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Started By
Message
Psoriatic arthritis, causes and treatment.
Posted on 5/1/17 at 4:09 pm
Posted on 5/1/17 at 4:09 pm
Does anyone have this disease or have a family member that has It? My SO has it and her mom has it. I watch these two ladies suffer, it's extremely frustrating not to mention her mom's hands are misshapen. It's a horrible disease.
14
Posted on 5/1/17 at 4:12 pm to bencoleman
T-cell mediated autoimmune disease. Go see a rheumatologist, and get consulted on humira, stelara or one of the other biologics. Will help tremendously
Posted on 5/1/17 at 4:13 pm to bencoleman
figure out a way to get them on Enbrel. I was diagnosed with Psoriasis in college and later developed the arthritis. I was in agony for nearly a year jumping through hoops with methotrexate etc. Enbrel was a true miracle drug with zero side effects (in me at least). My pain diminished to 10% of what it was within the first day or 2. I am nearly asymptomatic on it.
I highly recommend my Rheumatologist. Let me know if you want his info.
I highly recommend my Rheumatologist. Let me know if you want his info.
This post was edited on 5/1/17 at 4:15 pm
Posted on 5/1/17 at 4:16 pm to RaginCajunz
Humira has cleared mine up and worked well without incident for several years now. Have several fingers and toes that have messed up looking joints. Start jumping through the hoops now.
Posted on 5/1/17 at 4:21 pm to jwall3
I lucked out and only have one toe that is slightly bent. It was the canary that let me know I had it. It puffed up and got very painful. After a few weeks I decided it wasn't a sprain or other injury. It left some damage that is mostly felt and not seen. It's a shitty disease, but Humira and the other biological (Enbrel works well for me) drugs are amazing. It stopped everything in it's tracks and reduced my pain to zero.
Posted on 5/1/17 at 4:24 pm to bencoleman
I have it. Was very debilitating until I was actually diagnosed. To the point where I was literally rolling out of bed because I was in so much pain.
Before the diagnosis, I thought I had various orthopedic issues - and am fairly certain I had one ortho surgery that was unnecessary as they were searching for the cause of significant pain in my wrist.
After being on biologics, I am 1000 times better and arguably in the best shape of my life now that I can be as active as a want pain free. I started on Humira (which worked well, but not excellent). Doc said I should at least try Enbrel - I have not been off it since.
Before the diagnosis, I thought I had various orthopedic issues - and am fairly certain I had one ortho surgery that was unnecessary as they were searching for the cause of significant pain in my wrist.
After being on biologics, I am 1000 times better and arguably in the best shape of my life now that I can be as active as a want pain free. I started on Humira (which worked well, but not excellent). Doc said I should at least try Enbrel - I have not been off it since.
Posted on 5/1/17 at 4:30 pm to Slip Screen
I was treated for a severe ankle sprain with 6 weeks in a boot. Now I know that was just the arthritis killing my ankle. Weird to think what it took to finally get a diagnosis. When I did see the rheumatologist he said my sed rate was so high if I hadn't been so young he would have said I had cancer all over my body. Have been a different person after the humira.
Posted on 5/1/17 at 4:32 pm to bencoleman
I have Ankylosing Spondylitis, same family of diseases. Basically, inflammation run amok in your body because your immune system is overreacting to something. What that something is, is what they haven't truly figured out yet. With these, it seems to be that your are predisposed (genetically) to getting them and something triggers it during your lifetime - might be an illness, an injury, or exposure to something. It's like a switch is flipped and the inflammation starts to take over. With mine, it ultimately causes fusion of your major core joints - sacroiliac, spine, neck.
I was on oral anti-inflammatories for years until they finally gave me an ulcer, then started to affect my kidney function. At that point, switched to a biologic (Simponi, same general class as Humira) and it's worked great for 5+ years or so. While Humira I think is a once a week or every two-week injection, Simponi is a once a month. You do it at home with a pen-type applicator. It's worked great so far, but who knows the long-term effects. Better than letting the disease ravage me or killing myself with anti-inflammatory meds. Such is life! We all have our obstacles and mine could be so much worse!
I was on oral anti-inflammatories for years until they finally gave me an ulcer, then started to affect my kidney function. At that point, switched to a biologic (Simponi, same general class as Humira) and it's worked great for 5+ years or so. While Humira I think is a once a week or every two-week injection, Simponi is a once a month. You do it at home with a pen-type applicator. It's worked great so far, but who knows the long-term effects. Better than letting the disease ravage me or killing myself with anti-inflammatory meds. Such is life! We all have our obstacles and mine could be so much worse!
This post was edited on 5/2/17 at 10:43 am
Posted on 5/1/17 at 4:37 pm to bencoleman
The government puts fluoride in the water to cause arthritis so that people are in pain and get hooked on pills. Alex Jones has been preaching this stuff for years
I bought and installed his water filters and haven't had pain since
I bought and installed his water filters and haven't had pain since
Posted on 5/1/17 at 4:56 pm to Melleaux Tiger
I have psoriasis and the arthritis hit not long after I noticed some rough skin spots.
Got on stellara and it was like a miracle drug. Then switched healt insurance and it's been a pain getting it transferred so I've missed a few months. Reminds me I need to call and check on mine.
Got on stellara and it was like a miracle drug. Then switched healt insurance and it's been a pain getting it transferred so I've missed a few months. Reminds me I need to call and check on mine.
