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Message
Humira for Psoriasis - Anyone taken it?
Posted on 1/14/16 at 11:28 am
Posted on 1/14/16 at 11:28 am
For the last few years I have been dealing with psoriasis. It only flares up about 3-4 months out of the year. Well, this last time it has been pretty bad, still considered "moderate". My doctor gave me two options, treat it with topical creams and tanning bed or get on Humira.
Has anyone of you OT doctors taken Humira or have any insight on the medication?
Has anyone of you OT doctors taken Humira or have any insight on the medication?
13
Posted on 1/14/16 at 12:02 pm to GeauxTime9
You will get cancer eventually on Humira.
Have you tried diet modification?
Have you tried diet modification?
Posted on 1/14/16 at 12:13 pm to GeauxTime9
Ask about the possibility of using Remicade or Stelera instead. It is an infusion instead of an injectable, but the amount of injections is much less (4 times a year once it is set-up).
Posted on 1/14/16 at 12:14 pm to GeauxTime9
Sorry to hear man. My uncle died of this a fee years back at 49. Couldn't put the bottle down.
Posted on 1/14/16 at 12:17 pm to TigerRagAndrew
The incidence of lymphoma is slightly (like 5%) higher than the general public.
Posted on 1/14/16 at 12:19 pm to TigerRagAndrew
quote:
You will get cancer eventually on Humira
What a ridiculous thing to say.
Honestly, give the creams a chance. If they don't work, then I'd recommend Humira.
Posted on 1/14/16 at 12:19 pm to GeauxTime9
Where are your flare ups located?
Posted on 1/14/16 at 12:19 pm to GeauxTime9
The blonde chick from the commercials is sexy
Posted on 1/14/16 at 12:20 pm to TigerRagAndrew
I am almost certain no drug would be legal if it gave everyone taking it cancer.
ETA:
I would bet the cancer risk is greater with the tanning bed.
ETA:
I would bet the cancer risk is greater with the tanning bed.
This post was edited on 1/14/16 at 12:22 pm
Posted on 1/14/16 at 12:26 pm to GeauxTime9
I was on the pill they prescribe for a couple of months, but honestly that Walmart cream works the best. It isn't great right now, but it's more of a personal choice of not giving a frick.
Posted on 1/14/16 at 12:31 pm to GeauxTime9
I've been in your shoes, going to the dermatologist every 6 months to get them to write me a script for whoever bought them the biggest steak dinner that week...after a few weeks all creams seem to lose effectiveness. Sad part is, insurance won't cover those medications so you're paying out of pocket and those creams aren't cheap.
I did find something that worked, you may remember commercials for skin zinc...the spray that came in those kits was a life saver. Then they went out of business and I was back to being miserable, so miserable I tracked down the lab that made their spray only to find out they discarded all of the stock because it had expired. They did give me a promising lead, though. I called the number and a guy picked up who used to work for skin zinc, he took their formula and started his own business and I promise if you try the spray, it will change your life.
Here is the website: LINK
The site looks cheesy and it may seem like a ripoff but I promise it works...if you decide to try it, here is what I would do...when it arrives, take a shower and scrub off all the dry scales, immediately get out and towel dry then apply the spay on your affected areas. Do this a few times a day until it is under control then just do it when you get out of the shower once a day. No need for the cream btw, that is just an agent that dissolves the scales away, if you scrub them away it will have a much better affect.
I did find something that worked, you may remember commercials for skin zinc...the spray that came in those kits was a life saver. Then they went out of business and I was back to being miserable, so miserable I tracked down the lab that made their spray only to find out they discarded all of the stock because it had expired. They did give me a promising lead, though. I called the number and a guy picked up who used to work for skin zinc, he took their formula and started his own business and I promise if you try the spray, it will change your life.
Here is the website: LINK
The site looks cheesy and it may seem like a ripoff but I promise it works...if you decide to try it, here is what I would do...when it arrives, take a shower and scrub off all the dry scales, immediately get out and towel dry then apply the spay on your affected areas. Do this a few times a day until it is under control then just do it when you get out of the shower once a day. No need for the cream btw, that is just an agent that dissolves the scales away, if you scrub them away it will have a much better affect.
Posted on 1/14/16 at 12:40 pm to Spilled Milk
I've never had problems getting my insurance to cover any creams or Humira.
My dermatologist prescribes Humira to his mother for psoriasis, so that eased some of my concerns. I do not believe he needs to be bribed in exchange for such a widely prescribed shot.
While there are definitely alternative treatments, do not believe everything you hear in regards to the difficulty of attaining Humira or side effects (see above cancer statement).
My dermatologist prescribes Humira to his mother for psoriasis, so that eased some of my concerns. I do not believe he needs to be bribed in exchange for such a widely prescribed shot.
While there are definitely alternative treatments, do not believe everything you hear in regards to the difficulty of attaining Humira or side effects (see above cancer statement).
