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re: Organ Donation: Why don't more people do it?

Posted on 4/23/14 at 9:45 am to
Posted by DosManos
Member since Oct 2013
3552 posts
Posted on 4/23/14 at 9:45 am to
quote:

This article says that 18 people die everyday on the organ transplant waiting list, and just one organ donor can save or improve up to 50 peoples lives.


One organ can actually save up to 50 lives because of the chain reaction of organ swaps (mostly kidneys).

quote:

A paired kidney exchange, also known as a “kidney swap” occurs when a living kidney donor is incompatible with the recipient, and so exchanges kidneys with another donor/recipient pair.

Two live donor transplants would occur. Suppose there were two donor/recipient pairs, Donor and Recipient 1 and Donor and Recipient 2:

Donor 1 would give a kidney to Recipient 2.
Donor 2 would then give a kidney to Recipient 1.
This kidney paired donation transplant enables two incompatible recipients to receive healthy, more compatible kidneys. All medically eligible donor/recipient pairs may participate in the paired kidney exchange program.


This can expand to include many more people. For example,

60 Lives, 30 Kidneys, All Link

So a person refusing to donate could be the missing link in a potential exchange.
Posted by That's BS
Smoothie King Center
Member since Jan 2012
1783 posts
Posted on 4/23/14 at 9:46 am to
I just lost my grandfather last week, but was blessed to have him around for nine more years after his heart transplant in '05. Those extra years allowed our entire family to create tons of memories that we will forever cherish.

I signed up to be an organ donor when I first got my driver's license back in '97. Seemed like a no brainer. My grandfather's experience and the life he got to live post-transplant has only confirmed to me that it was the correct decision. Gonna miss my Paw Paw...
This post was edited on 4/23/14 at 9:49 am
Posted by Hopeful Doc
Member since Sep 2010
14968 posts
Posted on 4/23/14 at 9:48 am to
quote:

our only requests, as absurd as they may sound now, if that they kept his hands and his lips.


I did get a small laugh out of this, as I believe was your intent. I apologize if it isn't intended to be funny at this time, I apologize. It almost certainly was not funny the first time it was said. Here's some info to the casual reader: The soft organs, again, are covered by a t-shirt, though the abdomen does droop a little without a liver), but the other stuff ( skin, bones, ligaments, tendons) are all done in a discreet manner (skin comes from the back/shoulder, bones come from what the funeral suit will cover, eyes are glued shut even in non-donors by funeral homes) to where it would be difficult to notice any form of disfiguration caused by the recovering technicians or doctors from any observer at the funeral home at the viewing in the casket. It's a hard message to convey, and that's not really an easy thing to advertise "hey, donate. No one will be able to see the major cuts, stitches, or skin we have made/taken"
Groups like LOPA do keep funeral arrangements (even what the person is going to be wearing) in mind when they are blessed to have the opportunity to do their jobs.
Posted by tidalmouse
Whatsamotta U.
Member since Jan 2009
30706 posts
Posted on 4/23/14 at 9:50 am to
I don't think they've seen someone,maybe a family member's life extended and the quality of their life made better.

My Dad was a Type 2 Diabetic and his kidneys failed.He was on Dialysis for 6-8 months.I matched on 3 out of 4 to see if I was a match.

A perfect match came available.It improved the last 6 years of his life so much.

A girl I knew told me the kidney came from a friend of hers.An 18 year old girl traveling to Tuscaloosa to school.Died in a car wreck.
Posted by DosManos
Member since Oct 2013
3552 posts
Posted on 4/23/14 at 9:53 am to
quote:

A girl I knew told me the kidney came from a friend of hers.


I wonder how she knew that. Donor identity is a very sensitive issue.
Posted by That's BS
Smoothie King Center
Member since Jan 2012
1783 posts
Posted on 4/23/14 at 9:56 am to
Also, I wish they created a priority system so that those who registered as organ donors had priority access to organs when needed over those that were not registered as donors.

So if you weren't a registered organ donor before your initial diagnosis of your disease/condition that led to you needing a transplant, you'd only get the transplant if they didn't have a match for that organ among those on the transplant recipient list that were registered donors. Exception would be for kids who were not old enough to register themselves as donors prior to their diagnosis.
Posted by Hopeful Doc
Member since Sep 2010
14968 posts
Posted on 4/23/14 at 9:57 am to
quote:

I signed up to be an organ donor when I first got my driver's license back in '97


This is another thing that most people don't realize, so I will share: the heart on your license means very little. It allows the person calling your family to say "we think this was his/her wishes," but they still have to agree and do the paperwork (typically over the phone. Think of it like a blood donation interview on steroids). People without hearts on their license also get called. Their families also get asked. If I could stress for people to either sign up to be organ donors by their driver's license/mail in form or simply discuss their wishes with their family, I would take the latter every single time. That's the far more important thing when it comes time to make their decision. If there's one thing I've learned, someone's family who's always been told "take everything you can when I die" or "take everything but my (pick any organ, oddly enough. Will never understand the opposition to a single subset of donation, but I've that people are people and have strong feelings about, well, anything)" are way more likely to be donors than those who just have the heart on their license.
The heart on your license, in my experience, does correlate with a higher number of donations in instances where it wasn't discussed with the family prior to the death, but only by a slim margin. The number one thing I encourage everyone to do, both pro- and anti-donation is to just have that little talk with your (in order) spouse, children (>18), parents, and siblings. They make the final decision, regardless of circumstance. And the highest priority of NOK does trump all others, but I always encourage the family to make these decisions together.
Posted by Hopeful Doc
Member since Sep 2010
14968 posts
Posted on 4/23/14 at 9:59 am to
quote:

Also, I wish they created a priority system so that those who registered as organ donors had priority access to organs when needed over those that were not registered as donors.


