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Started By
Message
Heaven over hospital-Parents give terminally ill 5 year old life altering choice
Posted on 10/27/15 at 12:08 pm
Posted on 10/27/15 at 12:08 pm
quote:
Michelle: Julianna, if you get sick again, do you want to go to the hospital again or stay home?
Julianna: Not the hospital.
Michelle: Even if that means that you will go to heaven if you stay home?
Julianna: Yes.
Michelle: And you know that mommy and daddy won't come with you right away? You'll go by yourself first.
Julianna: Don't worry. God will take care of me.
Michelle: And if you go to the hospital, it may help you get better and let you come home again and spend more time with us. I need to make sure that you understand that. Hospital may let you have more time with mommy and daddy.
Julianna: I understand.
Michelle: (crying) - I'm sorry, Julianna. I know you don't like it when I cry. It's just that I will miss you so much.
Julianna: That's OK. God will take care of me. He's in my heart.
I don't know what I would do. Terrible situation. WWTOTD?
LINK
Searched, SIAP
ETA-
quote:
Julianna Snow is dying of an incurable disease. She's stable at the moment, but any germ that comes her way, even just the common cold virus, could kill her. She's told her parents that the next time this happens, she wants to die at home instead of going to the hospital for treatment.
If Julianna were an adult, there would be no debate about her case: She would get to decide when to say "enough" to medical care and be allowed to die.
But Julianna is 5 years old. Should her parents have let her know how grave her situation is?
This post was edited on 10/27/15 at 12:11 pm
16
Posted on 10/27/15 at 12:10 pm to NYNolaguy1
Dumb arse parents
Posted on 10/27/15 at 12:10 pm to NYNolaguy1
I let my 2 year old make all his own decisions and it's worked great so far.
Posted on 10/27/15 at 12:10 pm to NYNolaguy1
Here are some puppies to feel better for when anyone else reads that
This post was edited on 10/27/15 at 12:11 pm
Posted on 10/27/15 at 12:12 pm to NYNolaguy1
frick that.
A 5 year old incapable of understanding this type of decision and the impacts.
This is a rather significant edit...
A 5 year old incapable of understanding this type of decision and the impacts.
quote:
Julianna Snow is dying of an incurable disease.
This is a rather significant edit...
This post was edited on 10/27/15 at 12:14 pm
Posted on 10/27/15 at 12:14 pm to NYNolaguy1
Screw these parents for trying to make their 5 year old child feel guilty about having a terminal illness.
Posted on 10/27/15 at 12:14 pm to NYNolaguy1
God made her sick and now he is going to take care of her, that's rich.
Oh yeah, he only get's the props, never the blame.
Oh yeah, he only get's the props, never the blame.
Posted on 10/27/15 at 12:16 pm to taylork37
To be fair I didn't change the title that said "parents give terminally ill 5 year old...". 
Posted on 10/27/15 at 12:17 pm to Napoleon
The devil made her sick you heathen
Posted on 10/27/15 at 12:22 pm to ksayetiger
Sounds like stupid parents and the kid would rather be alone than with them. Smart kid.
Posted on 10/27/15 at 12:22 pm to NYNolaguy1
I get the feeling most people here didnt read the article.
Posted on 10/27/15 at 12:23 pm to NYNolaguy1
Sadly, the hard reality is that children also face incurable diseases that take their precious lives at young ages.
It sucks, but it is reality.
There are very few hospice companies that provide pediatric hospice care but it is a needed service.
There is a point at which treatment becomes futile, and the mental and physical burden of that futile treatment far outweighs the short lived benefit it provides.
In these cases where the natural course of a disease is death without aggressive medical intervention, and the course of the disease is one of gradual decline leading to eventual early unpreventable death even with aggressive medical intervention, it is reasonable to make the decision that you want no aggressive intervention and instead opt for palliative treatment only.
As for the child being involved in that decision, it really depends on that child's experience with the issue, the degree of maturity concerning that issue, and their understanding of the process.
It sucks, but it is reality.
There are very few hospice companies that provide pediatric hospice care but it is a needed service.
