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LYME’s disease

Posted on 9/4/22 at 7:08 am
Posted by louisianalegend
Wisconsin
Member since May 2006
84 posts
Posted on 9/4/22 at 7:08 am
Has anyone gotten treatment for Lymes disease? I have a family member suffering for a while now and not sure what to do
Posted by tiggerthetooth
Big Momma's House
Member since Oct 2010
61270 posts
Posted on 9/4/22 at 7:18 am to
There is no cure. It's permanent and stays with you forever.


I think the typical early treatment is a course of doxycycline which gives you a chance of clearing it out.


quote:

No. Patients treated with antibiotics in the early stages of the infection usually recover rapidly and completely. Most patients who are treated in later stages of the disease also respond well to antibiotics, although some may have suffered long-term damage to the nervous system or joints. It is not uncommon for patients treated for Lyme disease with a recommended 2 to 4 week course of antibiotics to have lingering symptoms of fatigue, pain, or joint and muscle aches at the time they finish treatment. In a small percentage of cases, these symptoms can last for more than 6 months. These symptoms cannot be cured by longer courses of antibiotics, but they generally improve on their own, over time.
This post was edited on 9/4/22 at 7:22 am
Posted by louisianalegend
Wisconsin
Member since May 2006
84 posts
Posted on 9/4/22 at 7:24 am to
Do they give any antibiotics if it is past 6 months? She has been sick for a while now
Posted by schwartzy
New Orleans
Member since May 2014
9032 posts
Posted on 9/4/22 at 7:27 am to
Was this from a tick?
Posted by sledgehammer
SWLA
Member since Oct 2020
3373 posts
Posted on 9/4/22 at 7:35 am to
I’m pretty sure it’s just called Lyme disease. Shania Twain has it
This post was edited on 9/4/22 at 7:42 am
Posted by BarCo49
Alabama
Member since Apr 2021
229 posts
Posted on 9/4/22 at 7:40 am to
I got Lyme about 12 years ago. My doctor said there's no Lyme in our part of the world (south Alabama) etc. etc.

Tested positive on an ELIZA screening but didn't show enough markers on the western blot to be called lyme. They also tested me for RA which I did not have.

Long story short, I found out about a physician in Mobile, Dr. George McCullars, that treated lyme and took it seriously. He prescribed 2 azithromycin a day for a month, 1 metronidazole a day for a month, 1 biaxin (sp?) a day for a month then back to the azithromycin - one a day for a month. Total of 4 months of anti-biotics.

I got the tick bite in April and didn't get treatment until September/October. His protocol worked for me. I had alot of people, many I never knew, contact me saying themselves or a family member were suffering with lyme and no one in the medical establishment would take them seriously. One particular guy told me his daughter had blown her life savings trying to better. She actually went to Dr. McCullars with a very advanced case and started getting better.

Don't know if he is still in practice. He has no bed side manner and doesn't take insurance. But, he can treat lyme. He was in the Springhill Medical Complex off I-65 North last time I was there. I've been told there's also a doctor in Destin that specializes in treating lyme - don't know his name though.

Good luck.
Posted by tiggerthetooth
Big Momma's House
Member since Oct 2010
61270 posts
Posted on 9/4/22 at 7:43 am to
quote:

Do they give any antibiotics if it is past 6 months? She has been sick for a while now


I'm not a doctor but I have gone through an episode where I thought I had lyme disease. I went for a consultation within days after I noticed a spot on my arm where I thought a tick latched on to me. I took a 5 day course of doxycycline and that was it. After reading more about how it's transmitted I don't think I had much chance of contracting it.

In some cases the symptoms are hard to pin down as a case of lyme disease, especially so much later in the process after the initial infection (if there is one).

It takes about 24 hours for a tick that's latched on to your skin to transmit lyme disease. It doesn't happen easily and requires a lot of time which would include the host not recognizing there's a tick latched to their body for up to 24 hours.

Did this person visit anywhere that lyme disease ticks are widely present? Like the northeast?


quote:

The chances that you might get Lyme disease from a single tick bite depend on the type of tick, where you acquired it, and how long it was attached to you. Many types of ticks bite people in the U.S., but only blacklegged ticks transmit the bacteria that cause Lyme disease. Furthermore, only blacklegged ticks in the highly endemic areas of the northeastern and north central U.S. are commonly infected. Finally, blacklegged ticks need to be attached for at least 24 hours before they can transmit Lyme disease. This is why it’s so important to remove them promptly and to check your body daily for ticks if you live in an endemic area.



Check this website
This post was edited on 9/4/22 at 7:46 am
Posted by RollTide1987
Augusta, GA
Member since Nov 2009
65113 posts
Posted on 9/4/22 at 7:50 am to
As a fan of the great state of Connecticut, I am triggered by the fact that this disease is named after the small town of Lyme. It is a racist and un-inclusive name for a disease that just so happened to be discovered near the quaint little town.
Posted by BamaCoaster
God's Gulf
Member since Apr 2016
5270 posts
Posted on 9/4/22 at 7:59 am to
I got it about 2 years ago in S Alabama.
Doctors originally told me I had cancer.
Scary 2.5 weeks, until a virologist told me I had mono plus Lyme disease.
Got like 2 weeks of dyoxocilyn or whatever, and am now as fan as an overweight American male can be. No diet restrictions or any lingering effects.
I did receive a call shortly thereafter from the AL dept of health, wanting to know where I was, where I had been, etc., which was a little weird.
Posted by Hobson
Member since Feb 2022
7 posts
Posted on 9/4/22 at 8:05 am to
BarCo is dead on. I had exactly the same experience. Check out Dr Jonathan Forester in Pineville. Like Barco’s Dr he doesn’t take insurance and reports nothing to the CDC. My antibiotic protocol was very similar to Barco’s and it took about 6 months to recover fully. Good luck.
Posted by LSUfan20005
Member since Sep 2012
8817 posts
Posted on 9/4/22 at 8:07 am to
Don’t like over 80% of ticks tested in CT have Lyme?

