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re: Kidney Failure, unknown cause. Dialysis in future.

Posted on 4/7/24 at 2:20 pm to
Posted by TiggerPack5
Member since Feb 2022
64 posts
Posted on 4/7/24 at 2:20 pm to
Hey man, I know this is tough news to hear…I am 21, and my Mom is 42. She started having Kidney failure when I was about a year old, and she was diagnosed with Lupus. She has been through 4 kidney transplants(her most recent was Christmas Eve of 22). She has also been on Dialysis all but 6 of those years in my lifetime. She is fortunate enough to have a machine at home, and she can make her own dialysis schedule. I tell you all of this because this might help you in your struggles. My mom has always felt bad we might not have been able to do anything because she thinks her doing dialysis might hinder trips or stuff like that. It has never hindered a single thing in my life, we have both quite literally traveled the world while she has done dialysis. We recently were fortunate enough to go to Europe and we went on a 12 night cruise in the Med. Greek Isles, she was able to travel with her machine and we did dialysis on the cruise ship.

If you are able to get a dialysis machine, your everyday life will be the exact same pretty much, besides the time you are doing dialysis. My mom found it best for her to do it most days a week for 3-3 1/2 hours a day. She would just read or watch a Tv show during this time.

Ik you can also do a method of Dialysis where you are on the machine while you are sleeping through the night. Just depends on what you prefer. If you have to go to a clinic to do Dialysis you will probably have to slightly change your schedule to be able to go to the clinic a few times a week(but this means it will be longer on the machine because it is less times a week).

Long story short, you will pretty much be able to do everything you are already doing, you just have to put a few hours X amount of days aside to be on a machine to filter your blood. You might feel weak or bad every now and then if something comes up and you can’t do dialysis one day, but most of the time(as my Mom explains to people) “I live a perfectly normal life, its just a matter of scheduling that is different)

I understand its awful news you didn’t want to hear, and it will be a life-adjustment. However, try your best to remain positive and lean on God if you are struggling with anything…he is always there for you even if you don’t see it. Praying for you!
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