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My Mom has been getting worse with her dementia

Posted on 3/29/24 at 11:27 am
Posted by Pisco
Mayfield, Kentucky
Member since Dec 2019
3730 posts
Posted on 3/29/24 at 11:27 am
I haven’t talked about this with y’all because I don’t open up about family problems. My mom has been suffering with this for a couple years now. Lately she’s been sleeping late into the day. She’s gone almost two weeks without taking a shower and we have to beg her to do it. Sometimes she refuses to change out of her dirty depends. My stepdad has been struggling with it. We can’t afford to put her into a nursing home to get the daily care she needs. I have to work and take care of myself so I can’t be there all day long like he is. My sister lives in Alabama.

How have you dealt with people who go through this? What information could I read up on?
Posted by LSUJML
BR
Member since May 2008
45301 posts
Posted on 3/29/24 at 11:30 am to
I don’t have any advice but I’m going to pray for your family
One thing I can say is don’t let anything she says or does hurt you too badly, she doesn’t know what she’s saying

My mom gave my grandma some water & she spit it out on her & told her she didn’t want the hussy from up the road doing anything for her
It’s funny now but it was hard on my mom when it happened
Posted by Comancheria
Guntersville, AL
Member since May 2023
510 posts
Posted on 3/29/24 at 11:39 am to
Very sorry to hear that, dementia is absolutely brutal and I don't wish that upon anybody.

My grandma moved in with us in high school when she started suffering from it. It just got worse and worse, I would come home in the middle of the night and she would be sitting on the couch. "I'm just waiting for my ride", hadn't talked to anybody, it was 2am. She would accuse me of stealing her makeup (I was a 16 year old guy)...and crazy stuff like that. It really took a toll on my mom. I will ask my mom if there was anything that helped and get back to you.

Wish I had more to offer, sorry brother. I will be praying for y'all.
Posted by dirtsandwich
AL
Member since May 2016
5136 posts
Posted on 3/29/24 at 11:42 am to
You need to talk to someone in your area who deals with this stuff. There are a ton of resources. It is very possible she is entitled to some free, in-home nursing care.
Posted by dukke v
PLUTO
Member since Jul 2006
202721 posts
Posted on 3/29/24 at 11:44 am to
Sorry to hear. It’s just an awful illness. My best friends dad died a week ago. And his mom passed away just 5 months ag from it.
Posted by SteelerBravesDawg
Member since Sep 2020
34452 posts
Posted on 3/29/24 at 11:45 am to
Prayers buddy. Dementia is an absolute bitch. It sucks seeing someone's memory go while their body is still functioning.

ETA: Anyone who downvotes posts like these that send prayers is a POS. And karma will find you.
This post was edited on 3/29/24 at 12:24 pm
Posted by Tvilletiger
PVB
Member since Oct 2015
4791 posts
Posted on 3/29/24 at 11:48 am to
My grandmother has dementia. She is still in her house and we have two people stay with her and we do all we can. She is healthy as can be other then her mind is gone. She remembers things that happened in the past but nothing short term.
The worse is what they call sundowners syndrome. Around 4:00 everyday she gets mean as can be.
Meds do help with this (they just really take it down a notch).
It is a tough call to even out someone in a home and we have not had to yet because she is physically ok.
Make sure there are no car keys around they could get.
Keep them busy with little daily chores. Finding clothes for some reason works for us. If we are eating there we always have her do one thing like maybe the salad. If that becomes to stressful for them or just having food cooked to stressful with all the stuff going on just make it simple and order food to be delivered.
They will do stuff like throw their pills down the sink etc don’t take it to hard.
Posted by La Place Mike
West Florida Republic
Member since Jan 2004
28794 posts
Posted on 3/29/24 at 11:52 am to
Yes and very sorry to hear about your Mom. Be patient and remember all of the times she was there for you. That's all I got.
Posted by Bama and Beer
Baldwin Co, AL
Member since Oct 2010
80876 posts
Posted on 3/29/24 at 11:53 am to
Prayers for the whole family.

My mom was the one to be with my grandma during the day as it progressed with her. It was rough on my mom when she would say mean or hateful things which wasn't her whatsoever. My grandmother would hide the most random things all over the house (pistachio bags, remotes, coasters, anything). They have yet to find multiple very expensive diamond rings, worth quite a lot of money.

So if there's anything valuable or sentimental that she won't know is missing, I would take it.

