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re: My Mom has been getting worse with her dementia

Posted on 3/29/24 at 4:24 pm to
Posted by Thracken13
Aft Cargo Hold of Serenity
Member since Feb 2010
16124 posts
Posted on 3/29/24 at 4:24 pm to
my dad has Lewey Body and late stage Dementia for a few years, and it is getting worse.

for him, there are days he is completely there, few and far between that they are, and other days he is like a petulant child. he is verbally abusive and a complete dick. we understand it is mostly the dementia and just let it roll by.

lately he is forgetting my mom, who is his primary care giver, he has forgotten my wife's name, and they called me on my birthday and sang happy birthday, and when they hung up he asked who they were singing to - and when my mom said Mike, your son - he genuinely did not remember I was his son.

now recently he hallucinates all the time, he forgets the same thing he asked 4 or 5 mins earlier, and he sleeps a lot.

im not sure how much time we have left, but it is a bittersweet feeling knowing it will be sad to lose him, but glad that he is not suffering inside his own prison in his mind.

OP, we may not have the same situations with our folks, but I do understand what you are going through - cause I am there almost daily.

my advice is patience - most of what she is doing/saying/not doing is 100% the dementia, and they cannot fully understand what they are doing, or the impact of it. getting mad at them doesn't help them, and it doesn't make the situation any better.

it is damn hard man, and I'm tearing up typing this - but my advice is no matter what, do your best to have patience.
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