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re: Calling OT docs- prostate cancer

Posted on 2/22/24 at 3:35 am to
Posted by Hondo Blacksheep
Member since Jul 2022
1492 posts
Posted on 2/22/24 at 3:35 am to
Comes with major risks - impotence and incontinence - so read up on and think about your particular situation.
Posted by jscrims
Lost
Member since May 2008
3556 posts
Posted on 2/22/24 at 4:31 am to
My dad died from this about a year and a half ago at age 70. Everyone saying it isn’t a big deal and blah blah, it is big deal. Get second opinions and try to do everything you can. My dad did everything the doctors told him before and after as far as preventative and getting it everything checked out. It snuck up on him in between his exams and was too late by the time it was discovered. It is by far the worst thing that has ever happened to me and I’m sorry for your family having to go through this.
Posted by LSU alum wannabe
Katy, TX
Member since Jan 2004
27024 posts
Posted on 2/22/24 at 6:35 am to
My hospital does a lot of Brachytherapy?

Google that for details. You get a device (a multi cath port) inserted in your taint. Then 3-6 treatments with meds and chemo treatments directly to the prostate.

50 radiation treatments sounds awful. So does taint surgery. But it is less treatments.


At a certain age, taking that fricker out just makes sense. Your prostate is like a man’s “lady parts” if you live long enough it will betray you.
Posted by TDFreak
Dodge Charger Aficionado
Member since Dec 2009
7414 posts
Posted on 2/22/24 at 6:41 am to
quote:

He’s late 70s but also has Parkinson’s Stage 4 and has AFib. He’s had to have his heart shocked back into rhythm several times.
Dang. Sorry to hear that. Not to be morbid but it sounds like he’s playing a game of terminal illness whack-a-mole.

Hope and pray for peace and plenty of quality time with him until he goes.
Posted by Kipsgto
Member since Sep 2022
40 posts
Posted on 2/22/24 at 8:24 am to
Was diagnosed with prostate cancer 3 months ago. 62 years old, I’ve had no problems but PSA kept rising. I am now in active monitoring, really unsure of my next move when it starts rising. Quality of life is very important to me, so the impotence is a game changer. Lift up a prayer for me for discernment. Kip
Posted by metallica81788
NO
Member since Sep 2008
8614 posts
Posted on 2/22/24 at 8:59 am to
quote:

Assuming you’re in Louisiana, MD Anderson in Houston has proton beam therapy. Way less side effects compared to radiation and no healthy tissue is damaged. Only downside is that it’s super expensive and most insurances won’t cover it.


This is completely false
Protons can be useful for treatment of some cancers, namely pediatric cancers and skull base tumors - but not prostate or breast cancers

There has never been any literature showing protons improve outcomes in prostate cancer and often they cause worse side effects - think potential colostomy bag - because all the high dose is being given right near the edge of the rectum

Don't fall for the marketing scam. Proton machines are incredibly expensive to build and maintain. There aren't enough cases of pediatric or skull base tumors to support the investment. But there is a ton of prostate and breast cancer - so what do you think will pay the electric bills?

Insurances shouldn't cover protons because it's unnecessary
Posted by Gorilla Ball
Member since Feb 2006
11790 posts
Posted on 2/22/24 at 11:17 am to
Can I ask how old are you? My Gleason score was similar, we monitored it for about 3 years before md Anderson, Mayo Clinic, and 2 other urologist recommended removal. I was 58 at the time
Posted by Auburn1968
NYC
Member since Mar 2019
19725 posts
Posted on 2/22/24 at 12:19 pm to
An old friend's father had prostate cancer, but he went with the Cyber Knife option. He had 5 sessions in one week and virtually no side effects. Basically it is a precise beam of radiation that pivots around the body so only the center axis of the 3D mapped tumor gets cell killing radiation.


https://cyberknife.com/cyberknife-how-it-works/
Posted by fareplay
Member since Nov 2012
4943 posts
Posted on 2/22/24 at 12:21 pm to
If this is the case, I’d focus on more palliative care and make his next year or so more pleasant. A sick late 70s doing any therapy like this will make him live slightly longer at much worse health
Posted by Tigerinasia
Natchitoches
Member since Jan 2008
1706 posts
Posted on 2/22/24 at 12:24 pm to
He really needs to have a Space Oar before radiation. It protects the butthole from damage. Do you know if he got that?
Posted by HarryBalzack
Member since Oct 2012
15228 posts
Posted on 2/22/24 at 12:35 pm to
quote:

He’s had to have his heart shocked back into rhythm several times.
That's why the surgical options are off the table. Anesthesia would probably come with a very high probability for AFIB, stroke, and kidney failure.
Posted by Tempratt
WRMS Girls Soccer Team Kicks arse
Member since Oct 2013
13442 posts
Posted on 2/22/24 at 1:01 pm to
I've wondered about this. How painful are prostate biopsies?

