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Anybody Have Keratoconus?

Posted on 11/4/15 at 6:33 pm
Posted by GAFF
Georgia
Member since Aug 2010
2448 posts
Posted on 11/4/15 at 6:33 pm
Just wondering how hard it is to get a contact that will actually help after having your eye mapped?
Posted by Bucktail1
Member since Feb 2015
3186 posts
Posted on 11/4/15 at 6:44 pm to
No, I've always used protection
Posted by Barf
EBR
Member since Feb 2015
3727 posts
Posted on 11/4/15 at 6:49 pm to
That would be eye AIDS for anyone who clicked wondering what keratoconus was.
Posted by GAFF
Georgia
Member since Aug 2010
2448 posts
Posted on 11/4/15 at 6:54 pm to
If you don't know what it is then you can't help me.
Posted by blind and confused
Member since May 2013
4 posts
Posted on 11/4/15 at 7:48 pm to
Yes I have it.

You can, but depending on how pronounced it is, youll probably need a hard lens.

If you're anywhere close Lafayette, Acadian vision associates on south college is the place to go.

If they can see me keep me seeing 20-25, they can help anybody.

Posted by soccerfüt
Location: A Series of Tubes
Member since May 2013
65533 posts
Posted on 11/4/15 at 7:55 pm to
The importation of live Keratoconuses into the United States is prohibited by U.S. Code Title 41, Chapter 131; Section 5, C.F.R., part 410.
This post was edited on 11/4/15 at 7:56 pm
Posted by Martini
Near Athens
Member since Mar 2005
48829 posts
Posted on 11/4/15 at 8:02 pm to
quote:

blind and confused

If they can see me keep me seeing 20-25, they can help anybody.


You've been waiting almost 3 years for this thread havent you?
Posted by fr33manator
Baton Rouge
Member since Oct 2010
123930 posts
Posted on 11/4/15 at 8:04 pm to
Wow...you can't call them that dude.


They can call each other that, but not you.
Posted by blind and confused
Member since May 2013
4 posts
Posted on 11/4/15 at 8:12 pm to
Wow, I've never had my own personal stalker.

Back to your Cheetos.
Posted by Purple Spoon
Hoth
Member since Feb 2005
17771 posts
Posted on 11/4/15 at 8:21 pm to
Didn't they go extinct in the Jurrasic Period?
Posted by Fred439
Houston
Member since Aug 2011
161 posts
Posted on 11/4/15 at 8:37 pm to
I have had Keratoconus for 40+ years and would be happy to share everything I know about it which is a lot after that many years. I can also recommend the absolute best Cornea guy in Houston. Send me an e mail at f_cook@sbcglobal.net and we can get in contact. Sorry I now see that you might not be in Houston area. I will still help if I can. Fred Cook
This post was edited on 11/4/15 at 8:39 pm
Posted by lsuoldft
Perdido Key, FL
Member since Jul 2014
247 posts
Posted on 11/4/15 at 8:37 pm to
Yes I have it. Wear rigid gas permeable lenses and I see 20 20 in one eye and 20 25 in the other. It can be managed with the right fit by the right doc. Also I need good sunglasses to keep the light from hurting my eyes. I am 64 by the way and have worn hard lenses since I was 16
Posted by GAFF
Georgia
Member since Aug 2010
2448 posts
Posted on 11/4/15 at 8:38 pm to
I'm in North Georgia and going to see a specialist tomorrow. Just wondering how many visits I'll have to have before it gets squared away
Posted by GAFF
Georgia
Member since Aug 2010
2448 posts
Posted on 11/4/15 at 9:06 pm to
How hard is the fit? I was offered a great job but they require a DOT physical at 20/40 vision (I won't even be driving trucks). I have an appointment in the AM and the physical is in a week and a half. From what I've heard it's nearly impossible to get fitted correctly that soon.
Posted by LSUTANGERINE
Baton Rouge LA
Member since Sep 2006
36113 posts
Posted on 11/4/15 at 9:07 pm to
I only have astigmatism. Sorry baw.
Posted by Da Hammer
Folsom
Member since May 2008
5754 posts
Posted on 11/4/15 at 9:17 pm to
I doubt you will have working lenses in one week.

However most patients will see pretty well as long as the corneas aren't too steep creating a large amount of irregular astigmatism. Even in these cases a well fit hard lens can give patients 20/20 vision. Getting used to rigid lenses is a process but it's not that bad, hang in there keratinous can be treated and controlled.
Posted by Spankum
Miss-sippi
Member since Jan 2007
55979 posts
Posted on 11/4/15 at 9:20 pm to
I have actually never heard of this...really sucks that it strikes just as you are getting a good job offer, too.

Hang in there, man...it will all work itself out...
Posted by CroakaBait
Gulf Coast of the Land Mass
Member since Nov 2013
3972 posts
Posted on 11/4/15 at 9:45 pm to
Funny story, no offense intended--I googled "keratoconus", cause I'm a nerd, and it looked like eye nipples to me (honest observation ). I then googled "keratoconus, eye nipples" and found out about the "Rose K Nipple Cone" contact lenses. They're a real thing designed for keratoconus.
I'd ask your doc about these contacts, they sound like they're money for your condition.

This post was edited on 11/4/15 at 10:11 pm
Posted by atchafalaya
Bayou Chene, Louisiana
Member since Dec 2006
1530 posts
Posted on 11/4/15 at 9:52 pm to
I ain't ashamed to say I had this. Treat that shite with Seven Dust Baw.
Posted by MrSmith
Member since Sep 2009
8311 posts
Posted on 11/4/15 at 10:19 pm to
I do! Severe in both eyes. I'm having corneal crosslinking surgery in February.
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