To the OP, the author and podcast host Tim Ferris had a long struggle with Lyme that I think he eventually resolved with a keto diet, but some of his podcasts had very interesting dives into what was going on and pathways to help.
Posted by ItsBernie
Louisiana
Member since May 2019
266 posts
Posted on 9/4/22 at 8:10 am to
I have several friends that have it and one has to have transfusions twice a year. So I take it pretty seriously. I found two rocks on me this week. Called my doctor and he started me on a precautionary dose of antibiotics. On spot was about 1.5” circle. And after 3 days of meds the spot is now the size of a dime and light red. Hopefully all goes well.
Posted by Bayoutigre
29.9N 92.1W
Member since Feb 2007
5621 posts
Posted on 9/4/22 at 9:02 am to
created in a lab probabily Plum island.
ivermectin ,rife freq.
This post was edited on 9/4/22 at 9:07 am
Posted by Palmetto98
Where the stars are big and bright
Member since Nov 2021
2145 posts
Posted on 9/4/22 at 9:05 am to
LYME’s is a terrible disease and something I would hate to catch
Posted by nicholastiger
Member since Jan 2004
42633 posts
Posted on 9/4/22 at 9:10 am to
If you go camping with your kids
Check them thoroughly during and after
Pulled one off my child after a camping trip
Posted by slutiger5
Parroquias de Florida
Member since May 2007
10641 posts
Posted on 9/4/22 at 9:10 am to
What made you get checked?
Posted by NEOJoe
Member since Dec 2021
606 posts
Posted on 9/4/22 at 9:19 am to
Yes I have it in chronic form. It started for me in March of 2020. The sooner you catch it the better. Once it’s in chronic form it can be very difficult.

The first thing I would do is look for a doctor who knows about it. Most of the hospital systems are pretty clueless about it and you probably won’t get anywhere with them. The best thing to do is catch it early and treat it with antibiotics, unfortunately it sounds like your family member’s been dealing with it for a while. I would say try to find a good doctor, take supplements, and change your diet. Antibiotics help some people others not so much. I was on heavy antibiotics for about 6 months. I got a maybe a little improvement but they made me feel like garbage. It really is a case by case issue.

I could write pages about this but I’d say the first thing is to find a good doctor and get some more testing done and see where you can go from there. Sorry to hear your family is dealing with this. I’d be happy answer questions or help if you need it.
This post was edited on 9/4/22 at 9:24 am
Posted by OGM
Baton Rouge
Member since Aug 2020
460 posts
Posted on 9/4/22 at 9:50 am to
quote:

If you go camping with your kids Check them thoroughly during and after Pulled one off my child after a camping trip
And after playing with outside animals! I got one playing with a farm goat when I was 4 and have been paranoid about ticks since. Use bug spray to prevent them, especially around the ankles.
Posted by Dalosaqy
I can't quite re
Member since Dec 2007
12307 posts
Posted on 9/4/22 at 10:21 am to
quote:

There is no cure


False. If diagnosed in the early stages, Lyme disease can be cured with antibiotics. Without treatment, complications involving the joints, heart, and nervous system can occur. But these symptoms are still treatable and curable.
Posted by BarCo49
Alabama
Member since Apr 2021
229 posts
Posted on 9/4/22 at 11:56 am to
Don’t mean to belabor this subject but it’s important because, untreated, Lyme(and other associated tick-borne illnesses) can wreck a person. Sadly, that’s not necessary.

The Dr. I used used to work for the National Institutes of Health. He hated the CDC and said their use of the western blot test as a gold standard for Lyme was not always the case but they’d switched to that recently at the time of my issues.

There are often overlooked variables that might be in play. I spent 30 years as a wildlife biologist for AL DNR - specialized in deer. Handled deer all the time. The place I picked up Lyme was a notable quail plantation. They had folks from all over east of the Mississippi bringing in dogs for field trials and hunts. Many from the NE where Lyme is prevalent. It’s not a stretch to suggest some ticks carrying Lyme could’ve been translocated there. I can’t blame a Dr. for not taking that into consideration as he didn’t have that info - hell, I didn’t think about that possibility until after I’d been treated. Point is - geography is not necessarily a barrier to Lyme.

The thing my Dr. said to me that still resonates is “do you want a positive Lyme test or do you want me to treat all the clinical symptoms you have and hopefully make you better?”

My insurance refused to pay for any of my treatments. I had about $1,400 out of pocket but totally worth it. At that time there was a test by a lab in Cali that was 60% accurate and cost $5K. Now that test is 80% accurate and about $1,400. Prob worth it to make insurance do their part.

Don’t get hung up on some BS - if one is displaying all the classic maladies of Lyme - seek proven medical help and let them do their thing. There’s nothing to lose.
This post was edited on 9/4/22 at 11:59 am
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