There is a point at which treatment becomes futile, and the mental and physical burden of that futile treatment far outweighs the short lived benefit it provides.
In these cases where the natural course of a disease is death without aggressive medical intervention, and the course of the disease is one of gradual decline leading to eventual early unpreventable death even with aggressive medical intervention, it is reasonable to make the decision that you want no aggressive intervention and instead opt for palliative treatment only.
As for the child being involved in that decision, it really depends on that child's experience with the issue, the degree of maturity concerning that issue, and their understanding of the process.
Posted on 10/27/15 at 12:26 pm to ksayetiger
I don't have a problem with this considering the illness is terminal and seemingly her life expectancy is not very long. If this were not terminal or she had something that was terminal but still had a long life expectancy (relatively speaking) with treatment I would say the child should not be able to make the decision. Although the child in this situation cannot understand the gravity of her situation or her decision does it really make a difference if she's only going to live for another week or two? If that is the case, IMO the parents should respect her wishes to be poked and prodded just to add another week to the life.
However, from a legal standpoint its still absolutely up to the parents.
However, from a legal standpoint its still absolutely up to the parents.
Posted on 10/27/15 at 12:26 pm to davy jones
quote:
I get the feeling most people here didnt read the article.
Yeah... it goes into more detail like how she's slowly wasting away and the medical treatments would be painful. Sometimes it's almost better to let go. Do you want your child to be in a hospital and in pain... or at home where they can die peacefully?
It's a tough situation but no one here should judge unless you've been put in the same situation. I would never want to face what that family is going through.
quote:
Over and over, she told her parents how much she hated the hospital, especially "NT," or naso-tracheal suctioning.
Several times a day in the hospital, a nurse would put a tube down her nose and throat, forcing it past her gag reflex and into her lungs to suck the mucus out of the tiny pockets in her airways. It was too dangerous to sedate her for the procedure, so Julianna had to feel everything.
The task of doing NT suction often fell to nurse Diana Scolaro, who took care of Julianna during all three of her intensive care unit stays at Doernbecher in 2014. Stronger children usually scream and have to be restrained when someone tries to put the tube down their nose. But Julianna was so weak all she could do was cry.
When she was done, Scolaro would say to Julianna, "Rest now, baby. Maybe you can make it two hours before we have to do it again."
But she seldom lasted that long. "It's not for the faint of heart to take what she took," Scolaro says.
This post was edited on 10/27/15 at 12:29 pm
Posted on 10/27/15 at 12:26 pm to davy jones
quote:
I get the feeling most people here didnt read the article.
Exactly, or they would have read how the child's mother is actually a doctor herself(a neurologist). So it's not like these are uneducated parents here.
Posted on 10/27/15 at 12:27 pm to NYNolaguy1
quote:
I don't know what I would do. Terrible situation. WWTOTD?
I have no idea what I'd do. Nobody knows how they'd face that situation until they're living the sort of nightmare those parents are in right now. The pain and terror those parents are facing is something we who have not faced it cannot fathom. I'm not going to try and guess what I'd do nor will I judge what they're doing. All I'll say is "there but for the grace of God go I".
Posted on 10/27/15 at 12:28 pm to NYNolaguy1
DCF needs to go get that kid ASAP
Posted on 10/27/15 at 12:31 pm to 20MuleTeam
quote:
DCF needs to go get that kid ASAP
And do what exactly?
Posted on 10/27/15 at 12:32 pm to djangochained
quote:
Dumb arse parents
WTF are you retarded? So you would let your child continue to go through painful ineffective treatment so you can selfishly spend more time with them? Who would want to see their child in agonizing pain. The child didn't want to go through that and has the faith that her creature will comfort her and her family.
Posted on 10/27/15 at 12:34 pm to 20MuleTeam
quote:
DCF needs to go get that kid ASAP
Get over yourself. Did you read the entire article? Do you understand that this little girl is going to die one way or the other? The best hope is that a hospital visit MIGHT prolong her life a little longer but at the cost of painful procedures that she fears.
So your solution to the problem is to turn over a terminally ill child to the system where she can spend the remaining days of her life surrounded by strangers that don't give a shite about her?
Brilliant plan.
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