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British parents arrested for seeking out advanced care for dying son
Posted on 9/1/14 at 7:43 am
Posted on 9/1/14 at 7:43 am
quote:
Patricia King told the BBC on Monday it was an "absolute disgrace" that her son and daughter-in-law were accused of child neglect after they took 5-year-old Ashya from Southhampton General Hospital last week. The family says UK authorities had refused to give Ashya the kind of treatment he needed.
The family has criticized Britain's health care system, saying he needs an advanced treatment option called proton beam therapy and that it wasn't being made available to him.
King's parents were arrested Sunday in southeastern Spain after a European arrest warrant was issued by Interpol at the request of British police. Their son is receiving medical treatment for a brain tumor and after his parents' arrest he was admitted to a Spanish hospital.
King says the authorities are "the ones who are cruel, because they have taken poor little Ashya, who is dying of a brain tumor, and they won't let the parents, my son and daughter-in-law, they won't let them see him at all."
LINK
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Posted on 9/1/14 at 7:57 am to Lsut81
quote:
he needs an advanced treatment option called proton beam therapy and that it wasn't being made available to him.
What is the reason they gave for this? I know these proton therapy centers are quite few and far between, so was it a financial decision?
Posted on 9/1/14 at 7:59 am to onmymedicalgrind
quote:
What is the reason they gave for this?
Doesn't say...
quote:
so was it a financial decision?
No, sounds like they think he needs that type of treatment... No clue whether they are right with that or not, but Britain doesn't have that type of therapy, so they were taking him to somewhere that had it.
Posted on 9/1/14 at 8:15 am to Lsut81
quote:
No, sounds like they think he needs that type of treatment... No clue whether they are right with that or not, but Britain doesn't have that type of therapy, so they were taking him to somewhere that had it.
If I had to guess, it sounds like the parents somehow decided that their child needs this proton therapy, but his doctors disagreed. Parents decided to take him out of the hospital and go for the proton therapy regardless. I have no idea what the laws are over there nor the specifics of this childs condition and treatment option, but doesn't really seem like an arrest-able offense (but I'd guess the docs in Britain think what these parents are doing is likely going to end up really harming/possibly killing their child which is why they took action).
Posted on 9/1/14 at 8:18 am to Lsut81
This is beyond ridiculous. Qualified doctors in several countries already use this treatment and the NHS thinks it works or they wouldn't be building treatment centers that will use it.
Posted on 9/1/14 at 8:22 am to Bestbank Tiger
quote:
Qualified doctors in several countries already use this treatment and the NHS thinks it works or they wouldn't be building treatment centers that will use it.
Well in all fairness, we don't have the information to know whether this kid was a good candidate for this therapy. Just because it works for some doesn't mean its good for everybody. Something tells me thats the point of contention that started all this.
Posted on 9/1/14 at 8:23 am to onmymedicalgrind
quote:The British state decided it wasn't needed, nor would it be made available under any circumstances.
What is the reason they gave for this? I know these proton therapy centers are quite few and far between, so was it a financial decision?
quote:
"We pleaded with them for proton beam treatment. ... They looked at me straight in the face and said with his cancer, it would have no benefit whatsoever."
quote:
Video of father discussing the situation.
Note: Despite claims to the contrary, the son's feeding tube remains in place
From the comments:
Britain is a country where a mother can be forcibly sedated and a child can be taken from the womb by the state ( LINK). A very sad state of affairs indeed. Children belong to parents and not the state. Britain is no longer a free country. It is a Neo-socialist hell hole where the state is god.?
Posted on 9/1/14 at 8:25 am to onmymedicalgrind
quote:
Something tells me thats the point of contention that started all this.
If the current attempts at treatment are not working and there is a chance that this proton therapy could, then the parents should have every right to seek it out.
Posted on 9/1/14 at 8:27 am to NC_Tigah
This is Ezekiel Emanuel's vision for American Medicine BTW.
This post was edited on 9/1/14 at 8:28 am
Posted on 9/1/14 at 8:31 am to Lsut81
Arresting parents who take their kids out of one treatment center and to another is major fricked up.
It happened here in the US just a few months ago. Actually happens here more than we would like to admit.
It happened here in the US just a few months ago. Actually happens here more than we would like to admit.
Posted on 9/1/14 at 8:33 am to Lsut81
quote:
If the current attempts at treatment are not working and there is a chance that this proton therapy could, then the parents should have every right to seek it out.
Oh I agree 100%. This story is...peculiar to say the least.
Posted on 9/1/14 at 8:48 am to onmymedicalgrind
Combing to Somewhere in America real soon. Just hope it's no one related to me.See that way it's always the other guys problem.
Posted on 9/1/14 at 8:51 am to real
Posted on 9/1/14 at 8:56 am to Meauxjeaux
quote:
It happened here in the US just a few months ago. Actually happens here more than we would like to admit.
The most screwed up part is that there are fully qualified doctors who agree with the parents. Where did the social workers and government bureaucrats go to med school and earn the right to overrule practicing physicians?
Posted on 9/1/14 at 9:08 am to Lsut81
quote:
If the current attempts at treatment are not working and there is a chance that this proton therapy could, then the parents should have every right to seek it out.
As a parent, I'd probably do the same thing as these folks. I wouldn't judge any parent going through the nightmare of having a dying child.
As a detached observer of the story, I'd think maybe if the child has been declared to not be a candidate for this treatment for clearly defined medical reasons and the parents are unwilling to accept it due to their grief, then the parents are wrong and their actions are possibly detrimental to the child.
Arresting them is a bit much, though.
Posted on 9/1/14 at 9:10 am to Scoop
quote:
As a parent, I'd probably do the same thing as these folks. I wouldn't judge any parent going through the nightmare of having a dying child. As a detached observer of the story, I'd think maybe if the child has been declared to not be a candidate for this treatment for clearly defined medical reasons and the parents are unwilling to accept it due to their grief, then the parents are wrong and their actions are possibly detrimental to the child. Arresting them is a bit much, though.
Pretty much my stance to a T
Posted on 9/1/14 at 9:39 am to Scoop
quote:
possibly detrimental to the child.
Thats where the issue is...
IF the current treatment was not doing anything and the kid was dying, then I fully support trying something else
IF the current treatment was sustainable and keeping the child alive/making progress and the parents pulled him out in an attempt at a hail mary, then
Posted on 9/1/14 at 10:24 am to Scoop
quote:
then the parents are wrong and their actions are possibly detrimental to the child.
There is really no logical basis for that conclusion in a circumstance where the current course is possibly "detrimental" in its own right. There may well be associated brain damage with the std treatment being forced by the NHS. ( Related Article)
As childhood death or brain damage is certainly "detrimental" --- detrimental to both parents and child --- the state's actions are possibly detrimental. So then "detrimental" becomes a matter of degree. Proton therapy is novel enough to likely make degree of aid or detriment unreliably determinable for the child. There is some data indicating potential for less brain damage associated with proton rather than photon therapy. Damage is of significant concern in Peds brain cancer treatment.
Last year we saw a fairly similar parent vs state argument in the news. Some may remember the case of a Philadelphia girl with terminal CF. She was was end stage d/t pulmonary complications. Government rules forbade adult lung transplant into pediatric patients. The parents pressured, protested, and finally succeeded in gaining a transplant for her. She is still alive, and by all accounts, is improving.
This post was edited on 9/1/14 at 3:41 pm
Posted on 9/1/14 at 11:32 am to Lsut81
Let go. Let gov.
Posted on 9/1/14 at 11:51 am to Lsut81
Why do people still hold on to the romantic thought that they can actually posses private property? The government owns everything including your children.
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