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Creutzfeldt-Jakob disease **updated pg 5

Posted on 11/19/23 at 9:57 pm
Posted by JoseVargasTX
Heath, TX
Member since Sep 2011
719 posts
Posted on 11/19/23 at 9:57 pm
Anyone ever dealt with it? A buddy I grew up with, looked up to, we are pretty sure he has it.

This guy—tip top shape. Fireman. College basketball player. Three beautiful kids. Beautiful wife.

Life sure doesn’t seem fair when you hear this news and see what it does to a person.
This post was edited on 11/21/23 at 6:36 pm
Posted by tiggerthetooth
Big Momma's House
Member since Oct 2010
61270 posts
Posted on 11/19/23 at 9:59 pm to
quote:

Life sure doesn’t seem fair when you hear this news and see what it does to a person.


Is it though? Sounds like he's had a damned good life up to this point.
This post was edited on 11/19/23 at 10:00 pm
Posted by OWLFAN86
The OT has made me richer
Member since Jun 2004
175902 posts
Posted on 11/19/23 at 9:59 pm to
damn
Posted by SpaceCamp
Member since Nov 2020
292 posts
Posted on 11/19/23 at 9:59 pm to
A coworker had a relative who died from it a few years ago. It is an absolutely devastating illness. He died within a few weeks of diagnosis leaving behind a wife and two kids.
This post was edited on 11/19/23 at 10:23 pm
Posted by White Bear
Yonnygo
Member since Jul 2014
13901 posts
Posted on 11/19/23 at 10:00 pm to
Does he eat venison?
Posted by WinnaSez
Jackson, MS
Member since Mar 2019
1000 posts
Posted on 11/19/23 at 10:01 pm to
quote:

we are pretty sure he has it.
. What do you mean by “we”? His medical team??

Isn’t that a variant of mad cow disease??

This post was edited on 11/19/23 at 10:04 pm
Posted by JoseVargasTX
Heath, TX
Member since Sep 2011
719 posts
Posted on 11/19/23 at 10:02 pm to
They’ve ruled out any chance that he got it from an animal. Doing another spinal tap tomorrow is what I was told.
Posted by Gee Grenouille
Bogalusa
Member since Jul 2018
4788 posts
Posted on 11/19/23 at 10:02 pm to
What do you mean you think he has it?
Posted by GREENHEAD22
Member since Nov 2009
19604 posts
Posted on 11/19/23 at 10:03 pm to
Say your goodbyes soon, it moves in days and weeks.
Posted by SavageReb
Member since Mar 2016
292 posts
Posted on 11/19/23 at 10:04 pm to
I had a great uncle that died from it. Doctors said he got it from eating squirrel brains.
Posted by GeauxZone90
Baton Rouge
Member since Jul 2010
2923 posts
Posted on 11/19/23 at 10:04 pm to
Don’t you get this from eating infected deer? If so I don’t think there is a cure
Posted by JoseVargasTX
Heath, TX
Member since Sep 2011
719 posts
Posted on 11/19/23 at 10:05 pm to
First spinal tap came back negative Thursday/Friday, but since then, he has gone down hill and they have brought in a neurologist from the Mayo Clinic. Because of symptoms, they are diagnosing it as Jakobs…
Posted by Cosmo
glassman's guest house
Member since Oct 2003
120288 posts
Posted on 11/19/23 at 10:06 pm to
I thought they needed a brain biopsy to diagnose

And yeah usually from infected venison and some other meat

Think there is a familial component too
This post was edited on 11/19/23 at 10:11 pm
Posted by White Bear
Yonnygo
Member since Jul 2014
13901 posts
Posted on 11/19/23 at 10:07 pm to
quote:

Don’t you get this from eating infected deer? If so I don’t think there is a cure
Hasn’t been a CWD deer to human infection link proven yet.
Posted by GeauxZone90
Baton Rouge
Member since Jul 2010
2923 posts
Posted on 11/19/23 at 10:09 pm to
quote:

hey’ve ruled out any chance that he got it from an animal. Doing another spinal tap tomorrow is what I was told


Did he take the Covid vaccine?
Posted by Rebel
Graceland
Member since Jan 2005
131393 posts
Posted on 11/19/23 at 10:10 pm to
Isn’t that mad cow disease?

Posted by jeffsdad
Member since Mar 2007
21426 posts
Posted on 11/19/23 at 10:11 pm to
Prion. Hopefully, they find how it was "infected" with it. I've read some reports of prions being able to live in the soil indefinitely after an animal dies from it. But, they have discovered so much about them since I first learned of it, I don't really know much. I know its an abnormal mis-shaped protein that once it touches another protein molecule it turns into a mis-shaped molecule. I don't think there is a cure. I know 5 years ago, if they found someone had it in a brain lesion, they would incinerate every tool used in the surgery.
Posted by XenScott
Pensacola
Member since Oct 2016
3139 posts
Posted on 11/19/23 at 10:13 pm to
It is extremely rare. One case per million people. Maybe he will get good news.
Posted by CajunBandit
Baton Rouge
Member since Nov 2010
2887 posts
Posted on 11/19/23 at 10:13 pm to
I knew a man with a similar series of diagnoses. He died of limbic encephalitis. Looks a lot like CJD. It is most frequently caused by a paraneoplatic syndrome that results from cancer, but that isn't the only thing that can cause it.
Posted by Quatrepot
Member since Jun 2023
4046 posts
Posted on 11/19/23 at 10:17 pm to
My wife died from this. Like mad cow disease but in humans
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