Posted on 1/14/16 at 12:55 pm to TigerRagAndrew
quote:
You will get cancer eventually on Humira
You're an idiot, and I don't throw that accusation around. The incidence of cancer in patients on Humira is incredibly rare, hardly a fraction more than the normal population. We're talking one out of tens of thousands. And almost all of those occurred in people on Humira AND another immune suppressing agent like Imuran or Purinethol, not Humira alone. Smoking is more dangerous than Humira. Hell, owning a motorcycle is more dangerous than Humira (and Remicade, and Cimzia, and a host of similar meds). There are hundreds of thousands of people on Humira for psoriasis and Crohn's and ulcerative colitis and other rheumatologic diseases because it is SAFE and effective. OP, if you trust your doctor than ask him what he would do. If you don't trust him, find another doctor. Don't ask a message board for advice.
Posted on 1/14/16 at 1:25 pm to GeauxTime9
you still have your tonsils, don't you...
and if you think that's a crazy question, consider this...
and if you think that's a crazy question, consider this...
quote:
J Immunol. 2012 May 15;188(10):5160-5. doi: 10.4049/jimmunol.1102834. Epub 2012 Apr 9.
Improvement of psoriasis after tonsillectomy is associated with a decrease in the frequency of circulating T cells that recognize streptococcal determinants and homologous skin determinants. Thorleifsdottir RH1, Sigurdardottir SL, Sigurgeirsson B, Olafsson JH, Sigurdsson MI, Petersen H, Arnadottir S, Gudjonsson JE, Johnston A, Valdimarsson H.
Author information Abstract
Exacerbation of chronic psoriasis can be associated with streptococcal throat infections, and T cells that respond to peptide sequences common to streptococcal M proteins and skin keratins have been detected in patients' blood. To our knowledge, we have conducted the first blinded, prospective study to assess the impact of tonsillectomy on psoriasis. Twenty-nine patients with chronic psoriasis and history of exacerbation after sore throat were randomly assigned to tonsillectomy (n = 15) or control (n = 14) groups and monitored for 2 y clinically and by enumeration of circulating skin homing T cells that respond to short homologous M protein or keratin peptides. Thirteen patients (86%) showed sustained improvement after tonsillectomy ranging from 30 to 90% reduction in disease severity. Furthermore, there was a close correlation between the degree of clinical improvement in individual patients and reduction in the frequency of peptide-reactive skin-homing T cells in their circulation. No corresponding clinical or immunologic changes were observed among the controls. These findings indicate that tonsillectomy may have a beneficial effect on chronic psoriasis because the palatine tonsils generate effector T cells that recognize keratin determinants in the skin.
Posted on 1/14/16 at 1:32 pm to Kyrie Eleison
quote:
Gudjonsson
Whoa! I'm changing my name to this.
Posted on 1/14/16 at 1:36 pm to Kyrie Eleison
No, got tonsils removed. I am going to give the skinzinc a shot.
Posted on 1/14/16 at 1:41 pm to Kyrie Eleison
I never had it until recently and still have my tonsils. Hmm
Posted on 1/14/16 at 1:44 pm to GeauxTime9
My former boss took the Humira shot and it wasn't long that he developed lymphoma.
I've also heard many success stories from using the shot.
However, witnessing first hand the results from taking the shot, I'd steer clear if at all possible.
I've also heard many success stories from using the shot.
However, witnessing first hand the results from taking the shot, I'd steer clear if at all possible.
Posted on 1/14/16 at 2:05 pm to GeauxTime9
Humira works, until your body gets used to it. I was on it for almost 3 years.
Best treatment for bad psoriasis is the one that works, and then changing to whatever's new when the old treatment stops working.
When psoriasis is bad and ruining your life, it's is TOTALLY worth risking cancer to get rid of it.
The topical creams DO NOT WORK.
I was on Embrel for about 2 years, and was about 90% clear, then went to Humira for about 2-3 years (and 100% clear), and now have been switched to Otezla (pills), which is working.
The injections are easy. If you think they are going to hurt, you are a huge pussy. I was taking Embrel injections once a week and then when I switched to Humira, once very two weeks. I would let someone hit me in the balls with a sledgehammer every two weeks if I knew it would get rid of the psoriasis.
Best treatment for bad psoriasis is the one that works, and then changing to whatever's new when the old treatment stops working.
When psoriasis is bad and ruining your life, it's is TOTALLY worth risking cancer to get rid of it.
The topical creams DO NOT WORK.
I was on Embrel for about 2 years, and was about 90% clear, then went to Humira for about 2-3 years (and 100% clear), and now have been switched to Otezla (pills), which is working.
The injections are easy. If you think they are going to hurt, you are a huge pussy. I was taking Embrel injections once a week and then when I switched to Humira, once very two weeks. I would let someone hit me in the balls with a sledgehammer every two weeks if I knew it would get rid of the psoriasis.
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