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re: Who comes up with these lame challenges?

Posted on 8/21/14 at 8:29 am to
Posted by emoney
Westerville, OH
Member since May 2010
8642 posts
Posted on 8/21/14 at 8:29 am to
quote:

drunkenpunkin


Precisely. Which is why I am always hesitate to donate or participate in something I know little about. It's important to do due diligence on where your money is being spent.
Posted by Boudreaux35
BR
Member since Sep 2007
21578 posts
Posted on 8/21/14 at 8:47 am to
So, participate, dump the ice on your head and donate to the locate chapter. You won't be ridiculed if you participate. Nobody's going to complain if you donate to the local chapter vs the national one. The idea is to make a donation, and have a little fun in the process.
Posted by lsunurse
Member since Dec 2005
129044 posts
Posted on 8/21/14 at 9:03 am to



LINK

This one ice bucket challenge has been popping up on my fb. One of the ones everyone should actually watch if they really care about what the challenge is trying to accomplish.

Posted by Motorboat
At the camp
Member since Oct 2007
22707 posts
Posted on 8/21/14 at 9:07 am to
At my office, there were 25 emails about the ice bucket challenge before someone mentioned the actual cause. That tells me it is a band wagon thing.

But still a great way to raise money. I wish I'd thought of it.
Posted by GaryMyMan
Shreveport
Member since May 2007
13498 posts
Posted on 8/21/14 at 9:15 am to
quote:

drunkenpunkin

How does one donate locally? Is the Steve Gleason foundation a better recipient?

Posted by LNCHBOX
70448
Member since Jun 2009
84305 posts
Posted on 8/21/14 at 9:16 am to
quote:

At my office, there were 25 emails about the ice bucket challenge before someone mentioned the actual cause. That tells me it is a band wagon thing.


Maybe the people at your office just assumed that everyone knew it was for ALS?
Posted by GaryMyMan
Shreveport
Member since May 2007
13498 posts
Posted on 8/21/14 at 9:19 am to
quote:

This is a fad

Donation levels in 6 months will prove as much


.... so what? How much money does Susan G Komen spend to stay in the forefront of cancer donations? The answer is a shite load. And how much has ALS.org spent to get this fundraising? Zero. Of course it's a "fad" because it's a rare, albeit horrible, disease. Much easier to raise money for breast cancer or prostate cancer or AIDS research - things that stay in the news.
Posted by Rouge
Floston Paradise
Member since Oct 2004
136847 posts
Posted on 8/21/14 at 9:25 am to
quote:

This one ice bucket challenge has been popping up on my fb. One of the ones everyone should actually watch if they really care about what the challenge is trying to accomplish.


thank you so much for sharing

THAT is what this is all about

i cannot fathom his fear. "He" is who I want to help.
Posted by drunkenpunkin
Louisiana
Member since Dec 2011
7659 posts
Posted on 8/21/14 at 11:01 am to
quote:


How does one donate locally? Is the Steve Gleason foundation a better recipient?


Yes. As well as the local United Way, Families Helping Families (for children if that is a population you are interested in donating to), the local MDA. You can also call the United Way and request a list of local charities that might serve the ALS population (as there are different ones in different places) and they will direct you as they're sort of a conglomerate of charitable organizations. There are many ways to give directly. ACCESS Louisiana is another good one for kids. Many other options that benefit families directly.
Posted by YouAre8Up
in a house
Member since Mar 2011
12792 posts
Posted on 8/21/14 at 11:03 am to
12 year olds
Posted by Celtic Tiger
Lake Charles
Member since Feb 2005
615 posts
Posted on 8/21/14 at 11:29 am to
The Louisiana-Mississippi Chapter of the ALS association was extremely helpful to my aunt and uncle when he contracted the disease, and it gets funded by this (directly and through the national association), and this has obviously been a great year for them because of this trend. They provided equipment, support, access to other families suffering through it, so you can't just say money never gets there. Here's the local chapter's link for anyone interested or worried about a direct local effect. Gleason's is awesome, too. The ALS wing he built on a New Orleans hospital is just amazing

LINK

here's team Gleason's
Gleason

As far as it being a fad, I said this in another thread, but yes it is just a fad. It will eventually pass, sadly, and people complaining to an Internet forum about it can find something else to be bothered by. But when it does pass, people with the disease and their families will be grateful this likely one off, momentary fad will have raised 30 million more dollars to fight that horrendous disease (even if every single video maker didn't make a cash donation). That's like 25 years or so of normal fundraising at zero cost to the ALSA, so anyone claiming this goofy fad has no effect is being obtuse. So the great struggle that the complainers had to endure to make it to the bottom of their Facebook feeds will not be for nothing.

eta Gleason's link, also.
This post was edited on 8/21/14 at 11:34 am
Posted by Boudreaux35
BR
Member since Sep 2007
21578 posts
Posted on 8/21/14 at 11:30 am to
quote:

How does one donate locally?


