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Bone marrow transplant w/chemo - anyone ever done this or know anyone who has?

Posted on 11/3/21 at 11:43 am
Posted by Horsemeat
Truckin' somewhere in the US
Member since Dec 2014
13525 posts
Posted on 11/3/21 at 11:43 am
Got the details of my 2nd regimen of chemo last week from my doc, basically mapped out a 2 week hospital stay in a sterile room locked away from the world - no visitors allowed at all. On the first day they remove bone marrow, then for five days they'll nuke my body with chemo drugs to completely destroy my immune system and the tumors, then inject clean bone marrow after it's over. Once the white blood cell counts come back up and to a decent level they'll discharge me from the hospital but I'll still have to stay at home away from the public for several more weeks, probably into 2022. Thanksgiving will likely be spent in the hospital which sucks because I spent my birthday in a chemo chair already.
I've made a few posts on other sites looking for people who can give me some pointers and what to expect physically and didn't get much in the way of recent experience. Friend of a friend did it 15 years ago and said it's pure misery - that's pretty much all I've gotten. He's still alive and said he's in good health, so that's a good sign. However he didn't know anything about advancements in the procedure or whatever.
Not gonna lie - I'm scared shitless. Yes I know they have medicine for that too. My one and only hospital stay was when this cancer bit first started at the beginning of the year and that was for 2 nights so they could draw blood and run tests. This is going to be waaaaay above that in terms of severity.

TIA for any info.
Posted by Ash Williams
South of i-10
Member since May 2009
18145 posts
Posted on 11/3/21 at 11:46 am to
I have no experience or advice to offer, but good luck and godspeed Horsemeat!
Posted by LordSnow
Your Mom's House
Member since May 2011
5507 posts
Posted on 11/3/21 at 11:46 am to
The one person I know who's had a bone marrow transplant took place 20 years ago. But, he's still cancer free now.
Posted by djangochained
Gardere
Member since Jul 2013
19054 posts
Posted on 11/3/21 at 11:46 am to
Good luck man
Posted by Ed Osteen
Member since Oct 2007
57460 posts
Posted on 11/3/21 at 11:47 am to
Man I don’t have any answers but your in my thoughts pretty regularly. Keep fighting
Posted by madamsquirrel
The Snarlington Estate
Member since Jul 2009
48437 posts
Posted on 11/3/21 at 11:49 am to
quote:

Friend of a friend did it 15 years ago and said it's pure misery - that's pretty much all I've gotten. He's still alive and said he's in good health, so that's a good sign.
I have a friend who had basically the same results on the same timeline. He has passed away now but from something completely unrelated to his cancer. They said the bone marrow saved his life and he got another 12 years before something else got him.
Posted by RogerTheShrubber
Juneau, AK
Member since Jan 2009
260191 posts
Posted on 11/3/21 at 11:49 am to
They're trying therapy with me first. If that don't work, we will look at transplant

This shite sucks.
Posted by soccerfüt
Location: A Series of Tubes
Member since May 2013
65573 posts
Posted on 11/3/21 at 11:51 am to
quote:

Man I don’t have any answers but your in my thoughts pretty regularly. Keep fighting
This, and well-said.
Posted by El Segundo Guy
SE OK
Member since Aug 2014
9572 posts
Posted on 11/3/21 at 11:52 am to
My dad has had a stem cell transplant twice for multiple myeloma. Once in his late 60s and again maybe 5-7 years later.