This post was edited on 5/1/17 at 4:57 pm
Posted on 5/1/17 at 5:08 pm to bencoleman
Have had it for 11 years now. Been on and off different medications. Have done Methotrexate, Humira, Enbrel and Simponi. Simponi has done the best. Get tired of taking it from time to time though and relapse. The arthritis pain for me is generally controlled with any of those listed. The psoriasis is the part that responds differently. My toes are curled and have problems with my toenails from the arthritis.
Posted on 5/1/17 at 5:27 pm to bencoleman
I have both and was misdiagnosed for a good while. I did my own research and diagnosed myself. The pain is indescribable. I have the arthritis on one side and I wanted to literally cut off my limbs because I couldn't imagine that would be more painful. All I could do was to take pain meds and stay in the bed. I don't think I would have stayed on this earth if I hadn't finally gotten some relief. Fortunately, I have no outward damage and very little internally.
I went to the National Psoriasis Foundatin forum and those folks gave me letters they'd had their docs write to their health insurers get on Enbrel or other biologics. I didn't want to take methotrexate. Wrote one up and gave it to my doc who agreed with the letter, but had little faith that it would work without the metho first, but it worked like a charm. Took a while, but it worked. I stay clear as far as the psoriasis and have little issues with the arthritis. I've been on Enbrel for about 11 years. I never want to feel that kind of pain again. I don't know how anyone could live in that kind of pain daily.
I went to the National Psoriasis Foundatin forum and those folks gave me letters they'd had their docs write to their health insurers get on Enbrel or other biologics. I didn't want to take methotrexate. Wrote one up and gave it to my doc who agreed with the letter, but had little faith that it would work without the metho first, but it worked like a charm. Took a while, but it worked. I stay clear as far as the psoriasis and have little issues with the arthritis. I've been on Enbrel for about 11 years. I never want to feel that kind of pain again. I don't know how anyone could live in that kind of pain daily.
Posted on 5/1/17 at 6:01 pm to Gris Gris
My SO just switched from methotrexate to a new drug. She stays a lot of days in bed. They have her on a stew of meds that can't be good for her and I have to wonder if a stronger opiate wouldn't help her be more mobile. It definitely makes me despise Dr's like hopeful doc that lecture patients on pain when they've probably never had anything worse than a hangnail.
Posted on 5/1/17 at 6:09 pm to bencoleman
quote:
My SO just switched from methotrexate to a new drug.
What's the drug? Is it a biologic? I know there's a relatively new drug out there, but I can't recall the name. My dermatologist suggested it to me in the past year, but I declined because Enbrel works so well for me with no side effects other than a bruise now and then at the injection site. It burns like you're injecting lit gasoline into your leg, but I learned from the psoriasis site to ice the injection area well and sometimes, I don't feel it going in at all. If I do, it's moderate. That form really helped me a lot.
While I waited for the Enbrel to be okayed, I took prednisone for a very long time. I had to wean off of it once I got the Enbrel. I hate prednisone because of the side effects, but it took care of the pain and I was perfectly clear while I was on it. I think it takes a while for the Enbrel to start working. I started off taking the injections twice a week for several months, but since I was still taking the prednisone to wean off of it, I don't know how long it would have taken for the Enbrel to start working. It was working fine when I took the last of the prednisone.
Some folks take a biologic AND the metho. Thankfully, I don't need both or I haven't, so far. The Enbrel works so well that I have to remind myself to take the shot. I spread it out a bit in the Winter months because I do better in Winter. Heat bothers me, so I don't skip weeks once the warm weather comes around.
Posted on 5/1/17 at 6:22 pm to Gris Gris
She just started enbril
Posted on 5/1/17 at 6:40 pm to bencoleman
Biologic meds worked wonders for me. I was on Enbrel for psoriasis (same family of causes as the arthritis). Took it for several months a few years ago. Haven't had a single flareup since.
Just make damned sure you're ready to max out that insurance deductible. As I recall the meds cost in the neighborhood of $4,200 each month. That is the only time in my life I've taken more out of health insurance than I've put in.
Just make damned sure you're ready to max out that insurance deductible. As I recall the meds cost in the neighborhood of $4,200 each month. That is the only time in my life I've taken more out of health insurance than I've put in.
Posted on 5/1/17 at 6:41 pm to Gris Gris
quote:
I took prednisone for a very long time.
She's been on prednisone this month while switching from methotrexate. I'm praying that the enbril works for her. I can't stand to see her suffer.
Posted on 5/1/17 at 6:43 pm to el Gaucho
quote:That's why I only drink Peter Popoff's miracle water.
The government puts fluoride in the water to cause arthritis so that people are in pain and get hooked on pills. Alex Jones has been preaching this stuff for years
I bought and installed his water filters and haven't had pain since
Posted on 5/1/17 at 6:53 pm to bencoleman
quote:
She's been on prednisone this month while switching from methotrexate. I'm praying that the enbril works for her. I can't stand to see her suffer.
I hope the prednisone has given her some relief and that the Enbrel does the job for her. I know her pain all too well.
I really learned a lot going on that forum, so she may want to do that when she feels up to it. If the Enbrel burns a lot, she can ice wherever it is she shoots. I take the Enbrel pen out of the fridge a few hours before I shoot. I wrap one of those medical ice packs around the top of my thigh with an ace bandage for 5 minutes or so before I shoot. Really helps with the burning.
Give Enbrel some time to work. If for some reason, it doesn't help her, there are other options, but I hope the Enbrel works for her.
I only pay 50 bucks a month for 4 pens, thankfully.
Posted on 5/1/17 at 7:02 pm to bencoleman
P.S. I'd like to know how the Enbrel works out if you don't mind updating.
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