Here's one way:

LINK

There is information on local chapters and support groups on the alsa.org website.
Posted by drunkenpunkin
Louisiana
Member since Dec 2011
7659 posts
Posted on 8/21/14 at 11:30 am to
Congrats. It doesn't usually work that way.
Posted by Celtic Tiger
Lake Charles
Member since Feb 2005
615 posts
Posted on 8/21/14 at 11:37 am to
I promise this isn't being catty, but a serious question, taking at face value the post earlier about you having a child with a neurological disorder. And if your experience differs from my family's, that really does suck. But what foundation or whatever were you dealing with?
Posted by Colonel Forbin
Member since Jul 2014
296 posts
Posted on 8/21/14 at 11:45 am to
The ice bucket challenge is such a slap in the face to charity. You are openly advertising that you are choosing to dumb a bucket of ice water if your head than donate a single dollar to ALS. Sure, awareness is being somewhat raised. But 90% of the kids doing the challenge are not reading into ALS or donating money to ALS. They are just doing it to post of their social media site.

Even if it is only a $10 donation, it goes a lot longer way than dumping a bucket of ice on your head.

Posted by Boudreaux35
BR
Member since Sep 2007
21578 posts
Posted on 8/21/14 at 11:47 am to
Pretty sure the original challenge asked you to donate a smaller amount if you performed icewater dump or make the $100 donation if you didn't.
Posted by LNCHBOX
70448
Member since Jun 2009
84305 posts
Posted on 8/21/14 at 11:49 am to
quote:

You are openly advertising that you are choosing to dumb a bucket of ice water if your head than donate a single dollar to ALS


Wrong. But thanks for playing.

quote:

But 90% of the kids doing the challenge are not reading into ALS or donating money to ALS.


Link to anything other than your uninformed opinion?

quote:

Even if it is only a $10 donation, it goes a lot longer way than dumping a bucket of ice on your head.


Which happens to be the usual amount of donation if you choose the ice bucket. Otherwise you donate $100. Try informing yourself just the smallest bit before going on a rant next time.
Posted by drunkenpunkin
Louisiana
Member since Dec 2011
7659 posts
Posted on 8/21/14 at 11:51 am to
It's not just me. Most of the families I work with (encompassing all neuromuscular diseases and organizations) have the same experience. It's actually harder for the families of children with a NMD. Insurance pays for less, organizations have a budget that is overtaxed by requests that cannot be fulfilled. I'm not trying to be a hard arse either. That's just the truth. Again, not saying it's a bad thing necessarily. I'd just like to see a few people research some direct ways to help than just throwing up video and donating to "resaearch." My kid won't live to see the research, and while it's incredibly important for future patients, he needs a wheelchair ramp. And meds and a PCA so I can work to pay for those things that are not covered. There is very little in the way of help. I have a friend with a daughter who is now in her early 2os. Had the same wheelchair since she was 12. Broken seat, broken motor. It took 11 years to get a new one, 6 years after it was broken. Not just my experience.

Also, just an aside, you know what is desperately needed, never covered by insurance, and expensive as hell? Those blue pads that keep the urine/feces off the sheets when an accident happens overnight. My friend spends ~$350 on blue pads a month. Just blue pads. Y'all want to make a difference? Donate some blue pads. Seriously.
Posted by Colonel Forbin
Member since Jul 2014
296 posts
Posted on 8/21/14 at 11:55 am to
I'm not going to link these kids facebook's. It isn't an uninformed opinion if I am witnessing it.

None of these kids that are 16-25 making "hilarious" ice bucket videos are donating a cent. In fact, they are choosing to do something meaningless over donating a legitimate amount to a good cause.
This post was edited on 8/21/14 at 11:56 am
Posted by Celtic Tiger
Lake Charles
Member since Feb 2005
615 posts
Posted on 8/21/14 at 11:56 am to
The other posters are right, it's ice and $10 or a bigger donation if you chicken out. I'd venture to say a large portion of the actual amount raised came from the chickens,and I have anecdotal evidence it has from those I challenged. Granted, many, if not most of the posts now don't mention that and they should not assume everyone just knows that part. But, how in the world is an additional $30 million raised this year, compared to last, any kind of slap in the face to charity?
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