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Started By
Message
Calling all doctors, survivors, and relatives of cancer patients
Posted on 4/30/15 at 5:12 pm
Posted on 4/30/15 at 5:12 pm
Has anyone here ever dealt with invasive squamous cell cancer that has spread to a lymph node in the neck? Any results? Advice?
10
Posted on 4/30/15 at 5:15 pm to lsutiger2011
Where was the original SCC?
Posted on 4/30/15 at 5:28 pm to tigerskin
I have not been diagnosed, but a loved one has. They do not know yet.
Posted on 4/30/15 at 5:29 pm to lsutiger2011
unknown primary or do they know where it came from?
technically it's stage III but can be very treatable depending on several factors.
technically it's stage III but can be very treatable depending on several factors.
Posted on 4/30/15 at 5:56 pm to lsutiger2011
If the primary cancer is a head/neck cancer be prepared for a difficult treatment. Those can be quite difficult to treat due to the complex and sensitive architecture of the head/neck/face as well as difficult to tolerate side effects.
Of course the primary could very well be from somewhere else. Do you know how many nodes were identified as having tumor cells present? If in Baton Rouge and the primary diagnosis is in fact head and neck, you want to go to the LSU Head and Neck center at Mary Bird Perkins. The docs there have international reputations although they are not necessarily widely known locally. They are a hidden gem in the local medical community.
Of course the primary could very well be from somewhere else. Do you know how many nodes were identified as having tumor cells present? If in Baton Rouge and the primary diagnosis is in fact head and neck, you want to go to the LSU Head and Neck center at Mary Bird Perkins. The docs there have international reputations although they are not necessarily widely known locally. They are a hidden gem in the local medical community.
Posted on 4/30/15 at 6:36 pm to lsutiger2011
Guy that I work with was diagnosed with it when found during a routine procedure....outlook was pretty bleak, but that was a few years ago and he seems to be doing fine. Was out for a while for treatments/surgery, but he is back at work and living a normal life again now. In fact, He is as state fan, so I may see if he wants to head up for a game this weekend.
Posted on 4/30/15 at 9:11 pm to BR Tiger
One node was found to have tumor cells. It had swollen up pretty big. I'm in Georgia, but thanks for the recommendation. They aren't sure where the primary is yet.
Posted on 4/30/15 at 9:44 pm to lsutiger2011
The patient doesn't know yet but you do?
Posted on 4/30/15 at 9:47 pm to lsutiger2011
My wife had squamous cell carcinoma that spread to her lymph nodes and she had her nodes removed from her neck.
What do ya wanna know?
It's a fricking terrible radiation treatment.
She could not eat anything after 6 weeks of radiation and had to have a PICC line inserted. Which is a feeding tube thru the arm all the way to the heart(in case you didn't know). I had to change the food bag and batteries in her pump everyday for 2 months, along with flushing out the lines of her feeding tube.
What do ya wanna know?
It's a fricking terrible radiation treatment.
She could not eat anything after 6 weeks of radiation and had to have a PICC line inserted. Which is a feeding tube thru the arm all the way to the heart(in case you didn't know). I had to change the food bag and batteries in her pump everyday for 2 months, along with flushing out the lines of her feeding tube.
This post was edited on 4/30/15 at 9:56 pm
Posted on 4/30/15 at 10:01 pm to BR Tiger
quote:
neck, you want to go to the LSU Head and Neck center at Mary Bird Perkins. The docs there have international reputations although they are not necessarily widely known locally. They are a hidden gem in the local medical community.
Isn't Dr. Anna Pou associated with this group?
Posted on 4/30/15 at 10:07 pm to lsutiger2011
Tell your friend to get to MD Anderson asap. Don't frick around in louisiana.
Posted on 4/30/15 at 10:09 pm to Martini
quote:
Isn't Dr. Anna Pou associated with this group?
Yes, she is.
Posted on 4/30/15 at 10:12 pm to biglego
quote:
Tell your friend to get to MD Anderson asap. Don't frick around in louisiana
OP has indicated he is in GA. But this is bad advice. The world of cancer treatment isn't the same as it was 10-15 years ago. You can receive world-class treatment right here in Baton Rouge.
Posted on 4/30/15 at 10:17 pm to lsutiger2011
Yes. It killed my best friend 18 months ago this Saturday.
RIP EJW
RIP EJW
This post was edited on 4/30/15 at 10:20 pm
Posted on 4/30/15 at 10:18 pm to BR Tiger
I call BS on this advice. Get to md anderson ASAP.
My wife had surgery in lafayette, and had to have it re-done at md anderson bc the ent missed some of the tumor under her tongue.
My wife had surgery in lafayette, and had to have it re-done at md anderson bc the ent missed some of the tumor under her tongue.
Posted on 4/30/15 at 10:20 pm to BR Tiger
Maybe so, but id still go to the world class facility given the option. My mom lost weeks while being jerked around by Oschner as the tumor in her neck visibly grew to the size of a golf ball and choked her. MDA started treatment immediately and saved her. This was in 2011.
Posted on 4/30/15 at 10:24 pm to REB BEER
And there are others who had to have something corrected following treatment at MD Anderson. The key is seeing an ontological ENT who does nothing but treat cancer patients. Even better if they gave a subspecialty in your particular type of cancer. The more patients your doctor sees with similar issues, the more likely you are to have a positive outcome.
Posted on 4/30/15 at 10:27 pm to BR Tiger
quote:
The more patients your doctor sees with similar issues, the more likely you are to have a positive outcome.
Which is why I'd go to the world class facility that specializes in cancer treatment.
Posted on 4/30/15 at 10:35 pm to lsutiger2011
Posted on 4/30/15 at 10:49 pm to BR Tiger
My bro in law had some serious issues with MD Anderson that thankfully were caught by the ENT or whoever they saw in Austin. He had facial cancer, not sure what type. He's doing pretty well after radiation. Fingers crossed and prayers.
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