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Started By
Message
Bone marrow transplant w/chemo - anyone ever done this or know anyone who has?
Posted on 11/3/21 at 11:43 am
Posted on 11/3/21 at 11:43 am
Got the details of my 2nd regimen of chemo last week from my doc, basically mapped out a 2 week hospital stay in a sterile room locked away from the world - no visitors allowed at all. On the first day they remove bone marrow, then for five days they'll nuke my body with chemo drugs to completely destroy my immune system and the tumors, then inject clean bone marrow after it's over. Once the white blood cell counts come back up and to a decent level they'll discharge me from the hospital but I'll still have to stay at home away from the public for several more weeks, probably into 2022. Thanksgiving will likely be spent in the hospital which sucks because I spent my birthday in a chemo chair already.
I've made a few posts on other sites looking for people who can give me some pointers and what to expect physically and didn't get much in the way of recent experience. Friend of a friend did it 15 years ago and said it's pure misery - that's pretty much all I've gotten. He's still alive and said he's in good health, so that's a good sign. However he didn't know anything about advancements in the procedure or whatever.
Not gonna lie - I'm scared shitless. Yes I know they have medicine for that too. My one and only hospital stay was when this cancer bit first started at the beginning of the year and that was for 2 nights so they could draw blood and run tests. This is going to be waaaaay above that in terms of severity.
TIA for any info.
I've made a few posts on other sites looking for people who can give me some pointers and what to expect physically and didn't get much in the way of recent experience. Friend of a friend did it 15 years ago and said it's pure misery - that's pretty much all I've gotten. He's still alive and said he's in good health, so that's a good sign. However he didn't know anything about advancements in the procedure or whatever.
Not gonna lie - I'm scared shitless. Yes I know they have medicine for that too. My one and only hospital stay was when this cancer bit first started at the beginning of the year and that was for 2 nights so they could draw blood and run tests. This is going to be waaaaay above that in terms of severity.
TIA for any info.
Posted on 11/3/21 at 11:46 am to Horsemeat
I have no experience or advice to offer, but good luck and godspeed Horsemeat!
Posted on 11/3/21 at 11:46 am to Horsemeat
The one person I know who's had a bone marrow transplant took place 20 years ago. But, he's still cancer free now.
Posted on 11/3/21 at 11:47 am to Horsemeat
Man I don’t have any answers but your in my thoughts pretty regularly. Keep fighting
Posted on 11/3/21 at 11:49 am to Horsemeat
quote:I have a friend who had basically the same results on the same timeline. He has passed away now but from something completely unrelated to his cancer. They said the bone marrow saved his life and he got another 12 years before something else got him.
Friend of a friend did it 15 years ago and said it's pure misery - that's pretty much all I've gotten. He's still alive and said he's in good health, so that's a good sign.
Posted on 11/3/21 at 11:49 am to Horsemeat
They're trying therapy with me first. If that don't work, we will look at transplant
This shite sucks.
This shite sucks.
Posted on 11/3/21 at 11:51 am to Ed Osteen
quote:This, and well-said.
Man I don’t have any answers but your in my thoughts pretty regularly. Keep fighting
Posted on 11/3/21 at 11:52 am to Horsemeat
My dad has had a stem cell transplant twice for multiple myeloma. Once in his late 60s and again maybe 5-7 years later.
It was tough but he's tough as well. He'll be 79 in a few months.
It was tough but he's tough as well. He'll be 79 in a few months.
This post was edited on 11/3/21 at 11:56 am
Posted on 11/3/21 at 11:54 am to Horsemeat
Best of luck to you
My only experience was as the donor, we did stem cells first & as far as I have been told the recipient is doing well
My only experience was as the donor, we did stem cells first & as far as I have been told the recipient is doing well
Posted on 11/3/21 at 12:00 pm to Horsemeat
Sending you all the prayers, love and well wishes for a great outcome. May God bless you.
Posted on 11/3/21 at 12:03 pm to Horsemeat
no helpful experience or advice with this but sending you all the best vibes for healing and recovery
is there a PO Box we can send cards to for you? I know you said you were otherwise set, but I'd love to send you some snail mail if so!
is there a PO Box we can send cards to for you? I know you said you were otherwise set, but I'd love to send you some snail mail if so!