It was tough but he's tough as well. He'll be 79 in a few months.
This post was edited on 11/3/21 at 11:56 am
Posted by LSUJML
BR
Member since May 2008
45335 posts
Posted on 11/3/21 at 11:54 am to
Best of luck to you
My only experience was as the donor, we did stem cells first & as far as I have been told the recipient is doing well
Posted by Tempratt
WRMS Girls Soccer Team Kicks arse
Member since Oct 2013
13315 posts
Posted on 11/3/21 at 11:55 am to
Praying for you
Posted by TrimTab
North County Coastal San Diego
Member since Mar 2019
7777 posts
Posted on 11/3/21 at 12:00 pm to
Sending you all the prayers, love and well wishes for a great outcome. May God bless you.
Posted by Slagathor
Makin' jokes about your teeny tiny
Member since Jul 2007
37811 posts
Posted on 11/3/21 at 12:03 pm to
no helpful experience or advice with this but sending you all the best vibes for healing and recovery


is there a PO Box we can send cards to for you? I know you said you were otherwise set, but I'd love to send you some snail mail if so!
Posted by real turf fan
East Tennessee
Member since Dec 2016
8614 posts
Posted on 11/3/21 at 12:04 pm to
Best wishes. You've got a good chance and a generation ago, you wouldn't have that.

If I were given a couple of months to indulge myself (not have anything I had to do) I'd chose to buy a brand new Kindle, and read all the Bernard Cornwell books. I would probably start with the Sharpe series and then move on to the Viking series.

Lots of options to take up your time, and to give you something to concentrate on when you go to sleep: where are the characters in the book going to be and what will they do tomorrow?

For breaks, watch the Las Palmas video cams and read about volcanoes around the world and decide when you'll go to Iceland to see them up close.
Posted by Deep Purple Haze
LA
Member since Jun 2007
51748 posts
Posted on 11/3/21 at 12:07 pm to
did not work for my sis. hopefully you have better results.
Posted by zatetic
Member since Nov 2015
5677 posts
Posted on 11/3/21 at 12:13 pm to
Chemo is ridiculous. Just staying positive is huge. If you are really bored I quite like reading the Vedas. I especially like Tat Tvam Asi. I can't believe medicine hasn't come up with anything better than the that happenstance from WWI that resulted in them coming up with chemo therapy.

Anyways there's some new theories coming out with cancer being caused by parasites. There was one lad that couldn't shake his cancer no matter what doctors he went to forever then he took his dog antiparasite and cured himself. The germ theory is getting holes knocked into it so you do what you want with this stuff.

Another thing is cancer is heavily fueled by glucose. If you switch to a ketosis diet that should help quite a bit. Fasting is also supposed to help with such things, which coincidentally you go into ketosis when fasting. So at the very least, stay away from sugar, grains, and the very sugary fruits.
Posted by ArHog
Muss is a coward
Member since Jan 2008
32993 posts
Posted on 11/3/21 at 12:15 pm to
Godspeed baw.

Cancer sucks arse.

Posted by Horsemeat
Truckin' somewhere in the US
Member since Dec 2014
13525 posts
Posted on 11/3/21 at 12:56 pm to
quote:

The one person I know who's had a bone marrow transplant took place 20 years ago. But, he's still cancer free now.
I hear lot of this which has my spirits up, I'm just kinda wondering what to expect while its all going on - one dude said lots and lots of morphine, someone else said it wasn't a that big of a deal (not sure if srs). I'm meeting with the transplant doc on Friday and I'm just trying to get my nerves settled.
Posted by IonaTiger
The Commonwealth Of Virginia
Member since Mar 2006
33053 posts
Posted on 11/3/21 at 1:16 pm to
Please ask your doctors what you should expect.

Many years ago I defended a case of a woman who sought an autologous bone marrow transplant with high dose chemotherapy. I do not know whether this procedure is similar to the one you will undergo. While her oncologist was on the stand explaining the procedure and the aftermath/recovery, I looked over at the woman and she appeared to be in shock. She had clearly not heard all of the details of the treatment before.

Find out as much as possible up front from your doctors. My best to you and know you are in my prayers. God Bless and kick arse!
Posted by browl
North of BR
Member since Nov 2017
1571 posts
Posted on 11/3/21 at 1:26 pm to
email me
This post was edited on 11/3/21 at 1:57 pm
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