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Started By
Message
re: DR's of the OT: Complete liver and kidney failure...
Posted on 8/15/14 at 11:06 pm to BuckheadBetty
Posted on 8/15/14 at 11:06 pm to BuckheadBetty
He was looking for info, and he knows we care.
Posted on 8/15/14 at 11:07 pm to BuckheadBetty
quote:
just curious as to why you would bother posting on a message board?
It's in the OP.
Posted on 8/15/14 at 11:07 pm to northshorebamaman
quote:
No. They said she had to be clean for six months to get on the list. She's not even conscious at this point.
Had a feeling you were gonna say that. Sorry for your troubles, man.
Posted on 8/15/14 at 11:14 pm to DosManos
Too many variables to say for sure -
Are they calling this hepatic or renal encephalopathy?
Are they planning for dialysis?
Is she intubated?
Any other comorbidities?
Are they calling this hepatic or renal encephalopathy?
Are they planning for dialysis?
Is she intubated?
Any other comorbidities?
Posted on 8/15/14 at 11:21 pm to RadTiger
quote:
Are they calling this hepatic or renal encephalopathy?
Are they planning for dialysis?
Is she intubated?
Any other comorbidities?
To be honest, the only word I recognize is dialysis. I'm getting my info second hand from my wife. No, no dialysis planned. They've already said she is going to die. On top of the liver failure, her mouth and throat are full of cysts, her esophagus lining is stripped (sorry if I'm screwing up the terms), and she's bleeding internally for an unknown reason. She's BAD off. I wish I could give you better answers.
Posted on 8/15/14 at 11:22 pm to northshorebamaman
quote:
From what I was told, an average "liver score" is 1, and she tested at a 26.
If this is her Mayo MELD score, it means she has a 50-75% chance of dying in the next three months. That's as specific as it gets based on that alone. From what you have written, it's tough to be any more specific. If they are keeping her in the hospital to die, they're probably expecting it to be in the next 7 days. If they're sending her to a hospice hospital, they're expecting it to be in probably the next month (or before, though after is always a possibility). And, lastly, if they sent her home on hospice (nurse/doc/social worker/etc come to the house and meet with her), then they are expecting her to die in the next 6 months.
If the word "unstable" is used, they expect her to die soon (if on hospice, probably in days) rather than "stable" which would be later.
Sorry I can't really be more specific than that.
Posted on 8/15/14 at 11:24 pm to Hopeful Doc
quote:
Sorry I can't really be more specific than that.
You've answered my question. They don't plan on removing her from the hospital.
Posted on 8/15/14 at 11:25 pm to northshorebamaman
Thank you for posting this. I can't offer you even an attempt at an answer but I think it's important that people hear and see the effects of alcoholism. Maybe somebody had a gut check reading this.
This post was edited on 8/15/14 at 11:26 pm
Posted on 8/15/14 at 11:26 pm to northshorebamaman
quote:
She's not even conscious at this point.
Maybe I missed this in the first post or glanced over it, but I would say she's more than likely a "within the month" leaning more to a "in the next week" based on this one. Again, hard to say. And guessing is, of course, just guessing.
Very sorry to hear this is going on in your life.
Posted on 8/15/14 at 11:27 pm to BuckheadBetty
quote:What's it matter? She's dead.
just curious as to why you would bother posting on a message board?
ETA: if anything, the specifics of the message serve as a public service announcement
This post was edited on 8/15/14 at 11:29 pm
Posted on 8/15/14 at 11:33 pm to northshorebamaman
Her age makes her a great candidate for transplant, but the alcoholic history could hinder things. The majority of patients with end stage renal disease have it due to diabetes or hypertension. I'm not an expert on liver, but you can definitely accommodate kidney dialysis into your life. I have patients who have been dialyizing since the 90s.
At the end of the day it's up to her. She has to make a change in her life if she want to survive.
Eta: read the rest of the thread after responding to the initial post, so my comments may not hold up to your specific situation.
At the end of the day it's up to her. She has to make a change in her life if she want to survive.
Eta: read the rest of the thread after responding to the initial post, so my comments may not hold up to your specific situation.
This post was edited on 8/15/14 at 11:37 pm
Posted on 8/15/14 at 11:35 pm to northshorebamaman
quote:
You've answered my question. They don't plan on removing her from the hospital.
So just so you know where it's coming from, this is based on that most hospitals I have worked at will allow a patient on hospice care to kind of just hang out in their room if they're expected to go within about a max of 7 days. Of course, people are wrong about these sorts of things all the time, and expecting only does so much. Also, this could be a hospital that does hospice differently or could even have an inpatient hospice unit elsewhere in the hospital that she is being moved to. So please don't take my estimate as fact. It's assumptions based on personal experience is all.
Posted on 8/15/14 at 11:38 pm to PepaSpray
why be a dick like that??
Posted on 8/15/14 at 11:40 pm to foreverLSU
quote:
At the end of the day it's up to her. She has to make a change in her life if she want to survive.
I appreciate the sentiment but she gave up a long time ago.
Posted on 8/15/14 at 11:41 pm to northshorebamaman
quote:
es, she drank almost a gallon of vodka a day for years
She drank two handles per day? I can't even imagine that.
As someone who has had problems with alcohol myself, sorry to hear.
Posted on 8/15/14 at 11:41 pm to Hopeful Doc
quote:
So please don't take my estimate as fact. It's assumptions based on personal experience is all.
I understand. That's all I was looking for.
Posted on 8/15/14 at 11:42 pm to northshorebamaman
She has hepatotenal syndrome. Very high mortality.
Everyone is different, but the people I've seen with it lived between 2 days to 3 months.
Everyone is different, but the people I've seen with it lived between 2 days to 3 months.
Posted on 8/15/14 at 11:42 pm to JudgeHolden
quote:
but I would say she's more than likely a "within the month" leaning more to a "in the next week" based on this one.
More likely within the next few days. If she is bleeding internally it could mean variceal bleed, uremia causing platelet dysfunction, or lack of clotting factors from the cirrhosis. All could lead to intracranial bleed which can lead to herniation or which is more likely to occur cardiac arrest.
Posted on 8/15/14 at 11:43 pm to northshorebamaman
quote:
I appreciate the sentiment but she gave up a long time ago.
Right. And they don't hand out livers to terminal alcoholics that would still be drinking if only conscious.
Sorry man. I'll pray for you and your wife.
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