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re: My Mom has been getting worse with her dementia

Posted on 4/27/24 at 6:35 pm to
Posted by GRIZZ
PRAIRIEVILLE
Member since Nov 2009
5362 posts
Posted on 4/27/24 at 6:35 pm to
Lost my mom 2 months ago after battling dementia for about 5 years. The last year was hard. She would sleep 20 hours/day and never shower or eat if we let her. We were fortunate to keep her at home with round the clock sitters. I think she would have passed a year ago without good care. One thing I noticed with her is when she was at the point that your mom is at now, we couldn’t really give her choices. She wasn’t mentally capable of making decisions. We had to say ok mom it’s time to eat. Or time to shower. Or let’s walk to the bathroom now. That worked well for her and I think it may have prolonged her life some.
Posted by Jim Rockford
Member since May 2011
98425 posts
Posted on 4/30/24 at 1:12 pm to
Had an appointment yesterday to see about putting on her on hospice and it was not reassuring. My mother is in excruciating pain from her degenerating hip, They basically admitted that upping her pain meds any more would cause her to be sedated all the time and that they wouldn't do anything to encourage her to eat and drink, which she hasn't been doing for a few days, so she will probably decline and die pretty quickly and not be able to interact with us very much if at all.. You see the testimonials about how wonderful hospice it is but it's clear to me the reality is going to be something else, at least for us.

OTOH she was crying in pain when they got her up to use the bathroom today so we have to do something.
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