See above. Registering amounts to saying "they registered as an organ donor, so we believe it was their wish" on the phone/in person to the family. It's by no means a binding contract. As such, signing up to move up that sort of list you propose + telling your family to decline the opportunity to donate yourself is a distinct possibility/abuse potential.
Posted by Hopeful Doc
Member since Sep 2010
14968 posts
Posted on 4/23/14 at 10:01 am to
quote:

One organ can actually save up to 50 lives because of the chain reaction of organ swaps (mostly kidneys).


This is the exception, not the rule. This isn't a particularly common thing. Also, living donation (non brain dead) is another process entirely.
This post was edited on 4/23/14 at 10:10 am
Posted by That's BS
Smoothie King Center
Member since Jan 2012
1783 posts
Posted on 4/23/14 at 10:09 am to
My family definitely knows my position on it in addition to the heart on my license.


quote:

It's by no means a binding contract. As such, signing up to move up that sort of list you propose + telling your family to decline the opportunity to donate yourself is a distinct possibility/abuse potential.


Good point. It would definitely be more complicated than just a list of donors and non-donors. I just think selfish people who don't want to donate their own organs should be last in line to receive.

Maybe create a new, additional and optional registry that is legally binding somehow. The donor can sign up saying this is what I want no matter what. Kind of like a living will? I don't know, I'm no lawyer.
Posted by ShamelessPel
Metairie
Member since Apr 2013
12723 posts
Posted on 4/23/14 at 10:17 am to
One of the better and informative threads on the OT that I've seen.
Posted by DosManos
Member since Oct 2013
3552 posts
Posted on 4/23/14 at 10:25 am to
quote:

This is the exception, not the rule. This isn't a particularly common thing. Also, living donation (non brain dead) is another process entirely.


Yeah I know it's the exception. You're right though- this thread is more about deceased donation.
Posted by Mootsman
Charlotte, NC
Member since Oct 2012
6025 posts
Posted on 4/23/14 at 10:27 am to
I was an organ doner until I saw "Superbad" then I immediately drove to the DMV and had it switched.
Posted by tidalmouse
Whatsamotta U.
Member since Jan 2009
30706 posts
Posted on 4/23/14 at 10:29 am to
It surprised me when she told me.

This was in 1983,but the same privacy laws were in place.


I think the girl that told me's parents probably found out that my Dad got the call from his Transplant Doctor at UAB the day that girl died and donated her organs.

eta:My Mom made me swear that I would make sure they knew she wanted to be an Organ Donor even though she has the little heart on her DL.

This post was edited on 4/23/14 at 10:37 am
Posted by Hopeful Doc
Member since Sep 2010
14968 posts
Posted on 4/23/14 at 10:43 am to
quote:

Yeah I know it's the exception. You're right though- this thread is more about deceased donation.


The chain donation concept is pretty neat though. That's the first I've ever seen of it
Posted by Tigris
Mexican Home
Member since Jul 2005
12366 posts
Posted on 4/23/14 at 10:53 am to
Problems like this are all too common.

Organ Donation
Posted by Chad504boy
4 posts
Member since Feb 2005
166430 posts
Posted on 4/23/14 at 10:57 am to
quote:



if people actually believe this they deserve to die



with their organs...
Posted by tidalmouse
Whatsamotta U.
Member since Jan 2009
30706 posts
Posted on 4/23/14 at 11:02 am to
Been a while since I've seen that.
Posted by Slinky
Member since Dec 2013
3118 posts
Posted on 4/23/14 at 11:27 am to
I was sick with a type of cancer when I was a child. Lots of blood transfusions, chemo, methotrexate, etc. Regardless of how often blood cells are regenerated, doctors told me it would be in my best interest to not elect to donate blood, plasma, and organs in my lifetime.
Posted by ScottieP
Baton Rouge, LA
Member since Feb 2004
1933 posts
Posted on 4/23/14 at 11:34 am to
I have to admit I was dead set against organ donation when I was younger. Not sure why. Didn't seem right, not sure if it was beacuse I thought my well being would be devalued while still alive or if it was just being selfish.

Then in 2000 my wifes mom was put on the heart transplant list. She waited 2 years for a heart. She lived in the hospital the last 6 months. But that new heart allowed her to see my wife and I get married and my godchild be born. My mother in law has since passed from a differenct illness, but the transplant gave us 6 more years with her.

In 2002 I became an organ donor.
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