I had an elderly neighbor that nearly went into shock getting one.
Posted by LSUA 75
Colfax,La.
Member since Jan 2019
3708 posts
Posted on 2/22/24 at 1:36 pm to
Prostate biopsies are brutal according to surgical nurses I know.That’s why I have never had a PSA test or “finger test”.
I’m 73,never wanted to get on that prostate merry go round.

Old guy at church got with this frikken urologist that did prostate biopsy on him every year fo 6-7 years.I wanted to tell him to quit that crap,I feared he was going to get septic sooner or later.He wasn’t a relative so I couldn’t say anything.
Sure enough,last one he had got septic but survived.Dr. decided he didn’t need anymore biopsies,guess he figured he had pushed his luck a little too far.
Posted by Keltic Tiger
Baton Rouge
Member since Dec 2006
19371 posts
Posted on 2/22/24 at 2:02 pm to
I had the typical prostate biopsies & had zero issues other than just a bit of uncomfortableness initially. Far from "brutal". I had 32 sessions of radiation, twice a week my call, & other than trying not to piss on myself while waiting to be scanned each session, had no side effects at all. This was 4+ yrs ago, so mabe the radiation treatment has changed? Both my urologist & cancer doc told me the same thing, at my age, 70, I'll more than likely die with it, not because of it.
Posted by ArHog
Muss is a coward
Member since Jan 2008
33207 posts
Posted on 2/22/24 at 2:13 pm to
My BIL had radiation treatments. The cancer went into remission and a year later came back and spread to his bladder. Now he pisses in a bag.

I had cancer 3 months after him and opted for prostate removal.

4 years later, cancer free.

Get that SOB out if you get cancer 65 and younger.


This post was edited on 2/22/24 at 2:21 pm
Posted by Tempratt
WRMS Girls Soccer Team Kicks arse
Member since Oct 2013
13442 posts
Posted on 2/22/24 at 2:17 pm to
quote:

,I feared he was going to get septic sooner


Correct me if I'm wrong but aren't they penetrating your colon into your prostate? How the hell can that be a good idea?
Posted by The Mick
Member since Oct 2010
43230 posts
Posted on 2/22/24 at 2:21 pm to
50 consecutive days of radiation likely means it's fairly advanced. IMO
Posted by The Mick
Member since Oct 2010
43230 posts
Posted on 2/22/24 at 2:22 pm to
quote:

I had cancer 3 months after him and opted for prostate removal.
Does it stop you from having to pee in middle of the night and after every single beer? If so, I'll have mine pulled next week.
Posted by jeffsdad
Member since Mar 2007
21497 posts
Posted on 2/22/24 at 2:54 pm to
Biopsies arn't that bad. Feels like a light knee to the groin twelve times.
Posted by AwgustaDawg
CSRA
Member since Jan 2023
7280 posts
Posted on 2/22/24 at 3:00 pm to
I was diagnosed in 2006. Stage 1 3+3. I have been on an active surveillance protocol at MD Anderson since. I have no symptoms and the disease is, from all indications, not spreading and not progressing. 18 years is a LONG time to be on active surveillance but mainly because people over react to the word cancer. Every case is different but in my case any treatment options are far more damaging than 90% of prostate cancer is. I even managed to knock up my wife 4 years after diagnosis. And had a vasectomy shortly after that. Prostate cancer is one of the leading causes of death in men but it is far and away the most treatable cancer and survival rates are excellent for all forms of treatment. Late stage and aggressive prostate cancer is, thankfully rare, but it is a killer like most cancers. Get that fricker checked...it ain't pleasant but it beats the alternative.

As far as his treatment goes if they are doing radiation only it is most likely early stage and not progressing. Unless he has some sort of other issues that prevent more aggressive treatment this is generally true. Prostatectomy is the gold standard but the immediate side effects are more likely to occur and be severe...but they subside with time. Those side effects also happen with radiation but usually it takes some time, often years, before they present themselves. Depending on his age and health those side effects are probably going to come visiting eventually anyway. Most likely, if radiation is the plan of action, his prognosis is excellent.

Finally, seriously, get that fricker checked. It is not fun having some sausage fingered fricker plunge his finger up your arse and having some blood drawn but it could save your life. And for those who do find they have prostate cancer do not lose your mind...it is very treatable in most cases and you can live normally for a long time...I have. I will probably have surgery this year because the side effects are not that unthinkable at 59 as they were at 41 and it is, by all accounts, only a matter of time before ANY cancer progresses.
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