Lymphoma in abdominal cavity

sorry bro. prayers yalls way. hope you receive good news

Wow - I remember your post recently. Either way, I'm glad they have pinpointed exactly what it is so they can better treat it. It's amazing how specialized the treatment can be. The fact that it hasn't spread to surrounding organs is a plus, as is the appointment at MD Anderson. She will be in great hands there I'm sure. I wish I had more information to offer. A close relative of mine was diagnosed with lymphoma years back and is doing well now. I'm convinced that a positive mind and support system does wonders for cancer patients.

My mom just whipped lymphomas arse with the help of. MD Anderson. Your mom is in good hands.

T&P for your mom

My mom was diagnosed with Lymphoma last year and went through 6 months of chemo at MD. Been in remission ever since. I will say a prayer for you and your family.

So the cancer doctor at md Anderson doesn't feel informed enough to discuss a rare illness so you come to the ot? Seriously, don't listen to anything you read here

Still think of you and family CorkSoaker.

Tell Mama Soaker to hang in there.

Lymphoma has one of the best 5 year survival rates. But it does matter what sub type she has.....there are over 60. I was diagnosed with stage IV Diffuse Large B Cell Lymphoma 4 years ago. It is a very aggressive and rapid growing sub type. It started under my jaw and by the time I started treatment a few weeks later it had spread to my tracheal and pulmonary regions as well as forming 6 lesions on my left kidney and 4 on the right kidney. It was also on the tail end of my pancreas. It grew like wildfire after they excised the submandibular tumor for biopsy.

If she has what I had (very common) or a similar subtype, she will likely be administered CHOP/R. The R is Rituxin and the newest generation is very effective. I took part in a clinical trial and was the first patient in North Ga. to use it in phase III of the trial. The treatment schedule was inpatient every 3 weeks for 5 months. With all of the anti nausea medicines available today, the treatments are not to bad. Feeling fatigued and semi loss of appetite were the worst for me. Of course, hair loss occurs, but that involves no pain. The worse post treatment symptom was neuropathy in my feet and toes.

All looked great after two treatments as all tumors that had showed on the Pet/CT scans before treatment were shrunk to the point of being almost undetectable. After, eight treatments, they were undetectable and I was in full remission. I quickly gained strength back and started to live a normal life again. Until......

Six months later when I had a relapse. I had a tumor localized around my lower spine that grew so fast that is was 15cm tall by 9cm wide when I began treatment. That is a big arse tumor. Relapse treatment is kind of a "go for broke" super aggressive plan. I had 3 months of Hyper CVAD at a rate of once every three weeks. That had to be done inpatient at Emory where I would stay there 5 days for monitoring. I had radiation on the brain and the spine where the tumor was 15 times. My last 4 weeks were as a resident at Emory because I was preparing for a stem cell transplant. A week prior to the transplant, I had 3 days of high dose chemo and 3 days of TBI(total body irradiation) to kill all of my bone marrow. Finally, the transplant.

Have been clear now for 2 1/2 years. I feel your mom will do great and a ton has to do with the spirit and having positive thoughts. Encourage her and tell her my story and others for motivation. It is far better to have mid to late stage Lymphoma than a mid to late stage ovarian cancer.

My brother is in MD Anderson right now fighting leukemia. As a matter of fact, I drove in today after work and visited him and just got to a family friend's condo here in Houston.

That place is incredibly impressive. That whole medical plaza is. It's all still pretty raw for me, but I was amazed at where we are with medicine when you see facilities like that. It really did give me a little uplift in spirit tonight.

The gynological oncologist at MD Anderson didn't know anything about lymphoma, as she has only seen one case of it in her life. She said she will refer to a lymphoma specialist first thing Monday morning.

However, by coming to the OT tonight, I now have positive stories to share with my mom to get her through the weekend. The unknown right now is very unsettling to her. Maybe now I can ease some of her worry and make her feel more positive until she is able to talk to the lymphoma specialist

To everyone else, you have no idea how much I appreciate your positive stories, thoughts, and prayers. Thank you so much!

Can't wait to share these success stories with her first thing in the morning!