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Anyone here have experience with Parkinson's disease?
Posted on 3/4/15 at 7:43 am
Posted on 3/4/15 at 7:43 am
My grandmother was just diagnosed with Parkinson's yesterday. We kind of suspected it for some time. She shakes occasionally, has balance problems and her once beautiful handwriting is hardly legible. So my grandfather had her tested and she does in fact have it. Anyone here have any personal experiences with Parkinson's?
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Posted on 3/4/15 at 7:46 am to ForeverLSU02
my 86 year old grandma has it. found out about three years ago. not sure what you want to know. she gets PT A couple times a week. doesnt drive anymore. but hell, she is 86.
Posted on 3/4/15 at 7:49 am to ForeverLSU02
My mom had for about 3-4 years with it before she passed away. It was noticeably in her hands. It was heart-breaking to see her like that, but comforting her would always make things better. Are you looking for something specific?
Posted on 3/4/15 at 7:49 am to ksayetiger
My grandma is around 70 but probably hasn't driven in 10 years. I was just curious as what to expect as the disease progresses. I'm hearing that with medication it's manageable. How much does it affect the person from a mental standpoint?
Posted on 3/4/15 at 7:52 am to ForeverLSU02
My Grandpa had it for about 10 years until his death. It only grows in intensity.
Posted on 3/4/15 at 7:52 am to crankbait
quote:No. Just not sure what to expect.
Are you looking for something specific?
Posted on 3/4/15 at 7:53 am to ForeverLSU02
My pawpaw has had it for a while.
It isn't a big deal initially. The shaking is bad but it starts to break you down mentally after a while. The physical breakdown is pretty bad but I think the mental is worse.
It's a terrible disease just like all of the other stuff old people have. Pawpaw has been living with it for about 10 years I guess. We're just thankful for the good days and we make it through the bad. Watch the medicine. He was put on a regime briefly that almost killed him. I think the side effects of the meds are worse than the side effects of the disease.
It isn't a big deal initially. The shaking is bad but it starts to break you down mentally after a while. The physical breakdown is pretty bad but I think the mental is worse.
It's a terrible disease just like all of the other stuff old people have. Pawpaw has been living with it for about 10 years I guess. We're just thankful for the good days and we make it through the bad. Watch the medicine. He was put on a regime briefly that almost killed him. I think the side effects of the meds are worse than the side effects of the disease.
Posted on 3/4/15 at 7:55 am to ForeverLSU02
I never knew my grandfather without it. She needs to go look into deep brain stimulation. This wasn't around for my grandfather. All he was able to get was dopamine treatments and a very basic form of a stimulator in his head
LINK
LINK-This was is really good
LINK
LINK-This was is really good
This post was edited on 3/4/15 at 8:00 am
Posted on 3/4/15 at 7:58 am to ForeverLSU02
Dad has it. Diagnosed 7 years ago. Has tremors in his left hand and leg. The medication helps but can make him sick on his stomach. You can tell right away whether he skipped or not. He's still fully functional at this point, but we know there is a hard road ahead.
Not sure how old your grandmother is, but there is a chance she may not live long enough to suffer the full effects of PD.
Not sure how old your grandmother is, but there is a chance she may not live long enough to suffer the full effects of PD.
Posted on 3/4/15 at 7:59 am to NorthGwinnettTiger
NGT- watch that second video. Your father should look in DBS.
Posted on 3/4/15 at 8:04 am to ForeverLSU02
My grandfather passed due to Parkinson's.
It is a truly debilitating disease.
He had it about seven years. What really made the disease progress was when he fell and dislocated his hip. Once that happened, he could never walk again and was bedridden the rest of his life.
Throughout the entire process, there are good days and bad days, and the bad days become more prevalent as time goes on.
The last year or so he went on a catheter. The last month or so, he was in and out of consciousness and generally stayed high on morphine through the hospice service.
Terrible disease. Terrible way to go.
Prayers for you and your family.
It is a truly debilitating disease.
He had it about seven years. What really made the disease progress was when he fell and dislocated his hip. Once that happened, he could never walk again and was bedridden the rest of his life.
Throughout the entire process, there are good days and bad days, and the bad days become more prevalent as time goes on.
The last year or so he went on a catheter. The last month or so, he was in and out of consciousness and generally stayed high on morphine through the hospice service.
Terrible disease. Terrible way to go.
Prayers for you and your family.
This post was edited on 3/4/15 at 8:05 am
Posted on 3/4/15 at 8:04 am to ForeverLSU02
My father was diagnosed about 10 years ago with it. He is now 72 but the disease has not progressed at all in that time. I've argued till I'm blue on the face with his Dr because I think he had a stroke since the symptoms can be similar. I finally got to speak with the Dr's partner and they are supposed to have a new Parkinson's test that is 99% accurate. Should be making an appointment for that shortly.
Posted on 3/4/15 at 8:07 am to ForeverLSU02
One thing you have to watch for is balance as the disease progresses. Falls are a major risk for people with Parkinson's.
Posted on 3/4/15 at 8:10 am to jmarto1
quote:
She needs to go look into deep brain stimulation.
This helped the mother of a friend of mine quite a bit. It didn't stop it, but it did seem to slow it down for a good long time.
Posted on 3/4/15 at 8:10 am to Jim Rockford
Yeah, she's fallen 3 times in the last year...... 
Posted on 3/4/15 at 8:10 am to jmarto1
quote:
jmarto1
Yeah, we've heard about DBS. He's not progressed enough yet to really need this. His shaking now is about the equivalent to someone with real low blood sugar shaking. Once it progresses to where the medicine is not working anymore, we'll probably resort to DBS.
Posted on 3/4/15 at 8:10 am to ForeverLSU02
Thanks everyone for your comments
Posted on 3/4/15 at 8:14 am to ForeverLSU02
No problem.
Mentally, they'll get a bit more confused, especially once they're bedridden. However, their minds stay pretty sharp throughout the whole ordeal. At least that is comforting.
Mentally, they'll get a bit more confused, especially once they're bedridden. However, their minds stay pretty sharp throughout the whole ordeal. At least that is comforting.
Posted on 3/4/15 at 8:16 am to ForeverLSU02
Just make sure you don't waste the good days. They become few and far between once the disease gets bad.
It's tough to go through. There's plenty of times when pawpaw knows what he wants to say, but he just can't get the words out. Thats probably the hardest thing for me to see. I've been listening to him my whole life and now he can't always say what he wants to say.
My whole life I always thought Parkinson's was just the shakes, but in the later stages its much more than that. I hope we can develop some better ways to suppress the symptoms soon.
It's tough to go through. There's plenty of times when pawpaw knows what he wants to say, but he just can't get the words out. Thats probably the hardest thing for me to see. I've been listening to him my whole life and now he can't always say what he wants to say.
My whole life I always thought Parkinson's was just the shakes, but in the later stages its much more than that. I hope we can develop some better ways to suppress the symptoms soon.
Posted on 3/4/15 at 8:23 am to ForeverLSU02
quote:
Anyone here have any personal experiences with Parkinson's?
My grandmother had it. Slow wasting away. The loss of mental acuity renders one a near-vegetable in Parkinson's advanced stages.
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