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re: Remember that girl in Mass. that was taken from her parents by the state?

Posted on 3/26/14 at 8:01 pm to
Posted by NC_Tigah
Carolinas
Member since Sep 2003
123887 posts
Posted on 3/26/14 at 8:01 pm to
quote:

BCH had its best medical minds in on the their subsequent decisions.
Again, taking accounts at face value, BCH's "best medical minds" is not the completely reassuring pretext it should be.
quote:

Hilliard said the genetics department that had analyzed her daughter’s muscle sample “didn’t believe the results,” which favored a diagnosis of mitochondrial disease. Instead of telling the Hilliards of this initial finding, the mother said doctors withheld the information for three months while they got another specialist elsewhere to test the sample as well. That specialist eventually agreed with the mito diagnosis.
If true, that is, at the least, bizarre medical behavior.
Posted by NHTIGER
Central New Hampshire
Member since Nov 2003
16188 posts
Posted on 3/26/14 at 8:07 pm to
quote:

He's the doctor that made the diagnosis. BCH stood by him since he called children services and blew this thing up.



He was the first doctor to look at her. Three days later, a TEAM of doctors made the decision not to release her. I cannot believe that you really think one young doctor would be allowed to make a decision of that magnitude by himself in the best Children's hospital in the country. They have protocols for such things.
Posted by onmymedicalgrind
Nunya
Member since Dec 2012
10590 posts
Posted on 3/26/14 at 8:07 pm to
quote:

If true, that is, at the least, bizarre medical behavior.

Yea, I'm having a hard time believing that account fully. Why wouldn't a doctor "believe" the results of a gold standard muscle biopsy with an extremely low false positive rate? If thats the case, why even order it in the first place? I just have a feeling we are only getting one side to this story.
Posted by Paluka
One State Over
Member since Dec 2010
10763 posts
Posted on 3/26/14 at 8:27 pm to
A doctor makes that decision due to legal obligation and does not need a team to make it.

Even with a team of docs 3 days later they still have no business making that diagnosis. It takes a long time to tease out most medical possibilities prior to making this diagnosis.

If they thought the parents were abusive then fine by me. Basing it on this rare and unique diagnosis is foolishness. It has to be something else going on. Her Tufts doctor is now part of her treatment.
Posted by onmymedicalgrind
Nunya
Member since Dec 2012
10590 posts
Posted on 3/26/14 at 8:35 pm to
quote:

A doctor makes that decision due to legal obligation and does not need a team to make it.

Yeah, you're wrong here. A decision of this magnitude is not going to be just made by one doctor. Especially in an academic hospital, there without question were multiple doctors that had a hand in this and evaluated the pt (whether they came up with the right decision is still unknown at this point).
Posted by Paluka
One State Over
Member since Dec 2010
10763 posts
Posted on 3/26/14 at 8:38 pm to
A doctor does NOT need a team to report suspected abuse. Either you missed my point or you're being dishonest.
Posted by onmymedicalgrind
Nunya
Member since Dec 2012
10590 posts
Posted on 3/26/14 at 8:40 pm to
I didn't say he did need a team for that. I'm just saying things would not have progressed this far without the support of many different doctors at BCH, despite you insinuating this is the act of a single doctor in his first yr of practicing.
Posted by Paluka
One State Over
Member since Dec 2010
10763 posts
Posted on 3/26/14 at 9:01 pm to
I'm not insinuating anything. I'm stating it clearly. He started the ball rolling. I'm not busting on the medical profession. I believe this spun out of control due to poor decisions by all involved. By all accounts she has gotten worse. Here is the Judge's order if you'd like to read it.

LINK
Posted by RogerTheShrubber
Juneau, AK
Member since Jan 2009
260293 posts
Posted on 3/26/14 at 9:27 pm to
There's a case in AK involving a 27 year old hunting guide.

LINK

quote:

Under Alaska state law, an adult can be assigned guardianship if he or she is deemed “incapacitated,” meaning unable to make decisions regarding personal health or safety. There are many situations in which this can occur, said Steve Young, acting supervisor of the Public Guardian Section of the Office of Public Advocacy: traumatic brain injury, age-related dementia, stroke, and brain damage due to substance abuse are among them.


