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re: anyone had to do HGH treatments for their child? - UPDATE

Posted on 2/17/17 at 9:54 am to
Posted by marinebioman
Ocean Springs, MS
Member since Feb 2005
3396 posts
Posted on 2/17/17 at 9:54 am to
That is something I am not sure about yet. Like I said, we aren't even sure if he will need it, but my impression of reading between the lines of what the endocrinologist said yesterday is we should be prepared for it.
Posted by SabiDojo
Open to any suggestions.
Member since Nov 2010
83929 posts
Posted on 2/17/17 at 9:59 am to
Nutrition will help, and dude some guys hit it late, like 15.

I'm not a big guy but I was always the biggest kid in my class. I stopped and others grew.
Posted by bouefbengal
Baton Rouge
Member since Jan 2005
2320 posts
Posted on 2/17/17 at 9:59 am to
My son was a full term tiny baby he started to grow normally but at around 5 the velocity of his growth started dropping. We did testing at Children's in NO and he was diagnosed as truly having hormone deficiency. Based on the info they said without treatment he would probably be 4'10 at best. Treatment is scary proposition because the hormone makes everything grow so if the child was predisposed to having a tumor it would make it grow as well and it's a long term commitment because if you start treatment and decide to stop the withdrawal of the drug may signal the growth plates to close and those stop growth. For over 10 years six nights a week we injected him at at 17 his growth stopped at 5'3 I wish you the best as this is truly a difficult decision not to be taken lightly.
Posted by Tommy Callahan
Member since Dec 2012
437 posts
Posted on 2/17/17 at 10:01 am to
I was given this treatment 25 years ago when it was first being used... Although not a miracle drug it did work. I went from growing about 1/8 inch a year to 1-1.5 inches a year, so It did not make me "catch up" with the rest of my class mates, it did stop eveyone from saying what is this 2nd grader doing in the 6th grade wing
This post was edited on 2/17/17 at 10:03 am
Posted by GaryMyMan
Shreveport
Member since May 2007
13498 posts
Posted on 2/17/17 at 10:04 am to
Anecdote time:

I know a family of several boys who were all small for their size. The oldest didn't get HGH, he's maybe 5'5" as an adult. The younger ones did and they're all pushing 6'.

Posted by marinebioman
Ocean Springs, MS
Member since Feb 2005
3396 posts
Posted on 2/17/17 at 10:04 am to
Thank you for your story. I agree that this is something not to be taken lightly. I keep holding on to this probably unrealistic expectation that one day he will just catch up and grow to be a normal height. I know its probably still possible at this point but I guess I am realizing that I can't keep my head in the sand and pretend that something might not need to be done about it.
This post was edited on 2/17/17 at 10:19 am
Posted by bouefbengal
Baton Rouge
Member since Jan 2005
2320 posts
Posted on 2/17/17 at 10:13 am to
The treatment does add mass as well as linear growth if that helps. It's a tough decision I had a job I hated with good benefits that I stayed at because as they grow so does the cost could have never cover the full cost myself. My son was treated by Dr. Antonio Vargas at Children's Hospital in New Orleans and if he's still there I'd highly recommend getting his opinion.

Have they done a bone age test on him yet? It's just an X-ray of the hands where you can see the growth plates. The first one they did on my son showed his bone age to be almost half of his chronological age which then led us to full blown wn testing at Children's.
This post was edited on 2/17/17 at 10:20 am
Posted by pilsnerpusher
Member since Sep 2009
1361 posts
Posted on 2/17/17 at 10:25 am to
Yes, insurance covers it. There are several different types of rGH. The md office should find the one/ones that your insurance will cover. Up until the age of 7 he was trucking along somewhere between the 30th-40th percentile for height and between 5th-10th percentile for weight. The next year he dropped off substantially. He grew 1.5 inches. Kids have slow years sometimes and he didn't fit the description of a kid with gh deficiency (he is lean, athletic, and high energy). Still, the pediatrician said we should just double check. So they did the tests you've done and it indicated a gh deficiency but it was only slightly below normal. The endocrinologist agreed with our request to just monitor for a year. We retested the following year (he'd grown 1.3 inches and gained 1 pound). Obviously, the test showed that his gh production had dipped further and his body had not yet begun to "gear-up" for puberty like it was supposed to be doing. We monitored height/weight for another 6 months. By this time his sister, who is 2.5 years younger was only 1.5 inches shorter and they weighed the same. Doc said there'll be catch up growth the first 2 years then he'll assume a normal growth pattern.
Posted by Thib-a-doe Tiger
Member since Nov 2012
35348 posts
Posted on 2/17/17 at 10:30 am to
quote:

Sounds like he was fed formula. That's a common side effect



My son was fed formula and he's fricking giant

37 inches tall and 33 lbs at 2-1/2


Get out of here with your bullshite



Posted by pilsnerpusher
Member since Sep 2009
1361 posts
Posted on 2/17/17 at 10:30 am to
We felt the same way. Did not want it to be true. We kept wanting to wait just a little bit longer. He wasn't unhappy and wasn't unhealthy. He just wasn't growing.
Posted by SetTheMood
The Red Stick
Member since Jul 2012
3182 posts
Posted on 2/17/17 at 10:44 am to
quote:


My son was fed formula and he's fricking giant


Mine too. He turned 2 on the 11th, hes 34 lbs and 37" tall. I'm 5'7 and my wife is 5'4. When doc did the growth forecast I laughed in his face. I seriously doubt my kid turns out to be 6'3, but hey, maybe my wife was catching crank on the side. If only he didn't look exactly fricking like me...
Posted by mofungoo
Baton Rouge
Member since Nov 2012
4583 posts
Posted on 2/17/17 at 10:49 am to
HGH is released during sleep. Make sure he is getting all the quality sleep he needs, quite a bit more than an adult requires.
Posted by marinebioman
Ocean Springs, MS
Member since Feb 2005
3396 posts
Posted on 2/17/17 at 11:38 am to
He sleeps a lot...he gets 10-11 hours most nighst!
Posted by CurDog
Member since Jan 2007
28082 posts
Posted on 2/17/17 at 11:42 am to
quote:

son not being "normal


whats normal?

He might be behind the growth curve, but maybe he is just going to be small.
I do believe you should keep the doctors appt and check out everything
Posted by rocket31
Member since Jan 2008
41819 posts
Posted on 2/17/17 at 11:50 am to
Just go no carb and have him drink Shakeology every morning

It'll work itself out
Posted by TigahJay
New Orleans
Member since Sep 2015
10551 posts
Posted on 2/17/17 at 11:51 am to
No I don't have weak genetics like you
Posted by the Kingfish
Decatur
Member since Mar 2006
586 posts
Posted on 2/17/17 at 11:59 am to
I received daily HGH injections for 18 months at age 13 because I had stopped growing at 4'4" and my dad is 6'0" and mom is 5'7" ended up topping off at 5'10" by my 16th birthday. The reasoning for my issue was that I was born with non functioning Adrenal glands.
Posted by moneyg
Member since Jun 2006
56457 posts
Posted on 2/17/17 at 12:06 pm to
quote:

he would be the shortest child out of 100


Is this surprising based on his parents?
Posted by marinebioman
Ocean Springs, MS
Member since Feb 2005
3396 posts
Posted on 2/17/17 at 12:07 pm to
I am 6'2" so yea I think so
Posted by razorbackfan4life
Northwest Arkansas
Member since Apr 2011
8493 posts
Posted on 2/17/17 at 12:47 pm to
I was offered this treatment as a child. I told my parents that I didn't want to take the shots.

I had a growth spirt around age 13/14.

Parents are both short and I ended up short. I don't think the treatments would have made any difference. Genetics are a bitch sometimes.
This post was edited on 2/17/17 at 12:48 pm
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