When she would get wound up, my mom would put her in their older car, and just drive around for hours and once she was "home" again, she was better. My grandfather who had been married to her for over 50 years told us that she would tell him to get out of the house. He was a stranger and he wasn't supposed to be there. I can't imagine the pain that was to hear and go through
This post was edited on 3/29/24 at 12:10 pm
Posted by Comancheria
Guntersville, AL
Member since May 2023
510 posts
Posted on 3/29/24 at 12:01 pm to
quote:

My grandmother would hide the most random things all over the house


When they cleaned out my grandmas house she had over $30K in cash just sitting on the racks in the oven.
Posted by ksayetiger
Centenary Gents
Member since Jul 2007
68272 posts
Posted on 3/29/24 at 12:04 pm to
Tell her to run for president.
Posted by BluegrassBelle
RIP Hefty Lefty - 1981-2019
Member since Nov 2010
98922 posts
Posted on 3/29/24 at 12:05 pm to
So a couple of things:

Has she received an official Alzheimer's diagnosis from a doctor at this point? If she has (and I highly recommend getting her to one if she hasn't) and she's on Medicaid she should qualify for in-home care.

If I remember correctly, you're in Kentucky. Here are some links to possibly help you get local resources to help out with your caregiving. Jennifer Craig is the Dementia Services Coordinator and if you shoot her an email at Jennifer.craig@ky.gov she also may be able to direct you to services/groups in your area.

Kentucky Office of Dementia Services

Greater Kentucky/Southern Indiana Chapter of Alzheimer's Association
Posted by HubbaBubba
F_uck Joe Biden, TX
Member since Oct 2010
45715 posts
Posted on 3/29/24 at 12:08 pm to
My dad had Alzheimer's, and he was not someone to curse or make sexual innuendo jokes, so when he was about 5 years into being diagnosed with Alzheimer's I told him I was smoking a pork butt.

He responded with, "I bet that's a sweet piece of arse!"

Take the good with the bad.
Posted by tigersbh
Baton Rouge
Member since Oct 2005
10230 posts
Posted on 3/29/24 at 12:09 pm to
Join a dementia support group or 2 on Facebook. I thought they were very useful for information when I was taking care of my Dad.

Also, see if there is a council on aging in your town. They can offer services as well, like meals on wheels and other things.

Finally, if you leave her alone very much at all, I would take the knobs off the stove.
Posted by Bama and Beer
Baldwin Co, AL
Member since Oct 2010
80876 posts
Posted on 3/29/24 at 12:13 pm to
quote:

I would take the knobs off the stove
I remember they did this for my grandma
Posted by ronniep1
Baton Rouge
Member since Mar 2016
393 posts
Posted on 3/29/24 at 12:17 pm to
Does your mom receive a social security payment each month? If yes, it can be used to offset the cost of a nursing home. Depending on the facility chosen, additional costs to you or other family members may be minimal.

My mom was becoming forgetful in 2020 & 2021, but after having a heart attack in May '21, full blown dementia took over. She died in August of that year, but it was a LONG 3 months watching the rapid decline of a woman who had previously been so alert and aware.

You have my sympathies and prayers, as I don't know how you've managed it over several years. It has to be torturous.

Good luck, and may God bless you and everyone who loves and cares about your mom.
Posted by kimmieb
Member since Aug 2007
79 posts
Posted on 3/29/24 at 12:22 pm to
Talk to her doctors and try to get home health services including OT. My Mom had a great home health provider that sent a nurse to her home as well as someone to help organize meds and it's all covered by Medicare. OT can help with safety in the home which is important for dementia patients. It's rough, my Mom said and did a lot of crazy things that hurt me but, I know she didn't mean any of it.
Posted by thecoconuttiger
Member since Mar 2024
185 posts
Posted on 3/29/24 at 12:24 pm to
I am so sorry. I am sending up a prayer for you and your mother as I type out this reply.
Posted by cgrand
HAMMOND
Member since Oct 2009
38667 posts
Posted on 3/29/24 at 12:30 pm to
quote:

She’s gone almost two weeks without taking a shower and we have to beg her to do it. Sometimes she refuses to change out of her dirty depends.
dementia runs in my family. I swear to all that is holy if anybody who can do anything about it ever lets me get like that and doesn’t put me out of my misery, I will haunt those people mercilessly from the great beyond
Posted by Tigahs24Seven
Communist USA
Member since Nov 2007
12109 posts
Posted on 3/29/24 at 12:31 pm to
Dementia is a hospice diagnosis.....They will not provide sitters, but will send Nurses to suggest meds, pay for meds, send volunteers to read to her or cut grass, etc. Nurse Aides to bath her, and a social worker to help find care needed, and a minister. It costs nothing and provides a lot of help.
Talk to her physician about admitting her and then call a hospice provider you know or trust, and get her signed up...Also Charlies's place is an Alzheimer's respite care facility where you can drop her off a couple of times a week to give your Dad some time away from her care. Good luck..I know it is impossibly hard.
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