When that happens, the “courts will take the next step in making a protective order,” Young said. A court visitor is assigned whose job is to investigate the alleged incapacity and report back to the court. In the Bohn case, testimony from several doctors, witnesses and medical records led the court to decide that Bohn was incapacitated. He was assigned a temporary guardianship, and later, a permanent guardianship after the court ruled that his family was interfering with treatment.

Once a person is deemed incapacitated, a guardian is assigned. According to Alaska statute, assigning of the Office of Public Advocacy as guardian is last on the priority list -- seventh in line after the incapacitated person’s choice of representative, the family, spouse, adult child, relative or a private professional guardian. Young called OPA the “appointment of last resort.”
Posted by Scruffy
Kansas City
Member since Jul 2011
72061 posts
Posted on 3/26/14 at 9:58 pm to
quote:

A doctor does NOT need a team to report suspected abuse. Either you missed my point or you're being dishonest.
No, they don't, but no one who is out of medical school for 1 year is going to make that call.

No one. And if it is like my school, they pretty much require an attending's approval before doing anything of that nature.
Posted by Paluka
One State Over
Member since Dec 2010
10763 posts
Posted on 3/26/14 at 10:27 pm to
Before I worked with forensic patients I worked for over a decade with children and adolescents (the majority of whom had been abused). I'm not a novice guys in this arena. I understand fully the law and duty to inform/report. This case stinks from top to bottom.
Posted by SpidermanTUba
my house
Member since May 2004
36128 posts
Posted on 3/26/14 at 10:42 pm to
quote:


All I know is there'd be some dead motherfrickers if that was my child.



You would try to get your child treated for a disease she didn't have?
Posted by onmymedicalgrind
Nunya
Member since Dec 2012
10590 posts
Posted on 3/27/14 at 5:56 am to
Don't be ridiculous Tuba. You (nor anybody in this thread) don't know enough info to make such a statement.
Posted by Bestbank Tiger
Premium Member
Member since Jan 2005
71034 posts
Posted on 3/27/14 at 6:53 am to
quote:

You would try to get your child treated for a disease she didn't have?


Wow, you're an MD as well as a PhD? Because you apparently know more than a licensed physician from Tufts Medical Center, in spite of the fact that the Tufts doctor has examined the patient and you haven't. I'm very impressed.
Posted by Gmorgan4982
Member since May 2005
101750 posts
Posted on 3/27/14 at 7:28 am to
Posted by SSpaniel
Germantown
Member since Feb 2013
29658 posts
Posted on 3/27/14 at 8:38 am to
quote:

You would try to get your child treated for a disease she didn't have?


Certainly not. But I would get her treated for a disease that she had, in fact, been diagnosed with.
Posted by SSpaniel
Germantown
Member since Feb 2013
29658 posts
Posted on 3/27/14 at 8:39 am to
quote:

Wow, you're an MD as well as a PhD? Because you apparently know more than a licensed physician from Tufts Medical Center, in spite of the fact that the Tufts doctor has examined the patient and you haven't. I'm very impressed



Maybe he's psychic!!!
Posted by CITWTT
baton rouge
Member since Sep 2005
31765 posts
Posted on 3/27/14 at 9:09 am to
This girl will be dead before she is able to walk out the door upon the age of majority in Mass., and no one will be held responsible at all. The doctors and all of the elites and the judges of the state will have immunity to fall back on for any action brought forth.
Posted by Mahootney
Lovin' My German Footprint
Member since Sep 2008
11875 posts
Posted on 3/27/14 at 9:16 am to
The entire concept that the state can handle medical care (or anything for that matter) better than the child's parents is ridiculous.

They can't even setup a health care website, much less better provide for a child's wellness.


It breaks my heart to see stories like this.
The government is going too far.
Posted by onmymedicalgrind
Nunya
Member since Dec 2012
10590 posts
Posted on 3/27/14 at 9:24 am to
quote:

It breaks my heart to see stories like this. The government is going too far.

I don't think this story is about govt going too far, its more about dr's thinking the parents are harming their child and then going through mandated legal routes to address that issue. Now why they think what they think is something none of us know.
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