re: 5 year old boy learns he's getting a new heart after 211 day wait at the hospita

quote:

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Not only that, i see posts going back to 2011 that chronicle Ari's history.

IT's a website called "Echo of Hope" and they've journaled their entire experience, so why wouldn't they show this big announcement to Ari on their website?

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And I'm sure it's been a source of strength for them. One thing in stories like this that often get overlooked is what the families go through.

I was just as guilty of this as anyone else until I had to see my wife and kids go through it. As much as the patient suffers and struggles, their loved ones go through that and in my opinion much more. I've noticed in my wife a change since last November. I can tell she's been jarred and frankly left living in fear. The same is true of my son although he buries it down inside. They need positive thoughts, prayers, well wishes, and just to be able to, even if only for a little while, not be scared and having to worry. The loved ones of a patient like this kid live 24/7 with a level of stress you can't comprehend until you've sat where they sit now having to wonder if your loved one is about to die.

That's what things like this blog those parents made do. And if it helps them cope so they can then be cheerful and upbeat for their son, then I say good for them.