get checked out. Pain equals damage, so you don't want to go untreated for long if it turns out you have PA or RA.
Posted on 5/2/17 at 6:28 pm to Gris Gris
quote:
Coot and Thumpin, go get checked out. Pain equals damage
This. The damage can be stopped if you catch it in time. If not you'll become horribly disfigured. Not joking.
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