Posted on 11/3/21 at 12:04 pm to Tempratt
Best wishes. You've got a good chance and a generation ago, you wouldn't have that.
If I were given a couple of months to indulge myself (not have anything I had to do) I'd chose to buy a brand new Kindle, and read all the Bernard Cornwell books. I would probably start with the Sharpe series and then move on to the Viking series.
Lots of options to take up your time, and to give you something to concentrate on when you go to sleep: where are the characters in the book going to be and what will they do tomorrow?
For breaks, watch the Las Palmas video cams and read about volcanoes around the world and decide when you'll go to Iceland to see them up close.
If I were given a couple of months to indulge myself (not have anything I had to do) I'd chose to buy a brand new Kindle, and read all the Bernard Cornwell books. I would probably start with the Sharpe series and then move on to the Viking series.
Lots of options to take up your time, and to give you something to concentrate on when you go to sleep: where are the characters in the book going to be and what will they do tomorrow?
For breaks, watch the Las Palmas video cams and read about volcanoes around the world and decide when you'll go to Iceland to see them up close.
Posted on 11/3/21 at 12:07 pm to Horsemeat
did not work for my sis. hopefully you have better results.
Posted on 11/3/21 at 12:13 pm to Horsemeat
Chemo is ridiculous. Just staying positive is huge. If you are really bored I quite like reading the Vedas. I especially like Tat Tvam Asi. I can't believe medicine hasn't come up with anything better than the that happenstance from WWI that resulted in them coming up with chemo therapy.
Anyways there's some new theories coming out with cancer being caused by parasites. There was one lad that couldn't shake his cancer no matter what doctors he went to forever then he took his dog antiparasite and cured himself. The germ theory is getting holes knocked into it so you do what you want with this stuff.
Another thing is cancer is heavily fueled by glucose. If you switch to a ketosis diet that should help quite a bit. Fasting is also supposed to help with such things, which coincidentally you go into ketosis when fasting. So at the very least, stay away from sugar, grains, and the very sugary fruits.
Anyways there's some new theories coming out with cancer being caused by parasites. There was one lad that couldn't shake his cancer no matter what doctors he went to forever then he took his dog antiparasite and cured himself. The germ theory is getting holes knocked into it so you do what you want with this stuff.
Another thing is cancer is heavily fueled by glucose. If you switch to a ketosis diet that should help quite a bit. Fasting is also supposed to help with such things, which coincidentally you go into ketosis when fasting. So at the very least, stay away from sugar, grains, and the very sugary fruits.
Posted on 11/3/21 at 12:15 pm to Horsemeat
Godspeed baw.
Cancer sucks arse.
Cancer sucks arse.
Posted on 11/3/21 at 12:56 pm to LordSnow
quote:I hear lot of this which has my spirits up, I'm just kinda wondering what to expect while its all going on - one dude said lots and lots of morphine, someone else said it wasn't a that big of a deal (not sure if srs). I'm meeting with the transplant doc on Friday and I'm just trying to get my nerves settled.
The one person I know who's had a bone marrow transplant took place 20 years ago. But, he's still cancer free now.
Posted on 11/3/21 at 1:16 pm to Horsemeat
Please ask your doctors what you should expect.
Many years ago I defended a case of a woman who sought an autologous bone marrow transplant with high dose chemotherapy. I do not know whether this procedure is similar to the one you will undergo. While her oncologist was on the stand explaining the procedure and the aftermath/recovery, I looked over at the woman and she appeared to be in shock. She had clearly not heard all of the details of the treatment before.
Find out as much as possible up front from your doctors. My best to you and know you are in my prayers. God Bless and kick arse!
Many years ago I defended a case of a woman who sought an autologous bone marrow transplant with high dose chemotherapy. I do not know whether this procedure is similar to the one you will undergo. While her oncologist was on the stand explaining the procedure and the aftermath/recovery, I looked over at the woman and she appeared to be in shock. She had clearly not heard all of the details of the treatment before.
Find out as much as possible up front from your doctors. My best to you and know you are in my prayers. God Bless and kick arse!
Posted on 11/3/21 at 1:26 pm to Horsemeat
email me
This post was edited on 11/3/21 at 1:57 pm
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