Started By
Message

My Wife Has Been Diagnosed with Lupus

Posted on 12/2/14 at 1:35 pm
Posted by Hoyt
Alabama: The Beautiful
Member since Aug 2011
5394 posts
Posted on 12/2/14 at 1:35 pm
What can we expect? Any of y'all have experience with this ?
Posted by TechDawg2007
Bawville
Member since Nov 2007
32249 posts
Posted on 12/2/14 at 1:36 pm to
Isn't that when the body attacks itself?
Posted by AbitaFan08
Boston, MA
Member since Apr 2008
26584 posts
Posted on 12/2/14 at 1:36 pm to
Wow. I'm terribly sorry. No experience so I don't have advice, but certainly sending prayers.
Posted by CadesCove
Mounting the Woman
Member since Oct 2006
40828 posts
Posted on 12/2/14 at 1:38 pm to
I think it largely depends on what type it is. Or, more specifically, how it manifests itself in her.
Posted by Hoyt
Alabama: The Beautiful
Member since Aug 2011
5394 posts
Posted on 12/2/14 at 1:38 pm to
Thank you and yes it is an Auto Immune Disease.
Posted by JumpingTheShark
America
Member since Nov 2012
22907 posts
Posted on 12/2/14 at 1:40 pm to
A girl I know beat its arse, and so can your wife. Good vibes to you both and Prayers sent!
Posted by Cosmo
glassman's guest house
Member since Oct 2003
120303 posts
Posted on 12/2/14 at 1:40 pm to
Lupus is a spectrum. Some people have minimal symptoms and live normal lives. Some people go into multiorgan failure and die.
Posted by lsunurse
Member since Dec 2005
129005 posts
Posted on 12/2/14 at 1:40 pm to
One of my closest friends has this. She is a few years younger than me and frequently has bad arthritis pain in her hands. Otherwise than that, she lives a normal life. Couple years ago she got a medical marijuana card(her boss was the one to suggest it). She smokes maybe once a week(or takes edibles) and she says that has helped her lupus more than anything else. That she was able to get off a few meds because she wasn't having as much pain/swelling in her hands.
Posted by LSUsmartass
Scompton
Member since Sep 2004
82365 posts
Posted on 12/2/14 at 1:40 pm to
Posted by Farkwad
Byzantium
Member since Sep 2010
2669 posts
Posted on 12/2/14 at 1:41 pm to
A friend's wife has had it for years and I never knew until recently. My mother's friend was 'diagnosed" with Lupus from a Baton Rouge doctor and then found out years later that she never had it. God Bless
This post was edited on 12/2/14 at 1:42 pm
Posted by 777Tiger
Member since Mar 2011
73856 posts
Posted on 12/2/14 at 1:41 pm to
quote:

Some people have minimal symptoms and live normal lives

that's me, good luck to OP
Posted by biglego
Ask your mom where I been
Member since Nov 2007
76340 posts
Posted on 12/2/14 at 1:44 pm to
Your friend is a criminal
Posted by lsunurse
Member since Dec 2005
129005 posts
Posted on 12/2/14 at 1:45 pm to
quote:

Your friend is a criminal


How so?
Posted by LSUsmartass
Scompton
Member since Sep 2004
82365 posts
Posted on 12/2/14 at 1:48 pm to
I see some people aren't House fans
Posted by Crocc
South Louisiana
Member since Nov 2012
101 posts
Posted on 12/2/14 at 1:53 pm to
My wife's little cousin was diagnosed with that. Every med they put her on made it worse. After about 3 doctors and 2 1/2 years of missed diagnosis turned out to be lime disease. I'm no doc but I'm sure that's a better situation. Prayers to you and your family.
Posted by Signal Soldier
30.411994,-91.183929
Member since Dec 2010
8189 posts
Posted on 12/2/14 at 1:53 pm to
quote:

What can we expect? Any of y'all have experience with this ?



Watch House

eta: sorry to hear, prayers sent
This post was edited on 12/2/14 at 1:54 pm
Posted by Ace Midnight
Between sanity and madness
Member since Dec 2006
89551 posts
Posted on 12/2/14 at 2:09 pm to
No family members, but I've had friends and I deal with it a lot, professionally (don't ask). I don't intend for this to be preachy, so sorry if it gets there for you.

The disease progresses differently, sometimes vastly, for most patients. There are exciting new drugs and treatment modalities coming out to treat various parts of it. Patients generally have to cycle onto Prednisone periodically, and that's a devil's bargain if there ever was one.

The basics remain the same, though. Remain as active as possible (although she will likely have to watch her sun exposure, particularly with various medications), eat right, get plenty of fluids, exercise, while avoiding things that cause inflammation. It is an autoimmune response, by and large (similar to RA), so you want an immune system that is neither robust nor weak - which will cause problems as she ages.

Her health maintenance just became a full-time job. She will have good days, and bad days (flares). Flares may last days or weeks. You will have to do more to help when she's doing poorly and you should not be resentful about it - it is what it is. You took some sort of oath, richer or poorer, in sickness and in health, and all that - now is the time that stops being BS and starts to mean something.

Good news - there has never been a better time in history to have lupus and it is not a death sentence. It constitutes a lifelong, chronic disease that will affect the quality of both of your lives. The better you handle it the better off you'll be.

Good luck and G-d bless you both.
This post was edited on 12/2/14 at 2:11 pm
Posted by TeddyPadillac
Member since Dec 2010
25627 posts
Posted on 12/2/14 at 2:18 pm to


sucks man. Good luck.
Posted by Traffic Circle
Down the Rabbit Hole
Member since Nov 2013
4254 posts
Posted on 12/2/14 at 2:21 pm to
Should you start using condoms now?
Posted by Elephino
2nd floor, stall 3. Bring paper
Member since Sep 2008
519 posts
Posted on 12/2/14 at 2:22 pm to
My wife was diagnosed a couple of years ago. What Ace said is mostly accurate. Everyone presents differently, different severity, and progression. In my wife's case, she has frequent pain in her hands. Periodically, she complains of pain in her chest like a squeezing sensation. She does not take any medications currently. Hydroxychloroquine has become much more widely used when there is evidence of early organ damage. She hasn't had that issue yet. Aside from organ damage, the biggest risk is probably clotting disorders and an increased risk for stroke, especially with age and increased blood pressure.
first pageprev pagePage 1 of 3Next pagelast page

Back to top
logoFollow TigerDroppings for LSU Football News
Follow us on Twitter, Facebook and Instagram to get the latest updates on LSU Football and Recruiting.

FacebookTwitterInstagram